Hopelessness Levels Of The Parents Who Have Children With Congenital Heart Diseases
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Hopelessness Levels Of The Parents Who Have Children With Congenital Heart Diseases
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Author :
language : en
Publisher:
Release Date : 2017
Hopelessness Levels Of The Parents Who Have Children With Congenital Heart Diseases written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with categories.
Congenital heart defects (CHDs) are the most common type of congenital anomalies and represent approximately 33% of the major congenital anomalies. In recent years, despite the development of prenatal ultrasound technology, mortality in cardiac anomaly has reached 10% and this rate covers 50% of the deaths related to malformation (1,2). The birth of a baby is one of the most powerful human experiences and creates a great hope and expectation in families. The effects of the disease of the child on the parents vary by disease being a threat to his/her life, having a significant impact on the daily life of families, arousing a feeling of uncertainty for the future and being diagnosed after birth. Hopelessness that families experience adversely affects the treatment compliance of the individuals, their efforts, motivation and coping mechanisms . In this study, hopelessness levels of the parents of children with congenital heart disease (CHD) and influencing factors were determined.The universe consists of parents applied to Ege University Department of Cardiovascular Surgery and whose children had CHD surgery. The sample includes parents applied to the hospital between August and December 2015, agreed to participate and with children aged 0-6 had surgery. Sample size was 100 parents (50 males, 50 females) according to priori power analysis. Patient identification form for sociodemographic characteristics and The Beck Hopelessness Scale were used to collect data. Descriptive statistics, the Kruskalu2013Wallis test, the Mann-Whitney U and the Independent Samples t test were used.It was determined that gender and age of the parents and children and diagnosis during or did not affect hopelessness level (p>0.05) unlike educational background (p
Anxiety Depression And Stress In Parents Of Children With Congenital Heart Defects During The Covid 19 Pandemic
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Author : Kayla Ann Harvey
language : en
Publisher:
Release Date : 2021
Anxiety Depression And Stress In Parents Of Children With Congenital Heart Defects During The Covid 19 Pandemic written by Kayla Ann Harvey and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021 with categories.
Little is known about the mental health burden or the risk and protective factors that have impacted mental health outcomes in parents of children with congenital heart defects (CHD) during the COVID-19 pandemic. Exposure to COVID-19 related stressors plus CHD care related stressors may have had an additive effect on this parent population's mental health. The purpose of this study was to examine risk and protective factors associated with anxiety symptoms, depression symptoms, and perceived stress in parents of young children with CHD during the COVID-19 pandemic. The study used a cross-sectional, nonexperimental survey design that focused on parents of children aged newborn to five years with CHD one year into the COVID-19 pandemic. The findings reveal CHD parents experienced significant anxiety, depression, and stress during the COVID-19 pandemic at levels higher than the US general population norms. Regression analyses were conducted to examine associations between COVID-19 stressors, CHD care related factors, parental resilience, external support, and mental health outcomes. Increased levels of anxiety symptoms, depression symptoms, and perceived stress were associated with 1) Exposure to a greater number of COVID-19 related stressors, 2) Distress from family visitation restrictions during healthcare encounters, 3) Worry related to the perceived risk of their CHD child's exposure to COVID-19 during healthcare encounters, and 4) Worry about their CHD child's risk of death or serious illness from COVID-19. Parental resilience, emotional support, and informational support were shown to be key protective factors for anxiety, depression, and stress. However, resilience was remarkably low in CHD parents. Further research is needed to expand our understanding of resilience in CHD parents and to explore strategies that may support resilience in this population.
Neuro Development And Psychological Issues In Congenital Heart Defects
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Author : Antonio F. Corno
language : en
Publisher: Frontiers Media SA
Release Date : 2018-02-07
Neuro Development And Psychological Issues In Congenital Heart Defects written by Antonio F. Corno and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-02-07 with categories.
Cardiovascular Disability
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2010-12-04
Cardiovascular Disability written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010-12-04 with Medical categories.
The Social Security Administration (SSA) uses a screening tool called the Listing of Impairments to identify claimants who are so severely impaired that they cannot work at all and thus immediately qualify for benefits. In this report, the IOM makes several recommendations for improving SSA's capacity to determine disability benefits more quickly and efficiently using the Listings.
Parenting Matters
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-11-21
Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-11-21 with Social Science categories.
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Paediatric Cardiology
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Author : Robert H. Anderson
language : en
Publisher: Elsevier Health Sciences
Release Date : 2009-09-25
Paediatric Cardiology written by Robert H. Anderson and has been published by Elsevier Health Sciences this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-09-25 with Medical categories.
