Learning To Live With Huntington S Disease
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Learning To Live With Huntington S Disease
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Author : Sandy Sulaiman
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2007-04-15
Learning To Live With Huntington S Disease written by Sandy Sulaiman and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-04-15 with Health & Fitness categories.
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.
Living With Huntington S Disease
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Author : Dennis H. Phillips
language : en
Publisher:
Release Date : 1982-01-01
Living With Huntington S Disease written by Dennis H. Phillips and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1982-01-01 with Huntington's disease categories.
Can You Help Me
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Author : Thomas D. Bird
language : en
Publisher: Oxford University Press, USA
Release Date : 2019
Can You Help Me written by Thomas D. Bird and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019 with Medical categories.
Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it. With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder: � The man who cannot stay out of prison because he is addicted to being a burglar. � Another man shoots and kills his roommate while watching television and cannot explain why he did it. � The woman with Huntington Disease copes with her depression by using Texas line dancing. � A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support. � And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation. These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.
Living With Huntington S Disease Challenges Perspectives And Quality Of Life
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Author : Sherman Howell
language : en
Publisher:
Release Date : 2020-03-16
Living With Huntington S Disease Challenges Perspectives And Quality Of Life written by Sherman Howell and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-03-16 with Huntington's disease categories.
The book first discusses the variety of sleep disorders in Huntington's Disease, as well as how sleep quality can be associated with other important clinical symptoms. Although Huntington's disease is categorized as a movement disorder, the wide range of non-motor symptoms including cognitive impairment and behavioral abnormalities are considered by patients and their caregivers to be just as disabling as the motor symptoms. As such, the authors explore the importance of symptomatic treatment of Huntington's disease-related symptoms. Following this, the emotional and communicational issues in Huntington's disease and their interrelations are examined, including depressive symptomatology, anxiety, helplessness or anger, as well as verbal and non-verbal communication and assistive technology. Lastly, the authors describe current trends and efforts in gene therapy techniques and the improvements in health conditions of Huntington's disease patients and their families.
Living With Huntington S Disease
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Author : Dennis H. Phillips
language : en
Publisher:
Release Date :
Living With Huntington S Disease written by Dennis H. Phillips and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on with categories.
Inside The O Briens
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Author : Lisa Genova
language : en
Publisher: Simon and Schuster
Release Date : 2015-04-07
Inside The O Briens written by Lisa Genova and has been published by Simon and Schuster this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-07 with Fiction categories.
A New York Times bestseller ▪ A Library Journal Best Books of 2015 Pick ▪ A St. Louis Post-Dispatch Best Books of 2015 Pick ▪A GoodReads Top Ten Fiction Book of 2015 ▪ A People Magazine Great Read From New York Times bestselling author and neuroscientist Lisa Genova comes a “heartbreaking…very human novel” (Matthew Thomas, author of We Are Not Ourselves) that does for Huntington’s disease what her debut novel Still Alice did for Alzheimer’s. Joe O’Brien is a forty-three-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their twenties, and respected officer, Joe begins experiencing bouts of disorganized thinking, uncharacteristic temper outbursts, and strange, involuntary movements. He initially attributes these episodes to the stress of his job, but as these symptoms worsen, he agrees to see a neurologist and is handed a diagnosis that will change his and his family’s lives forever: Huntington’s disease. Huntington’s is a lethal neurodegenerative disease with no treatment and no cure, and each of Joe’s four children has a 50 percent chance of inheriting their father’s disease. While watching her potential future in her father’s escalating symptoms, twenty-one-year-old daughter Katie struggles with the questions this test imposes on her young adult life. As Joe’s symptoms worsen and he’s eventually stripped of his badge and more, Joe struggles to maintain hope and a sense of purpose, while Katie and her siblings must find the courage to either live a life “at risk” or learn their fate. Praised for writing that “explores the resilience of the human spirit” (San Francisco Chronicle), Lisa Genova has once again delivered a novel as powerful and unforgettable as the human insights at its core.
Suddenly Dark
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Author : George William Knauer
language : en
Publisher: Archway Publishing
Release Date : 2016-04-07
Suddenly Dark written by George William Knauer and has been published by Archway Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-04-07 with Biography & Autobiography categories.
George William Knauer never had an easy life: He grew up as one of seven children and was placed in foster care after his mother was institutionalized with Huntingtons disease. He ended up at Wiltwyck School for Boys, a reform school supported by Eleanor Roosevelt. When he left school after the eighth grade, he threw himself headfirst into the plumbing and heating field. He established his own plumbing and heating business, marrying and divorcing five times along the way. When he was in his fifties, Knauer went completely blind, but he continued to take care of two of his brothersand he kept working as a plumber under the name Blind Mice Plumbing and Heating. But not everything went smoothly: He survived numerous near-death experienceseven falling out of a third-floor window. After each ordeal, he successfully reinvented himself and continued living life. In telling his story, Knauer shares what its really like to deal with Huntingtons disease. James Pollard, a world-renowned authority on the disease, has lent his expertise about the disease throughout the book.
Huntington S Disease
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Author : Oliver Quarrell
language : en
Publisher: Oxford University Press
Release Date : 2008-02-28
Huntington S Disease written by Oliver Quarrell and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-02-28 with Family & Relationships categories.
Huntington's disease affects 1 person in 10,000 but this figure is an underestimate because the immediate carer, spouse/partner and the close relatives at risk of developing this condition in the future are also affected. The new edition has been revised to include important new developments that have occurred in the field in recent years.
To Love And Help
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Author : Denise Waide
language : en
Publisher: Author House
Release Date : 2014
To Love And Help written by Denise Waide and has been published by Author House this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Biography & Autobiography categories.
Denise Waide is a professional lady who works hard day and by night, but under all her smiles and bubbly personality, she hides a dark secret. Her health remains under a strict balance on a daily basis. Her secret has taken its toll on her life and her family and the special bond between her and her identical twin sister. Denise Waide has run far away to greener pastures to look for piece and tranquility. Huntington's disease is a neurological degenerative condition that affects the motor neuron and the brain. This book is based on a true story.
Juvenile Huntington S Disease
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Author : Oliver Quarrell
language : en
Publisher: Oxford University Press, USA
Release Date : 2009-01-08
Juvenile Huntington S Disease written by Oliver Quarrell and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-01-08 with Medical categories.
Huntington's disease (HD) is an inherited progressive neurodegenerative disorder. Although onset of HD usually occurs in adulthood, a small percentage of cases develop symptoms before 20 years of age (juvenile-onset Huntington's Disease or JHD). This book summarises, for the first time, the clinical and scientific knowledge available on JHD.