Integration Of Palliative Care In Chronic Conditions
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Integration Of Palliative Care In Chronic Conditions
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Author : Kim K. Kuebler
language : en
Publisher:
Release Date : 2017
Integration Of Palliative Care In Chronic Conditions written by Kim K. Kuebler and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with Chronic diseases categories.
With a steadily growing number of patients in the United States experiencing multiple chronic illnesses, palliative care should be integrated into the management of chronic conditions promoting a comprehensive approach to effective symptom management promoting physical function and improved quality of life. This evolutionary change was prompted by the Patient Protection and Affordable Care Act in 2010, which expanded the discussion on patient access and requirements in the palliative care setting. Integration of Palliative Care in Chronic Conditions: An Interdisciplinary Approach will equip multidisciplinary teams with the resources necessary to provide patients and their families with the best possible care and management of multiple chronic conditions. Written in an easily accessible outline format, this comprehensive text explores pharmacologic interventions; advance care planning; and the physiology, symptoms, diagnostics, and interventions of various chronic conditions and malignancies. In addition, case studies highlight approaches to the care of individual patients with varying backgrounds and needs. Emphasizing the importance of self-care, spiritual and religious support, compassion, goal setting, education, preparation, and communication in all areas of the palliative care realm, this book is an essential resource in guiding healthcare professionals in their mission of providing quality care to patients and their families
Palliative Care For Chronic Cancer Patients In The Community
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Author : Michael Silbermann
language : en
Publisher: Springer Nature
Release Date : 2020-10-29
Palliative Care For Chronic Cancer Patients In The Community written by Michael Silbermann and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-10-29 with Medical categories.
The new global cancer data suggests that the global burden has risen to 18.1 million new cases per year and 9.6 million cancer deaths per year. A number of factors appear to be driving this increase, in particular, a growing and aging global population and an increase of exposure to cancer risk factors linked to social and economic development. For rapidly-growing economies, the data suggests a shift from poverty- or infection-related cancers to those associated with lifestyles more typical in industrialized countries. There is still large geographical diversity in cancer occurrence and variations in the magnitude and profile of the disease between and within world regions. There are specific types of cancer that dominate globally: lung, female breast and colorectal cancer, and the regional variations in common cancer types signal the extent to which societal, economic and lifestyle changes interplay to deferentially impact on the profile of this most complex group of diseases. Unfortunately, despite advances in cancer care, a significant proportion of patients at home, experience sub-optimal outcomes. Barriers to successful treatment outcomes include, but are not limited to: access to oncologists in the primary health centers, non-adherence, lack of experienced oncology and palliative care nurses in the community, inadequate monitoring and the lack of training of family and pediatric physicians. Telemedicine approaches, including telephone triage/education, telemonitoring, teleconsultation and status tracking through mobile applications, have shown promise in further improving outcomes, in particular for chronic cancer patients following their hospitalization. Lessons can be learned from existing hospices in North America, the United Kingdom, Australia, Centers of Excellence in African (Uganda) and modern community services in India (Kerala). An important goal of this book is to describe and encourage professionals to develop new community programs in palliative care, which include training and empowering physicians and nurses in the community on the principles of palliative care. The Middle East Cancer Consortium (MECC) together with the American Society of Clinical Oncology (ASCO) and the American Oncology Nursing Society (ONS) have conducted multiple courses ranging from basic palliative care to more specialized training in palliative care for multiple nationalities in Europe, Asia and Africa. Our experience clearly indicates that, to promote such activities, one needs strong leadership and confirmed political will to support the endeavor. The new book will emphasize the importance of having a core of multiple stakeholders including community leaders, government, NGOs and media to be actively involved in advocating for the cause and generating public awareness. This text will provide the reader with a comprehensive understanding of the outside-of-the-hospital treatment of cancer patients by medical, paramedical and volunteer personnel. In doing so, this text will encourage the creation of new palliative care services improving upon the existing ones and stimulate further research in this field. Part 1 of the text will begin with an overview of the current state of affairs of services provided to cancer patients while being cared for by primary health centers. It will also review the current literature regarding medical and psychological-based therapy options in the community for cancer patients at different stages of their disease. Part 2 will address the unique role of the community nurse, within the framework of the multidisciplinary team treating the patient, in the attempt to provide optimal evaluation and care in very challenging situations (such as with terminal patients). Part 3 will provide insightful models of this new discipline and serve as a valuable resource for physicians, nurses, social workers and others involved in the care of cancer patients. The book will take a multidisciplinary approach, integrating clinical and environmental data for practical management to enhance the efficacy of treatment while relieving suffering. Part 4 will also discuss the application of modern technological approaches to track symptoms, quality of life, diet, mobility, duration of sleep and medication use (including pain killers) in chronic cancer patients in the community. Part 5 of the book will also be devoted to modes of developing a collaborative program between governmental and non-governmental organization sectors. This includes volunteer workers in close collaboration with medical professionals for providing emotional and spiritual support, nursing care, nutritional support and empowering family caregivers. Such a model makes palliative care in the community a “people’s movement”, thus transferring part of the responsibility and ownership to the community.
