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The Psychosocial Impact Of Cystic Fibrosis On Young People And Their Families


The Psychosocial Impact Of Cystic Fibrosis On Young People And Their Families
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The Psychosocial Impact Of Cystic Fibrosis On Young People And Their Families


The Psychosocial Impact Of Cystic Fibrosis On Young People And Their Families
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Author : Claire Louise Foster
language : en
Publisher:
Release Date : 1999

The Psychosocial Impact Of Cystic Fibrosis On Young People And Their Families written by Claire Louise Foster and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1999 with categories.




Cystic Fibrosis Third Edition


Cystic Fibrosis Third Edition
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Author : Margaret Hodson
language : en
Publisher: CRC Press
Release Date : 2012-12-11

Cystic Fibrosis Third Edition written by Margaret Hodson and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-12-11 with Medical categories.


This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.



Psychosocial Aspects Of Disability


Psychosocial Aspects Of Disability
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Author : Irmo Marini, PhD, DSc, CRC, CLCP
language : en
Publisher: Springer Publishing Company
Release Date : 2017-10-28

Psychosocial Aspects Of Disability written by Irmo Marini, PhD, DSc, CRC, CLCP and has been published by Springer Publishing Company this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-10-28 with Social Science categories.


Praise for the First Edition: "This is an excellent book, but the best parts are the stories of the disabled, which give readers insights into their struggles and triumphs." Score: 94, 4 Stars–-Doody's Medical Reviews What are the differences between individuals with disabilities who flourish as opposed to those who never really adjust after a trauma? How do those born with a disability differ from individuals who acquire one later in life? Fully updated and revised, this second edition of a unique rehabilitation counseling text reflects growing disparities among "haves and have-nots" as they bear on the psychosocial aspects of disability. New content focuses on returning veterans afflicted with physical and mental health problems, persons with disabilities living in poverty, and the need for increased family and community-based engagement. The book provides updated information about assisted suicide, genetic testing, new legislation, and much more. Using a minority model perspective, the text provides students and practitioners of rehabilitation and mental health counseling with vivid insight into the experience of living with a disability. It features first-person narratives from people living with a variety of disabling conditions, which are integrated with sociological and societal perspectives toward disability, and strategies for counseling such individuals. The text encompasses an historical perspective, psychological and sociological research, cultural variants regarding disability, myths and misconceptions, the attitudes of special interest and occupational groups, the use positive psychology, and adjustments to disability by the individual and family. A wealth of counseling guidelines and useful strategies are geared to individuals with specific disabilities. Designed for a 15-week semester, the book also includes thought-provoking discussion questions and exercises, an Instructor’s Manual and PowerPoints. New to the Second Edition: Reflects the growing disparities between “haves and have-nots” as they impact people with disabilities Includes new content on veterans with physical and mental disabilities Describes the experience of impoverished individuals with disabilities Examines the need for increase family and community-based engagement Discusses strengths and weaknesses of the Americans with Disabilities Act Covers assisted suicide, genetic testing, and recent legislationExpanded coverage of sexual identity Provides an Instructor Manual and PowerPoints Key Features: Provides 16 personal narratives demonstrating the "normalcy" of individuals with different types of disabling conditions Includes stories of people living with blindness, hearing impairments, spinal chord injuries, muscular dystrophy, mental illness, and other disabilities Delivers counseling strategies geared toward specific disabilities, with "do’s" and "don'ts" Discusses ongoing treatment issues and ethical dilemmas for rehabilitation counselors



Cystic Fibrosis


Cystic Fibrosis
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Author : David M. Orenstein
language : en
Publisher: Lippincott Williams & Wilkins
Release Date : 2012-03-28

Cystic Fibrosis written by David M. Orenstein and has been published by Lippincott Williams & Wilkins this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-03-28 with Medical categories.


This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”



Cystic Fibrosis


Cystic Fibrosis
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Author : Alex Horsley
language : en
Publisher: OUP Oxford
Release Date : 2015-03-26

Cystic Fibrosis written by Alex Horsley and has been published by OUP Oxford this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-03-26 with Medical categories.


Cystic Fibrosis (CF) is a multi-system disorder, requiring not just respiratory expertise but also management of nutrition, diabetes, musculoskeletal and psychosocial issues. This pocketbook is a concise companion for all health care professionals who manage patients with CF. The book covers all aspects of care, including both paediatric and adult-specific issues, and summarizes up-to-date literature in a concise and focussed style. There is an emphasis on the practical aspects of management with separate chapters covering the effects of CF in the lung, the microbiology of pulmonary CF, and management of exacerbations. Psychosocial aspects of CF care, end of life care and lung transplantation are also covered, and potential future therapies reviewed. This second edition has been extensively updated to reflect the UK CF Trust Standards of Care, treatment guidelines and Cochrane reviews. There are updates on emerging organisms; an expanded section on physiotherapy; and a new Pharmacopeia that covers all common CF medications.



