Hospice Care For Children
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Hospice Care For Children
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Author : Ann Armstrong-Dailey
language : en
Publisher: Oxford University Press, USA
Release Date : 2001
Hospice Care For Children written by Ann Armstrong-Dailey and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001 with Medical categories.
Children with life-threatening and terminal illnesses--and their families-- require a unique kind of care to meet a wide variety of needs. This book, the first edition of which won the 1993 Pediatric Nursing Book of the Year Award, provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment and is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.
When Children Die
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2003-10-30
When Children Die written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-10-30 with Medical categories.
This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.
Perspectives On Palliative Care For Children And Young People
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Author : Rita Pfund
language : en
Publisher: CRC Press
Release Date : 2017-11-22
Perspectives On Palliative Care For Children And Young People written by Rita Pfund and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-11-22 with Medical categories.
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Oxford Textbook Of Palliative Care For Children
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Author : Richard Hain
language : en
Publisher: Oxford University Press
Release Date : 2021-07-27
Oxford Textbook Of Palliative Care For Children written by Richard Hain and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-07-27 with Medical categories.
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Palliative Care For Infants Children And Adolescents
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Author : Brian S. Carter
language : en
Publisher: JHU Press
Release Date : 2011-10-15
Palliative Care For Infants Children And Adolescents written by Brian S. Carter and has been published by JHU Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-10-15 with Medical categories.
There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
When Children Die
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2003-02-09
When Children Die written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-02-09 with Medical categories.
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
A House Called Helen
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Author : Jacqueline Worswick
language : en
Publisher:
Release Date : 2000
A House Called Helen written by Jacqueline Worswick and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000 with Medical categories.
'The book will be essential reading for individuals training in the field of palliative care and is important for any professional or lay person involved in the care of seriously ill children.' -Professor Clifford C. Bailey, Consultant Paediatric Oncologist, United Leeds Teaching Hospitals Trust and Director of Research and Development, NHS Executive, Northern and YorkshireWhen the first edition of A House Called Helen was published in 1993, there were only a handful of children's hospices in existence, all of them within the UK. There are now more than twenty in operation, and a significant number at the project stage, in the UK alone, and children's hospices have been set up in Canada, the USA, Australia and continental Europe. The concept of a children's hospice, seen as innovative when the first, Helen House, opened in Oxford in 1982, is now well established and the growth in the number of children's hospices has seen corresponding important developments in the field of paediatric palliative care. This book provides an authoritative account of how Helen House came into being. It records the events surrounding the foundation of the hospice and how it stemmed directly from what was learnt from the events following the sudden illness of the author's eldest daughter Helen, after whom it was named. The book sets out the philosophy which underpinned the hospice, which was taken up as the guiding philosophy of children's hospice care. It describes the hospice's operational framework and details the service provided by Helen House, which is widely cited as a model for children's hospice care worldwide. It provides valuable insight into the needs of the families who use hospice services and touches both on the difficulties they face caring, often over a long period of time, for a child with a life-limiting illness, and on the role and attitudes of professionals and indeed of the public at large. In this new edition an additional chapter reviews the growth of children's hospices and reflects on the challenges they face in their maturity. It considers the development of children's hospice care in relation to wider service provision and examines current and future issues surrounding the care of children with life-limiting illness.
Pediatric Palliative Care
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Author : Stefan J. Friedrichsdorf
language : en
Publisher: MDPI
Release Date : 2019-02-08
Pediatric Palliative Care written by Stefan J. Friedrichsdorf and has been published by MDPI this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-02-08 with Children categories.
This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Palliative Care For Children
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Author : National Council for Hospice and Specialist Palliative Care Services, London (GB); Association for Children with Life Threatening or Terminal Conditions and their Families (ACT) (GB).
language : en
Publisher:
Release Date : 2001
Palliative Care For Children written by National Council for Hospice and Specialist Palliative Care Services, London (GB); Association for Children with Life Threatening or Terminal Conditions and their Families (ACT) (GB). and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001 with Human services categories.
Pediatric Palliative Care
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Author : Lindsay B. Ragsdale
language : en
Publisher: Oxford University Press
Release Date : 2020-02-03
Pediatric Palliative Care written by Lindsay B. Ragsdale and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-02-03 with Medical categories.
The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"