Palliative Practices
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Author : Kim K. Kuebler
language : en
Publisher: Elsevier Health Sciences
Release Date : 2005-02-23
Palliative Practices written by Kim K. Kuebler and has been published by Elsevier Health Sciences this book supported file pdf, txt, epub, kindle and other format this book has been release on 2005-02-23 with Medical categories.
The first book of its kind, this must-have resource examines the integration of palliative interventions from a disease-specific approach, providing practical guidance on caring for patients who follow a progressive, chronic disease trajectory prior to death. This uniquely practical book addresses all aspects of palliative care, going beyond theoretical information to advise practitioners on the most effective management of common symptoms and providing physical, psychological, and spiritual comfort to patients and families. The multidisciplinary focus of care is reflected by collaborative contributors and diverse authorship of an oncology/palliative care nurse practitioner, a physician, and a social worker. Expert authors in the field of palliative care - an oncology/palliative care nurse practitioner, an MD, and a social worker - represent the collaborative nature of caring for chronically ill patients. The most common illnesses that cause death in the United States are addressed in separate chapters on specific disease states: Cardiovascular, Pulmonary, Nephrology, Oncology, and Neurology. Case studies at the conclusion of each chapter illustrate important patient scenarios in the context of clinical practice. Comprehensive drug information for symptom management and comfort measures is provided in an appendix, as well as palliative care assessment tools and helpful website resources. An entire chapter is devoted to cancer pain. Objectives at the beginning of each chapter introduce the reader to concepts that will be addressed in that chapter. Each chapter ends with multiple-choice objective questions to test the reader's comprehension, with answers and rationales provided in the back of book. Prognostic tables demonstrate precisely how and when to integrate palliative interventions into the course of an advanced illness, identifying prognostic indicators where appropriate. Other important topics are covered with chapters on sleep, ethics, cultural and spiritual issues, and the dying process.
Models And Strategies To Integrate Palliative Care Principles Into Care For People With Serious Illness
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2018-02-28
Models And Strategies To Integrate Palliative Care Principles Into Care For People With Serious Illness written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-02-28 with Medical categories.
Palliative care is the interdisciplinary specialty focused on improving quality of life for people with serious illness and their families. This interdisciplinary care is provided by doctors, nurses, social workers, chaplains and others who work together with the patient's other doctors to provide an extra layer of support. Such care is appropriate for people at any age and at any stage in a serious illness, and can be provided together with curative treatment to address clinical, emotional, psychosocial and spiritual concerns of the patient and their family. To better understand how the principles of palliative care can be integrated into the overall provision of care and services to those facing serious illness, the Roundtable on Quality Care for People with Serious Illness held a public workshop in April 2017. This publication summarizes the presentations and discussions from the workshop.
Integration Of Palliative Care In Chronic Conditions
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Author : Kim K. Kuebler
language : en
Publisher:
Release Date : 2017
Integration Of Palliative Care In Chronic Conditions written by Kim K. Kuebler and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with Chronic diseases categories.
With a steadily growing number of patients in the United States experiencing multiple chronic illnesses, palliative care should be integrated into the management of chronic conditions promoting a comprehensive approach to effective symptom management promoting physical function and improved quality of life. This evolutionary change was prompted by the Patient Protection and Affordable Care Act in 2010, which expanded the discussion on patient access and requirements in the palliative care setting. Integration of Palliative Care in Chronic Conditions: An Interdisciplinary Approach will equip multidisciplinary teams with the resources necessary to provide patients and their families with the best possible care and management of multiple chronic conditions. Written in an easily accessible outline format, this comprehensive text explores pharmacologic interventions; advance care planning; and the physiology, symptoms, diagnostics, and interventions of various chronic conditions and malignancies. In addition, case studies highlight approaches to the care of individual patients with varying backgrounds and needs. Emphasizing the importance of self care, spiritual and religious support, compassion, goal setting, education, preparation, and communication in all areas of the palliative care realm, this book is an essential resource in guiding healthcare professionals in their mission of providing quality care to patients and their families.
