Making Tough Decisions About End Of Life Care In Dementia
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Making Tough Decisions About End Of Life Care In Dementia
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Author : Anne Kenny
language : en
Publisher: JHU Press
Release Date : 2018-09-03
Making Tough Decisions About End Of Life Care In Dementia written by Anne Kenny and has been published by JHU Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-09-03 with Health & Fitness categories.
Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.
Making Tough Decisions About End Of Life Care In Dementia
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Author : Anne Kenny
language : en
Publisher: JHU Press
Release Date : 2018-09-03
Making Tough Decisions About End Of Life Care In Dementia written by Anne Kenny and has been published by JHU Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-09-03 with Family & Relationships categories.
Practical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health. Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about • making life-altering decisions while preparing for a loved one's inevitable death • medical care, pain, insomnia, medication, and eating • caring for the caregiver • having conversations about difficult topics with other family members and with health care, legal, and financial professionals Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.
Decision Making Near The End Of Life
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Author : James L. Werth Jr.
language : en
Publisher: Routledge
Release Date : 2008-10-20
Decision Making Near The End Of Life written by James L. Werth Jr. and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-10-20 with Psychology categories.
Decision Making near the End of Life provides a comprehensive overview of the recent developments that have impacted decision-making processes within the field of end-of-life care. The most current developments in all aspects of major underlying issues such as public attitudes, the impact of media, bioethics, and legal precedent provide the background information for the text. The authors examine various aspects of end-of-life choices and decision-making, including communication (between and among family, medical personnel, the dying person), advance directives, and the emergence of hospice and palliative care institutions. The book also explores a variety of psychosocial considerations that arise in decision-making, including religion/spirituality, family caregiving, disenfranchised and diverse groups, and the psychological and psychiatric problems that can impact both the dying person and loved ones. Case studies and first-person stories about decision-making, written by professionals in the field, bring a uniquely personal touch to this valuable text.
Ethical Issues In Dementia Care
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Author : Julian C. Hughes
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2006-09-15
Ethical Issues In Dementia Care written by Julian C. Hughes and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-09-15 with Medical categories.
Bradford Dementia Group Good Practice Guides There are always difficult day to day decisions to be faced when caring for a person with dementia - from knowing how to deal with wandering to end of life decisions. Many of these decisions are underpinned by value judgments about right and wrong and reflect a particular view of dementia. This book considers these ethical decisions in the context of relationships, treatment, safety and quality of life, offering practical guidance and advice. It draws on the experiences of family carers as well as on existing research and emphasizes the importance of empathy and the need to acknowledge different perspectives in order to reach the best decision for the person with dementia. In particular the authors discuss the way that decision makers are themselves changed by the decisions they make, and the impact of this on the decision-making process. This book should be read by all those who work caring for people with dementia.
Ethical Decision Making In End Of Life Care And The Person With Dementia
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Author : Irish Hospice Foundation
language : en
Publisher:
Release Date : 2016
Ethical Decision Making In End Of Life Care And The Person With Dementia written by Irish Hospice Foundation and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016 with categories.
Dementia Caregivers
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Author : Mariette L. Klein
language : en
Publisher:
Release Date : 2014
Dementia Caregivers written by Mariette L. Klein and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Caregivers categories.
The purpose of this study is to explore what knowledge dementia caregivers have about advance care planning (ACP), how they learn to execute formal advance directives (ADs) or have engaged in an informal ACP process, and how they understand their roles as decision makers for the patients. Factors that contribute to the completion of an ACP process such as demographic, psychosocial, and situational factors are identified. From the grounded theory data analysis, a theory emerged about how ACP is accomplished and used by caregivers. Findings reveal that caregivers understand ACP as having the power to shape the dying process for dementia patients. It is not just about executing formal written ADs but how caregivers exercise that power. Caregivers0́9 knowledge and beliefs are reflected in their behavior regarding ACP in both how they do the ACP process and how they use ACP. For the caregivers in this study, the process of ACP occurs along a trajectory from: years before dementia to dementia diagnosis to end stage and death. At each of these stages, actions taken by the caregivers and their motivation are identified. Three key features of the ACP process in all three stages are examined: conversations within the family and with trusted others, gaining knowledge of ACP, and keeping ACP documents. How caregivers use ACP is based on how they define their roles as decision makers for their patients by: accepting responsibility for making difficult decisions regarding treatment for the patients, using ACP as an effective tool to shape the dying process for their patients, and doing battle with health care professionals to honor patients0́9 wishes. This definition is shaped by the meaning caregivers give to ACP, how caregivers understand life sustaining measures, and caregivers0́9 knowledge of patients0́9 end-of-life wishes. This new theory, the Dementia Caregiver Advance Care Planning Theory, adds new knowledge as the first model specific to dementia caregivers and adds dimension and depth to the current existing ACP models by detailing an ACP process, demonstrating the impact of conversations on the process, and identifying both the most important influences and the primary relationship in the decision making process.
Textbook Of Palliative Care
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Author : Roderick Duncan MacLeod
language : en
Publisher: Springer
Release Date : 2025-05-29
Textbook Of Palliative Care written by Roderick Duncan MacLeod and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-05-29 with Medical categories.
This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.
Difficult Conversations
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Author : Jo Black
language : en
Publisher:
Release Date : 2011
Difficult Conversations written by Jo Black and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011 with Death categories.
The Caregiver S Guide To Memory Care And Dementia Communities
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Author : Rachael Wonderlin
language : en
Publisher: JHU Press
Release Date : 2022-09-06
The Caregiver S Guide To Memory Care And Dementia Communities written by Rachael Wonderlin and has been published by JHU Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-09-06 with Health & Fitness categories.
This practical guide provides general caregiving tips and helps you decide when and how to transition your loved one to a dementia care community. Caring for someone with dementia is challenging, especially when it comes time to think about other living arrangements. What do you need to know about dementia, including its different stages? What do you do if the person you're caring for seems to have trouble recognizing you? When is it time to move a person living with dementia into a senior living community? And how can you maintain your relationship with your loved one when you are living apart? Gerontologist and dementia care consultant Rachael Wonderlin has written a compassionate book to help friends and family members of those living with dementia answer these tough questions—and more. In practical, down-to-earth language, The Caregiver's Guide to Memory Care and Dementia Communities walks the reader through key points about dementia care, including • common terminology used by health care workers • strategies for taking care of your loved one • advice for when and how to transition to a dementia care community • understanding how dementia care communities are structured and what to keep in mind when evaluating them • how to help your loved one receive the best possible care while they're living apart • recommendations for handling obstacles involving communication and behavioral issues • information on technology, hospice care, programming and activities, and at-home safety A dedicated section called "Putting It into Practice" in each chapter helps you apply the principles to your own experience, while worksheets present you with questions to consider as part of the caregiving and assessment process.
Advance Care Planning In End Of Life Care
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Author : Keri Thomas
language : en
Publisher: Oxford University Press
Release Date : 2018
Advance Care Planning In End Of Life Care written by Keri Thomas and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with MEDICAL categories.
Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.