Bioetica E Genetica Indagini Cliniche E Biobanche Tra Etica Politica E Societ
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Bioetica E Genetica Indagini Cliniche E Biobanche Tra Etica Politica E Societ
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Author : Matteo Galletti
language : it
Publisher:
Release Date : 2013-11
Bioetica E Genetica Indagini Cliniche E Biobanche Tra Etica Politica E Societ written by Matteo Galletti and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-11 with Science categories.
Bioetica E Genetica Indagini Cliniche E Biobanche Tra Etica Politica E Societ
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Author : Matteo Galletti
language : it
Publisher: FrancoAngeli
Release Date : 2013-11-25T00:00:00+01:00
Bioetica E Genetica Indagini Cliniche E Biobanche Tra Etica Politica E Societ written by Matteo Galletti and has been published by FrancoAngeli this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-11-25T00:00:00+01:00 with Social Science categories.
1341.1.36
Un Nuevo Reto Para Los Derechos Fundamentales Los Datos Gen Ticos
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Author : Susana Álvarez González
language : es
Publisher: Midac, SL
Release Date : 2017-12-12
Un Nuevo Reto Para Los Derechos Fundamentales Los Datos Gen Ticos written by Susana Álvarez González and has been published by Midac, SL this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-12-12 with Law categories.
La utilización de los datos genéticos abre nuevas posibilidades de conocimiento en el ámbito público y privado. Las posible ventajas que aporta este conocimiento hay que ponderarlas con los riesgos, ya sean potenciales o reales, para la libertad y la identidad de la persona y, por lo tanto, para sus derechos fundamentales. El conocimiento sobre los datos genéticos otorga a quien los recopila y archiva un poder más amplio que el almacenamiento de otro tipo de información de carácter personal, posibilitando prácticas de control más precisas sobre el individuo; de ahí su interés en sectores como el de los seguros o el de la investigación criminal. Sin embargo, si la utilización desviada de cualquier perfil de la personalidad elaborado a partir de la recopilación de datos personales incide en la libertad, la utilización del perfil genético puede dificultarla o limitarla en grado máximo, derivando hacia la llamada discriminación por razones genéticas. La protección del sujeto frente a la utilización de su información genética de carácter personal es esencialmente un problema de libertad en el que entra en juego además su propia identidad; algunos de estos problemas se abordarán en esta obra colectiva que analiza diversos ámbitos en los que el uso de los datos genéticos se está debatiendo en la actualidad.
Comparative Issues In The Governance Of Research Biobanks
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Author : Giovanni Pascuzzi
language : en
Publisher: Springer Science & Business Media
Release Date : 2013-01-30
Comparative Issues In The Governance Of Research Biobanks written by Giovanni Pascuzzi and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-01-30 with Law categories.
In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.
Principles And Practice In Biobank Governance
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Author : Mark Stranger
language : en
Publisher: Routledge
Release Date : 2016-04-15
Principles And Practice In Biobank Governance written by Mark Stranger and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-04-15 with Social Science categories.
Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.
Rare Diseases And Orphan Products
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2011-04-03
Rare Diseases And Orphan Products written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-04-03 with Medical categories.
Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.
Human Tissue Research
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Author : Christian Lenk
language : en
Publisher: Oxford University Press, USA
Release Date : 2011-01-27
Human Tissue Research written by Christian Lenk and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-01-27 with Medical categories.
The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. This multi-authored interdisciplinary text provides a fascinating insight into interlinking research perspectives and serves as a comprehensive reference to the state of play ethically and legally in Europe.
A Companion To Genethics
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Author : Justine Burley
language : en
Publisher: John Wiley & Sons
Release Date : 2008-04-15
A Companion To Genethics written by Justine Burley and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-04-15 with Philosophy categories.
A Companion to Genethics is the first substantial study of the multifaceted dimensions of the genetic revolution and its philosophical, ethical, social and political significance. Brings together the best and most influential writing about the ethics of genetics; Includes 33 newly-commissioned essays, all written by prominent figures in the field; Shows how there is scarcely a part of our lives left unaffected by the impact of the new genetics.
Ethics Law And Society
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Author : Jennifer Gunning
language : en
Publisher: Routledge
Release Date : 2017-07-28
Ethics Law And Society written by Jennifer Gunning and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-07-28 with Law categories.
This key collection brings together a selection of papers commissioned and published by the Cardiff Centre for Ethics, Law & Society. It incorporates contributions from a group of international experts along with a selection of short opinion pieces written in response to specific ethical issues. The collection addresses issues arising in biomedical and medical ethics ranging from assisted reproductive technologies to the role of clinical ethics committees. It examines broader societal issues with particular emphasis on sustainability and the environment and also focuses on issues of human rights in current global contexts. The contributors collect responses to issues arising from high profile cases such as the legitimacy of war in Iraq to physician-related suicide. The volume will provide a valuable resource for practitioners and academics with an interest in ethics across a range of disciplines.
The Ethics And Governance Of Human Genetic Databases
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Author : Matti Häyry
language : en
Publisher: Cambridge University Press
Release Date : 2013-10-10
The Ethics And Governance Of Human Genetic Databases written by Matti Häyry and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-10-10 with Law categories.
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.