Choices In Palliative Care
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Author : Arthur Blank
language : en
Publisher: Springer Science & Business Media
Release Date : 2007-07-21
Choices In Palliative Care written by Arthur Blank and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-07-21 with Medical categories.
Choices in Palliative Care brings together leading experts to spotlight core issues in the field and identify ways PC can fill gaps in current care systems. This far-sighted volume redefines palliative care as interdisciplinary and integrative, bridging acute and long-term care to respond to clients’ evolving needs. Those teaching health service delivery courses will find this material especially useful.
Ebook Caring For People With Chronic Conditions A Health System Perspective
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Author : Ellen Nolte
language : en
Publisher: McGraw-Hill Education (UK)
Release Date : 2008-09-16
Ebook Caring For People With Chronic Conditions A Health System Perspective written by Ellen Nolte and has been published by McGraw-Hill Education (UK) this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-09-16 with Medical categories.
"Overall, the book walks a delicate balance between evidence and advocacy regarding the care of people with chronic conditions. Nolte and McKee conclude the volume with the following: 'A first step is to recognize that something must be done. A second, which we hope will be facilitated by the evidence provided in this book, is to realize that something actually can be done, and that they can do it (p. 240)'. The overarching desire to match the need for evidence with the reality that advocates (including policy-makers) need a reasoned voice makes the book well suited to health policy deliberations." International Journal of Integrated Care The complex nature of many chronic diseases, which affect people many different ways, requires a multifaceted response that will meet the needs of the individual patient. Yet while everyone agrees that the traditional relationship between an individual patient and a single doctor is inappropriate, there is much less agreement about what should replace it. Many countries are now experimenting with new approaches to delivering care in ways that do meet the complex needs of people with chronic disorders, redesigning delivery systems to coordinate activities across the continuum of care. Yet while integration and coordination have an intuitive appeal, policy makers have had little to help them decide how to move forward. The book systematically examines some of the key issues involved in the care of those with chronic diseases. It synthesises the evidence on what we know works (or does not) in different circumstances. From an international perspective, it addresses the prerequisites for effective policies and management of chronic disease. Taking a whole systems approach, the book: Describes the burden of chronic disease in Europe Explores the economic case for investing in chronic disease management Examines key challenges posed by the growing complexity in healthcare including prevention, the role of self-management, the healthcare workforce, and decision-support Examines systems for financing chronic care Analyses the prerequisites for effective policies for chronic care Caring for People with Chronic Conditions is key reading for health policy makers and health care professionals, as well as postgraduate students studying health policy, health services research, health economics, public policy and management. Contributors: Reinhard Busse, Elisabeth Chan, Anna Dixon, Carl-Ardy Dubois, Isabelle Durand-Zaleski, Daragh K Fahey, Nicholas Glasgow, Monique Hejmans, Izzat Jiwani, Martyn Jones, Cécile Knai, Nicholas Mays, Martin McKee, Ellen Nolte, Thomas E Novotny, Joceline Pomerleau, Mieke Rijken, Dhigna Rubiano, Debbie Singh, Marc Suhrcke.
Integrating Palliative Care In Ambulatory Care Of Noncancer Serious Chronic Illness
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Author : Sydney Morss Dy
language : en
Publisher:
Release Date : 2021
Integrating Palliative Care In Ambulatory Care Of Noncancer Serious Chronic Illness written by Sydney Morss Dy and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021 with categories.
