A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type


A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type
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A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type


A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type
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Author : Isobel Knight
language : en
Publisher: Singing Dragon
Release Date : 2014-12-21

A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and has been published by Singing Dragon this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-12-21 with Health & Fitness categories.


Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.



A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type


A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type
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Author : Isobel Knight
language : en
Publisher: Singing Dragon
Release Date : 2014-12-21

A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and has been published by Singing Dragon this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-12-21 with Health & Fitness categories.


Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.



Joint Hypermobility Handbook


Joint Hypermobility Handbook
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Author : Brad T. Tinkle
language : en
Publisher: Wiley-Blackwell
Release Date : 2010

Joint Hypermobility Handbook written by Brad T. Tinkle and has been published by Wiley-Blackwell this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010 with Ehlers-Danlos syndrome categories.


As a followup to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the weatlth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice Brad T. Tinkle, M.D., Ph.D., is a clinical and clinical molecular geneticist at Cincinnati Children's Hospital Medical Center (CCHMC). He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and achondroplasia among the many.



Issues And Management Of Joint Hypermobility


Issues And Management Of Joint Hypermobility
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Author : Brad T. Tinkle
language : en
Publisher: Left Paw Press, LLC
Release Date : 2008

Issues And Management Of Joint Hypermobility written by Brad T. Tinkle and has been published by Left Paw Press, LLC this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008 with Medical categories.


A leading expert in connective tissue disorders presents a primer to encourage dialogue between patients and their health care providers in order to create an individualized treatment plan addressing the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobile Syndrome.



Ehlers Danlos Syndrome A Multidisciplinary Approach


Ehlers Danlos Syndrome A Multidisciplinary Approach
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Author : J.W.G. Jacobs
language : en
Publisher: IOS Press
Release Date : 2018-08-14

Ehlers Danlos Syndrome A Multidisciplinary Approach written by J.W.G. Jacobs and has been published by IOS Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-08-14 with Medical categories.


Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.



Zebras Of Hope


Zebras Of Hope
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Author : Ellen Kelleher
language : en
Publisher: CreateSpace
Release Date : 2014-05-04

Zebras Of Hope written by Ellen Kelleher and has been published by CreateSpace this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-05-04 with categories.


This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS.



Living Life To The Fullest With Ehlers Danlos Syndrome


Living Life To The Fullest With Ehlers Danlos Syndrome
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Author : Pt Kevin Muldowney
language : en
Publisher:
Release Date : 2015-07-17

Living Life To The Fullest With Ehlers Danlos Syndrome written by Pt Kevin Muldowney and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-07-17 with Ehlers-Danlos syndrome categories.


"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.



The Mystery Of Ehlers Danlos Syndrome


The Mystery Of Ehlers Danlos Syndrome
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Author : Minnie H Lewis
language : en
Publisher: Independently Published
Release Date : 2023-10-26

The Mystery Of Ehlers Danlos Syndrome written by Minnie H Lewis and has been published by Independently Published this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-10-26 with categories.


The Mystery Of Ehlers-Danlos Syndrome: A Comprehensive Guide for Patients, Caregivers, and Healthcare Professionals Ehlers-Danlos syndrome (EDS) is a collection of genetic connective tissue illnesses that predominantly affect your skin, joints, and blood vessel walls. People with EDS may experience a wide range of symptoms, including joint hypermobility, skin fragility, chronic pain, and fatigue. This comprehensive guide provides everything you need to know about EDS, from understanding the causes and diagnosis to managing symptoms and improving quality of life. The book covers: The different types of EDS and their clinical manifestations The latest research on EDS and its treatment Practical strategies for managing EDS on a day-to-day basis The emotional and psychological impact of living with EDS Resources and support networks for patients, families, and healthcare professionals Whether you are newly diagnosed with EDS or looking for ways to better manage your condition, this book is an essential resource. Learn how to navigate the healthcare system, advocate for your needs, and live a fulfilling life with EDS. Who this book is for: This book is intended for people living with hEDS and vEDS, their caregivers, and healthcare professionals. It is written in a clear and concise style, making it accessible to readers of all backgrounds. Benefits of this book: If you are living with EDS, this book will provide you with the knowledge and tools you need to manage your condition effectively. You will learn about the latest research on EDS, as well as practical strategies for coping with symptoms and improving your quality of life. If you are a caregiver of someone with EDS, this book will help you to better understand the condition and how to support your loved one. You will also learn about resources and support networks that are available to help you and your family. If you are a healthcare professional, this book will provide you with a comprehensive overview of EDS, its clinical manifestations, and the latest treatment options. You will also learn about ways to improve the lives of your patients with EDS. Grab your copy today and start living your best life with EDS!



Our Stories Of Strength


Our Stories Of Strength
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Author : Kendra Neilsen Myles
language : en
Publisher:
Release Date : 2016-10-20

Our Stories Of Strength written by Kendra Neilsen Myles and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-10-20 with Connective tissues categories.


This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."



Joint Hypermobility Handbook 10th Anniversary Edition


Joint Hypermobility Handbook 10th Anniversary Edition
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Author : BRAD T. TINKLE
language : en
Publisher:
Release Date : 2019-09-21

Joint Hypermobility Handbook 10th Anniversary Edition written by BRAD T. TINKLE and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-09-21 with categories.


Please note: This is the same book with the same information that was in the original release of the "Joint Hypermobility Handbook." This version has an increased size so as to allow for larger margins - convenient for notetaking while ingesting the information! Book content description: As a follow-up to his previous best-selling book, "Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome," Dr. Tinkle has created this handbook with several contributors to expand insights into the understanding and management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome. Dr. Tinkle has received many accolades for his ability to take a complex condition and make it understandable in everyday language: "...provides a wealth of information about the natural history, and physical and medical management... It should be of great value to patients." - The American Journal of Medical Genetics Reader comments... "...a useful tool in helping me obtain the type of care I need to manage my disorder..." "This book is simple but not oversimplified. It is an excellent basic resource, giving a clear, concise, and useful overview for those (like myself) who live with hypermobility." "Super book for EDS! Finally a book that everyone can understand." "...thoroughly explores the problems associated with EDS-HM. It is a relief to realize that it is not just me..." "...a tremendous service for the health care community and the families and friends of those diagnosed or not yet formally diagnosed folks with EDS-HM... joy and clarity in reading the very 'easy to read' text chapters detailing out the impact of EDS-HM..." In addition to the wealth of positive reviews, Dr. Tinkle's previous book on the same subject was a best seller in several categories: - Genetics - Medical Genetics - Orthopedics - Family and General Practice. Brad T. Tinkle, M.D., Ph.D., is a clinical geneticist at Peyton Manning Children's Hospital. He specializes in caring for individuals with heritable connective tissue disorders such as Ehlers-Danlos syndromes, Marfan syndrome, osteogenesis imperfecta, and skeletal dysplasias among the many.