Biobanks And Tissue Research
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Biobanks And Tissue Research
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Author : Christian Lenk
language : en
Publisher: Springer Science & Business Media
Release Date : 2011-07-30
Biobanks And Tissue Research written by Christian Lenk and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-07-30 with Medical categories.
The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
Biobanks And Tissue Research
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Author : Christian Lenk
language : en
Publisher: Springer
Release Date : 2011-07-30
Biobanks And Tissue Research written by Christian Lenk and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-07-30 with Medical categories.
The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
The Ethical And Legal Regulation Of Human Tissue And Biobank Research In Europe
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Author : Nils Hoppe
language : en
Publisher: Universitätsverlag Göttingen
Release Date : 2011
The Ethical And Legal Regulation Of Human Tissue And Biobank Research In Europe written by Nils Hoppe and has been published by Universitätsverlag Göttingen this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011 with Medical categories.
"Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project ('Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union--an Evidence-Based Impact Analysis') to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project's results"--Publisher's description
Human Tissue Research
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Author : Christian Lenk
language : en
Publisher: Oxford University Press, USA
Release Date : 2011-01-27
Human Tissue Research written by Christian Lenk and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-01-27 with Medical categories.
The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. This multi-authored interdisciplinary text provides a fascinating insight into interlinking research perspectives and serves as a comprehensive reference to the state of play ethically and legally in Europe.
Biobanking Of Human Biospecimens
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Author : Pierre Hainaut
language : en
Publisher: Springer Nature
Release Date : 2021-08-25
Biobanking Of Human Biospecimens written by Pierre Hainaut and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-08-25 with Medical categories.
Over the past 25 years, biobanks of human specimens have become a cornerstone for research on human health and have empowered the “omics “revolution that characterizes biomedical science in the XXIst Century. Today, biobanking of human specimens is a critical component of the interface between clinical practice and translational research, supporting the discovery and validation of new biomarkers of disease etiology, risk, early detection, diagnosis, prognosis, prediction and relapse. With the development of personalized medicine, biobanking of cryopreserved specimens has become standard practice in order to investigate genetic, transcriptomic, proteomic, metabolomics and immunological biomarkers useful to inform caregivers for therapeutic decisions. Data generated from biobanked specimens represent a rapidly growing and highly valuable resource, participating in the emergence of Big Data Medicine. With the development of large computing capabilities and artificial intelligence, data associated with biobanked specimens constitute a unique resource for the discovery and validation of new biomarkers and therapeutically actionable targets. Interconnecting, interoperating and sharing this data have become major issues for national health systems, raising enormous stakes as well as major societal, legal and cybersecurity challenges in terms of compliance with the protection of personal sensitive information. This book project is the second part of an initiative launched in 2012 to produce a published corpus of knowledge encompassing all aspects of human biobanking as a central practice for research and medicine. The first volume, published in 2017, is entitled: Human Biobanking: Principles and Practice. This first volume compiled a series of high level contributions overseeing the main developments that carried the progression of human biobanking as a research and biotechnological field over the past two decades. This new book project will constitute de facto Volume 2 of the same initiative, under the title: Biobanking of Human Biospecimens: lessons from 25 years of biobanking experience. Hence, the two volumes will share the same generic title (Biobanking of Human Biospecimens), with different subtitles, making clear that the two volumes are interrelated while highlighting their specificities in terms of what they actually cover. As a result, the two books are “twins” but can also be used independently of each other. The overarching aim of the two volumes of Biobanking of Human Biospecimens is to provide a published “one-stop shop” for state-of-the-art information on what constitutes the field of human biobanking, from conception of a biobank, standard operating procedures, ethical and societal aspects, governance, networking, interoperability and economic sustainability. This inclusive publication concept meets the needs of a vast readership, including scientists, doctors and technical staffs who are directly involved in biobanking operations, scientists in other disciplines that heavily rely on biobanking (such as genomics or proteomics), stakeholders and policy makers, and of course students for whom biobanking is becoming an important part of the training curriculum. So far, there has been a lack of major textbooks on biobanking. Documentation for biobanking is widely available through numerous publications, regulatory documents published by International or Governmental Agencies, and sets of recommendations essentially accessible through the Internet. However, it is difficult to access a single, top-of-the shelf reference that provides at a glance a large coverage of all aspects of human biobanking. Fulfilling this need is the main origin of the concept for this back-to-back publication project. To our knowledge, there is currently no other publication project with the same breath and scope as this one in the field of biobanking.
The Ethics Of Research Biobanking
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Author : Jan Helge Solbakk
language : en
Publisher: Springer Science & Business Media
Release Date : 2009-07-31
The Ethics Of Research Biobanking written by Jan Helge Solbakk and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-07-31 with Medical categories.