OBJECTIVES: To evaluate availability, effectiveness, and implementation of interventions for integrating palliative care into ambulatory care for U.S.-based adults with serious life-threatening chronic illness or conditions other than cancer and their caregivers We evaluated interventions addressing identification of patients, patient and caregiver education, shared decision-making tools, clinician education, and models of care. DATA SOURCES: We searched key U.S. national websites (March 2020) and PubMed(r), CINAHL(r), and the Cochrane Central Register of Controlled Trials (through May 2020). We also engaged Key Informants. REVIEW METHODS: We completed a mixed-methods review; we sought, synthesized, and integrated Web resources; quantitative, qualitative and mixed-methods studies; and input from patient/caregiver and clinician/stakeholder Key Informants. Two reviewers screened websites and search results, abstracted data, assessed risk of bias or study quality, and graded strength of evidence (SOE) for key outcomes: health-related quality of life, patient overall symptom burden, patient depressive symptom scores, patient and caregiver satisfaction, and advance directive documentation. We performed meta-analyses when appropriate. RESULTS: We included 46 Web resources, 20 quantitative effectiveness studies, and 16 qualitative implementation studies across primary care and specialty populations. Various prediction models, tools, and triggers to identify patients are available, but none were evaluated for effectiveness or implementation. Numerous patient and caregiver education tools are available, but none were evaluated for effectiveness or implementation. All of the shared decision-making tools addressed advance care planning; these tools may increase patient satisfaction and advance directive documentation compared with usual care (SOE: low). Patients and caregivers prefer advance care planning discussions grounded in patient and caregiver experiences with individualized timing. Although numerous education and training resources for nonpalliative care clinicians are available, we were unable to draw conclusions about implementation, and none have been evaluated for effectiveness. The models evaluated for integrating palliative care were not more effective than usual care for improving health-related quality of life or patient depressive symptom scores (SOE: moderate) and may have little to no effect on increasing patient satisfaction or decreasing overall symptom burden (SOE: low), but models for integrating palliative care were effective for increasing advance directive documentation (SOE: moderate). Multimodal interventions may have little to no effect on increasing advance directive documentation (SOE: low) and other graded outcomes were not assessed. For utilization, models for integrating palliative care were not found to be more effective than usual care for decreasing hospitalizations; we were unable to draw conclusions about most other aspects of utilization or cost and resource use. We were unable to draw conclusions about caregiver satisfaction or specific characteristics of models for integrating palliative care. Patient preferences for appropriate timing of palliative care varied; costs, additional visits, and travel were seen as barriers to implementation. CONCLUSIONS: For integrating palliative care into ambulatory care for serious illness and conditions other than cancer, advance care planning shared decision-making tools and palliative care models were the most widely evaluated interventions and may be effective for improving only a few outcomes. More research is needed, particularly on identification of patients for these interventions; education for patients, caregivers, and clinicians; shared decision-making tools beyond advance care planning and advance directive completion; and specific components, characteristics, and implementation factors in models for integrating palliative care into ambulatory care.
Integrated Palliative Care Of Respiratory Disease
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Author : Stephen J. Bourke
language : en
Publisher: Springer
Release Date : 2019-07-22
Integrated Palliative Care Of Respiratory Disease written by Stephen J. Bourke and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-07-22 with Medical categories.
The second edition of this book brings together the knowledge, skills and attitudes of specialists in both respiratory and palliative medicine to focus on the palliative care of patients with respiratory diseases. It deals not only with end of life care but also with symptom control and supportive care to improve the quality of life of those living their lives with advanced progressive lung disease. Integrated Palliative Care of Respiratory Disease builds on the previous edition introducing new models of care for patients with advanced lung disease. These models emphasize the introduction of palliative and supportive care at an earlier stage in the disease, and running disease-modifying and palliative treatments in parallel. There is a new chapter on the role of palliative care in lung transplantation’. The book highlights significant new research into key respiratory diseases and some on-going controversies about issues such as best models of care for different diseases and advance care planning. This book is an invaluable reference for doctors, trainees and clinical nurse specialists in respiratory and palliative medicine, and is of interest to anyone who wishes to gain a better understanding of the complex nature of palliative care in respiratory disease.
Integrating Health Care And Social Services For People With Serious Illness
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2019-03-29
Integrating Health Care And Social Services For People With Serious Illness written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-03-29 with Medical categories.
A growing body of research indicates that social determinants of health have a significant impact on health care utilization and outcomes. Researchers and policymakers in the United States have spent decades exploring and discussing approaches to integrating health care and social services. While no nation has a truly integrated system, many other industrialized nations invest more heavily in social services than the United States, and are more effective in integrating these services with health care. Integrating health care and social services, such as accessible housing, meals and nutrition services, transportation, and caregiver training, is particularly important for those facing serious illness who typically encounter multiple chronic conditions, pain and other symptoms, functional dependency, frailty, and significant family caregiver needs. In an effort to better understand and facilitate discussions about the challenges and opportunities related to integrating health care and social services for people with serious illness, the National Academies of Sciences, Engineering, and Medicine held a full-day public workshop on July 19, 2018 in Washington, DC. The workshop featured a broad range of experts and stakeholders including researchers, policy analysts, patient and family caregiving advocates, and representatives of federal agencies. This publication summarizes the presentations and discussions from the workshop.