Genetic Information And Health Care
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Genetic Information And Health Care
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Author : James M. Jeffords
language : en
Publisher: DIANE Publishing
Release Date : 2001-02
Genetic Information And Health Care written by James M. Jeffords and has been published by DIANE Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-02 with categories.
Witnesses: Francis Collins, Director, Nat. Human Genome Research Inst., Nat. Inst. of Health (NIH); Gary Claxton, Deputy Assistant Secretary for Planning and Evaluation, U.S. Dept. of Health and Human Services (HHS); Christine Brunswick, Nat. Breast Cancer Coalition; Judith Palkovitz, Hadassah; Jodi Rucquoi, Dept. of Genetics, Yale Univ. School of Med.; Joanne Denise, Nat. Assoc. of Health Underwriters; Jack Ehnes, commissioner of insur., State of Colorado, for the Nat. Assoc. of Insur. Commissioners; and Mary Lehnhard, Blue Cross/Blue Shield Association. Also, prepared statement by the Health Insur. Assoc. of America.
Cybergenetics
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Author : Anna Harris
language : en
Publisher: Routledge
Release Date : 2016-04-28
Cybergenetics written by Anna Harris and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-04-28 with Social Science categories.
Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online? With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services.
Genetics And Genomics In Nursing And Health Care
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Author : Theresa A Beery
language : en
Publisher: F.A. Davis
Release Date : 2018-01-08
Genetics And Genomics In Nursing And Health Care written by Theresa A Beery and has been published by F.A. Davis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-01-08 with Medical categories.
Complex concepts made manageable! Build the foundation you need to understand the science of genetics and its growing role in the diagnosis and treatment of diseases and disorders. Confidently tackle the basics of genetic inheritance, the influence of somatic and germline mutations, the multifactorial relationship of gene-environment interactions, and the foundation of ethical behavior. Everyday language makes these often-intimidating topics easy to understand, while clearly defined principles, logical explanations, illustrations, tables, and clinical examples ensure you master the material.
Genetic Testing And Screening For Health Care Purposes
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Author : Council of Europe. Committee of Ministers
language : en
Publisher: Council of Europe
Release Date : 1993-01-01
Genetic Testing And Screening For Health Care Purposes written by Council of Europe. Committee of Ministers and has been published by Council of Europe this book supported file pdf, txt, epub, kindle and other format this book has been release on 1993-01-01 with Political Science categories.
On cover: Legal issues
The Human Genome Project And The Future Of Health Care
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Author : Thomas H. Murray
language : en
Publisher: Indiana University Press
Release Date : 1996-12-22
The Human Genome Project And The Future Of Health Care written by Thomas H. Murray and has been published by Indiana University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1996-12-22 with Medical categories.
"The volume deserves our serious attention. The authors have provided us an invaluable primer about the HGP and its implications for the future of American health care." -- Jurimetrics "This book does make a real contribution... in explaining why the genetics revolution holds so much promise and why it is so difficult to bring that promise to fruition." -- The Journal of Legal Medicine "... marked by a forward-looking, analytically and empirically grounded thematic coherence. The editors' carefully crafted template and contributions successfully focus and organize the material." -- Annals of Internal Medicine "Excellent" -- Canadian Medical Association Journal "The editors have done a very good job integrating the contents into a very useful and readable information source." -- Choice "... this highly focused book is a well-written, thoughtful, and insightful consideration of the HGP and is valuable reading for anyone concerned with the future of our country's medical infrastructure." -- Science Books & Films (**Highly recommended) "A distinguished group of scientists, lawyers, and scholars have written a coherent, readable account of the legal, medical, ethical, and policy issues many (if not all) of us will be wrestling with on both a personal and a public level, as a result of current genetic research." -- Library Journal "Each of the contributors is a distinguished authority on the topic. Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the society debate." -- Doody's Health Sciences Book Review Home Page How will the science of gene mapping and gene manipulation affect health care? Leading scholars explore the clinical, ethical, legal, and policy implications of the Human Genome Project for the forms of health care, who delivers it, who receives it, and who pays for it.
Direct To Consumer Genetic Testing
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2011-01-16
Direct To Consumer Genetic Testing written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-01-16 with Medical categories.
Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.
Privacy Issues In Biomedical And Clinical Research
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 1998-12-10
Privacy Issues In Biomedical And Clinical Research written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998-12-10 with Medical categories.
After discussions with the National Cancer Institute and the Department of Energy the Board on Biology of the National Research Council agreed to run a workshop under the auspices of its Forum on Biotechnology entitled "Privacy Issues in Biomedical and Clinical Research" on November 1, 1997. The organizers want to stress the forum was not intended to cover the full gauntlet of issues concerning Genomics and the Privacy of Medical Records. The emphasis of this forum was to look at pending legislation in Congress (Fall, 1997) and consider, if enacted as written, how this would affect genetic research. The broad language of this legislation written to protect the individual could inadvertently restrict research intended to help these same individuals. Scientific progress requires the sharing of information for the validation of results and the dissemination of gained knowledge to be effective. Other issues which were touched upon in this forum but not fully explored include; the trust of individuals involved in genetic studies in the manner their genetic information could be used, the practice of the generalized "linking" of particular ethnic groups with specific genetic traits, and the potential for positive and negative impact on the quality of life by having knowledge of one's genetic potential. These and other issues which have come upon us in the age of genomics require separate, focused efforts to explore their potential effect on society.
Advances In Genetic Information
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Author : R. Steven Brown
language : en
Publisher: Council of State Government
Release Date : 1993
Advances In Genetic Information written by R. Steven Brown and has been published by Council of State Government this book supported file pdf, txt, epub, kindle and other format this book has been release on 1993 with Medical categories.
The Experiences And Preferences Of People Receiving Genetic Information From Healthcare Professionals
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Author : Sarah Burke
language : en
Publisher:
Release Date : 2007
The Experiences And Preferences Of People Receiving Genetic Information From Healthcare Professionals written by Sarah Burke and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007 with Disclosure of information categories.
Privacy Confidentiality And Discrimination In Genetics
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Author : United States. Congress. House. Committee on Commerce. Task Force on Health Records and Genetic Privacy
language : en
Publisher:
Release Date : 1998
Privacy Confidentiality And Discrimination In Genetics written by United States. Congress. House. Committee on Commerce. Task Force on Health Records and Genetic Privacy and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with Law categories.