Biobanking, i.e. storage of biological samples or data emerging from such samples for diagnostic, therapeutic or research purposes, has been going on for decades. However, it is only since the mid 1990s that these activities have become the subject of considerable public attention, concern and debate. This shift in climate is due to several factors. The purpose of this book is to investigate some of the ethical, legal and social challenges raised by research biobanking in its different modern forms and formats. The issues raised by research biobanking in its modern form can be divided into four main clusters: how biological materials are entered into the bank; research biobanks as institutions; under what conditions researchers can access materials in the bank, and problems concerning ownership of biological materials and of intellectual property arising from such materials; and how the information is collected and stored, e.g. access-rights, disclosure, confidentiality, data security and data protection.
Biobanking In The 21st Century
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Author : Feridoun Karimi-Busheri
language : en
Publisher: Springer
Release Date : 2015-09-29
Biobanking In The 21st Century written by Feridoun Karimi-Busheri and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-09-29 with Science categories.
Biobanking, an emerging field supported by academia, industry and health administrators alike, is distinctly different today from the practice that once defined it. The science of Biobanking, which initially involved simply storing blood or tissue samples in a freezer, is now a highly sophisticated field of research, and expected to grow exponentially over the next decade or two. This book aims to serve the purpose of further enriching the available literature on Biobanking, by offering unique and more useful collection of ideas for the future. The book outlines the experiences of developing modern Biobanking repositories in different countries, whilst covering specific topics regarding the many aspects of Biobanking. This book will be of interest to a wide range of readers including: academics, students, volunteers and advocates of patients’ rights.
Biobanks As A Tissue And Information Semi Commons
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Author : Ken Gatter
language : en
Publisher:
Release Date : 2014
Biobanks As A Tissue And Information Semi Commons written by Ken Gatter and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with categories.
Personalized medicine's promise is tantalizing. Match a patient's specific genetic characteristics with a specific therapeutic intervention and people will be treated more effectively and with fewer side effects. It is the future of medicine, and medical centers, pharmaceutical companies and others are heavily investing in the promise. Critical to realizing this promise is patient tissue and the information derived from patient tissue. Tissue information is essential for research and for routine clinical care in personalized medicine. The most valuable tissue, whether in the research or clinical setting, includes treatment and outcomes information. Tissue also increases in value as it becomes part of a larger collection and benefits increase with collection size. The most valuable tissue collections have large sample numbers, which allow greater statistically power. Unlike tissue repositories in the past, biobanks are more than archived remnants of excised human tissue. They are organized, searchable, data rich entities that, like commercial banks, make lending decisions to qualified researchers or organizations. Biobanking has a green light, but it is forging ahead with many unsettled ethical and legal issues associated with the collection, maintenance, control and use of tissue and the information derived from tissue. This essay will examine the advantages and shortcomings of the current state of legal rights describing human tissue, and then offer a new way that better recognizes the distinction and interdependence of tissue and tissue information, while balancing important interests and maintaining incentives to realize the potential of personalized medicine. The new way begins by recognizing the unique attributes of human tissue, namely its similarity to clinical health information, and continues, with the help of Henry Smith's and Michael Heller's work, by examining and describing biobanks as a liberal semi-commons.
Biobanking An Essential Tool In Translational Research
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Author : Hans-Anton Lehr
language : en
Publisher:
Release Date : 2007
Biobanking An Essential Tool In Translational Research written by Hans-Anton Lehr and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007 with Biology categories.
The collection of human tissue samples (cells and bodily fluids) in tissue banks has sparked a vivid discussion both among the lay public and the biomedical community. This special issue of Pathobiology brings together expert opinions about the legal, ethical, epidemiological and biomedical aspects of tissue banking. It presents the views of patients/donors and researchers on how best to proceed with tissue banks in an international context, and describes several European experiences in detail. Concise and up-to-date, it is recommended reading to all who wish to find out more about tissue banks.
Biobanks As Essential Tools For Translational Research The Belgian Landscape
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Author : Sofie J. S. Bekaert
language : en
Publisher: Frontiers Media SA
Release Date : 2020-09-17
Biobanks As Essential Tools For Translational Research The Belgian Landscape written by Sofie J. S. Bekaert and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-09-17 with Medical categories.
This eBook is a collection of articles from a Frontiers Research Topic. Frontiers Research Topics are very popular trademarks of the Frontiers Journals Series: they are collections of at least ten articles, all centered on a particular subject. With their unique mix of varied contributions from Original Research to Review Articles, Frontiers Research Topics unify the most influential researchers, the latest key findings and historical advances in a hot research area! Find out more on how to host your own Frontiers Research Topic or contribute to one as an author by contacting the Frontiers Editorial Office: frontiersin.org/about/contact.