As patients live longer and need to be treated over the long term and the management of pediatric cardiology problems and congenital heart disease moves more into the mainstream, turn to Pediatric Cardiology for current clinical guidance. Trust Dr. Robert Anderson, godfather of cardiac morphology, to bring you coverage of potential cardiovascular anomalies, all potential diseases related to anomalies or developmental problems, and methods for management and treatment. New contributors from all over the world-including 70% new to this edition-present the latest challenges in the field and emphasize the adolescent and post-operative outcomes for management. Now, in full color, this leading reference offers you everything you need to treat and manage pediatric heart conditions. A comprehensive and exhaustive reference of fundamental and clinical aspects of heart disease in infancy and childhood. The contributors are well-known experts in the field and the editors are a world class group who have published extensively in the field. Emphasizes the treatment of corrected congenital heart disease for coverage of the clinical management of cardiac problems in the adolescent and young adult. Integrates development in chapters on lesions to make physiology clinically relevant for the specific cardiac lesions. Provides the latest clinical perspectives on neonate cardiac development management issues so you can offer the best long-term care. Presents the contributions of 70% new authors, from all over the world, in a consistent format to make referencing global perspectives quick and easy. Captures the nuances of the anatomical structure of lesions through full-color illustrations depicting morphologic, congenital, and surgically corrected examples for exceptional visual guidance.
Adult Congenital Heart Disease
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Author : Sara Thorne
language : en
Publisher: Oxford University Press
Release Date : 2017
Adult Congenital Heart Disease written by Sara Thorne and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with Medical categories.
A practical approach to the investigation and treatment of adult congenital heart disease (ACHD), this fully updated Oxford Specialist Handbook is a concise and accessible overview of a complex condition. Packed with straightforward advice, management strategies and key clinical points, it equips clinicians with a sound understanding of the principles and physiology of ACHD. An ideal reference tool for cardiology trainees, general cardiologists and acute medicine physicians, this second edition of Adult Congenital Heart Disease has been fully reviewed to include new guidelines and increased illustations to aid understanding. Brand new chapters on epidemiology, heart failure, device therapy and transition and transfer of care ensure that Adult Congenital Heart Disease remains the definitive guide to supporting clinicians throughout all aspects of the patient's care.
Congenital Heart Disease And Neurodevelopment
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Author : Christopher McCusker
language : en
Publisher: Academic Press
Release Date : 2016-05-03
Congenital Heart Disease And Neurodevelopment written by Christopher McCusker and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-05-03 with Science categories.
Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes brings together the work of leading researchers from the U.K., Europe, and the U.S. to provide a comprehensive examination of the causes, risks, and neurodevelopmental and psychological outcomes in children with congenital heart disease. The book includes longitudinal studies which have tracked outcomes from birth through late childhood and explores the emergent phenotype and etiologies, risk, and protective factors that strengthen proposed models. Medical and surgical advances have meant that greater numbers of children with even the most severe congenital heart disease (CHD) now survive well into adulthood. Studies over the past 20 years have suggested certain neurodevelopmental and psychological features are common, with clinical interventions being internationally articulated. The U.K. Belfast Center has developed and evaluated unique early intervention programs to circumvent the common problems discerned and promote optimal adjustment and outcomes. The first edition of Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes describes these programs in detail and outlines promising results obtained by researchers worldwide. Such interventions, together with the U.S. consensus statement (Circulation, 2012) on neurodevelopmental screening, hold great promise for clinical interventions. Features input from leading research experts in the field Describes cutting-edge research on longitudinal studies that link neurodevelopmental phenotypes with cutting-edge neuroimaging studies Discusses the first series of early intervention studies developed in Belfast targeted at key developmental transitions—birth and diagnosis, early childhood, and adolescence Includes clinical implications and action points in each section Features generalizable potential of interventions across other pediatric populations
Clinical Psychology And Congenital Heart Disease
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Author : Edward Callus
language : en
Publisher: Springer
Release Date : 2014-11-24
Clinical Psychology And Congenital Heart Disease written by Edward Callus and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-11-24 with Psychology categories.
This book describes those psychological features specifically characteristic of patients with congenital heart disease, from birth to adulthood. The combination of case studies, descriptions of life experiences and psychological recommendations and collaboration with non-profit organizations in the field ensure that it will serve as an excellent day-to-day learning tool. Technological advances in cardiology and cardiac surgery have resulted in an increase in the number of adults with congenital heart disease, creating a new emergency. From when they are born, these patients and their relatives require extensive support for many reasons, including the uncertainty and restrictions in their lives, frequent hospitalizations and difficulties in the work and social spheres. Clinical Psychology and Congenital Heart Disease explains how psychology can contribute to healthcare treatment of patients with congenital heart disease and their families. Emphasis is placed on the need for a multidisciplinary approach to ensure the well-being of the patient and the clinician is provided with insights and instruments that will assist greatly in the provision of appropriate support.
A Comprehensive Approach To Congenital Heart Diseases
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Author : IB Vijayalakshmi
language : en
Publisher: JP Medical Ltd
Release Date : 2013-02-28
A Comprehensive Approach To Congenital Heart Diseases written by IB Vijayalakshmi and has been published by JP Medical Ltd this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-02-28 with Medical categories.
Congenital heart disease (CHD) is a problem with the structure and function of the heart that is present at birth and is the most common type of birth defect (PubMed Health). This comprehensive guide offers a step by step approach to the diagnosis and management of different types of CHD, at different stages of life. Beginning with an introduction to the development of the foetal cardiovascular system and genetic, the following section discusses the basics of heart examination, radiography and terminology. Each section progresses through different conditions and examines the transition of care into adulthood and long term issues facing adults with CHD. Key points Comprehensive, step by step guide to congenital heart disease (CHD) Covers diagnosis and management of CHD disorders at all stages of life Internationally recognised author and editor team Includes more than 1000 full colour images and illustrations