Fostering Healthy Mental Emotional And Behavioral Development In Children And Youth


Fostering Healthy Mental Emotional And Behavioral Development In Children And Youth
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2020-01-18

Fostering Healthy Mental Emotional And Behavioral Development In Children And Youth written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-01-18 with Social Science categories.


Healthy mental, emotional, and behavioral (MEB) development is a critical foundation for a productive adulthood. Much is known about strategies to support families and communities in strengthening the MEB development of children and youth, by promoting healthy development and also by preventing and mitigating disorder, so that young people reach adulthood ready to thrive and contribute to society. Over the last decade, a growing body of research has significantly strengthened understanding of healthy MEB development and the factors that influence it, as well as how it can be fostered. Yet, the United States has not taken full advantage of this growing knowledge base. Ten years later, the nation still is not effectively mitigating risks for poor MEB health outcomes; these risks remain prevalent, and available data show no significant reductions in their prevalence. Fostering Healthy Mental, Emotional, and Behavioral Development in Children and Youth: A National Agenda examines the gap between current research and achievable national goals for the next ten years. This report identifies the complexities of childhood influences and highlights the need for a tailored approach when implementing new policies and practices. This report provides a framework for a cohesive, multidisciplinary national approach to improving MEB health.



Adolescent Risk And Vulnerability


Adolescent Risk And Vulnerability
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2001-11-08

Adolescent Risk And Vulnerability written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-11-08 with Social Science categories.


Adolescents obviously do not always act in ways that serve their own best interests, even as defined by them. Sometimes their perception of their own risks, even of survival to adulthood, is larger than the reality; in other cases, they underestimate the risks of particular actions or behaviors. It is possible, indeed likely, that some adolescents engage in risky behaviors because of a perception of invulnerabilityâ€"the current conventional wisdom of adults' views of adolescent behavior. Others, however, take risks because they feel vulnerable to a point approaching hopelessness. In either case, these perceptions can prompt adolescents to make poor decisions that can put them at risk and leave them vulnerable to physical or psychological harm that may have a negative impact on their long-term health and viability. A small planning group was formed to develop a workshop on reconceptualizing adolescent risk and vulnerability. With funding from Carnegie Corporation of New York, the Workshop on Adolescent Risk and Vulnerability: Setting Priorities took place on March 13, 2001, in Washington, DC. The workshop's goal was to put into perspective the total burden of vulnerability that adolescents face, taking advantage of the growing societal concern for adolescents, the need to set priorities for meeting adolescents' needs, and the opportunity to apply decision-making perspectives to this critical area. This report summarizes the workshop.



Nursing Care Of Children And Young People With Long Term Conditions


Nursing Care Of Children And Young People With Long Term Conditions
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Author : Mandy Brimble
language : en
Publisher: John Wiley & Sons
Release Date : 2020-12-29

Nursing Care Of Children And Young People With Long Term Conditions written by Mandy Brimble and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-12-29 with Medical categories.


The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.



The Emotional Lives Of Young People With Autism


The Emotional Lives Of Young People With Autism
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Author : Tom Billington
language : en
Publisher: Cambridge Scholars Publishing
Release Date : 2019-06-20

The Emotional Lives Of Young People With Autism written by Tom Billington and has been published by Cambridge Scholars Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-06-20 with Education categories.


This study questions the validity of the American Psychiatric Association’s definition of autism, and offers evidence that even non-verbal children have an emotional life. Drawing on data from a series of intimate interviews with the parents of children with autism from three different cultures, namely the UK, India and Taiwan, the reader is shown how children with autism have emotional competence and do experience both negative and positive emotions. Parents of children with autism have to make many sacrifices and worry about their child’s ability to become independent. Good parent-teacher relationships are essential, and doctors and their teams need to be sensitive and help families find the resources that they need. In some cases, religion plays an important role as does the acceptance by society in general. The book will be of particular interest to families, teachers and professionals dealing with autism.



Psychosocial Aspects Of Diabetes


Psychosocial Aspects Of Diabetes
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Author : Christie Deborah
language : en
Publisher: CRC Press
Release Date : 2021-07-28

Psychosocial Aspects Of Diabetes written by Christie Deborah and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-07-28 with Medical categories.


Part of the Paediatric Psychology series Children and young people are increasingly among those being diagnosed with diabetes. However in the UK only 1 in 6 children succeed in controlling their diabetes successfully, despite support from parents and professionals. This enlightening new book is a comprehensive account of diabetes and the complex medical and psychosocial factors that influence metabolic control in children and young people. It presents a series of evidence-based and accessible educational, psychological and social approaches to increase specialist knowledge, promote positive attitudes, enhance patient care and create appropriate healthcare environments. The book offers an easy-to-comprehend approach to clinical care and includes practical tools for assessment for all healthcare professionals throughout the text. Featuring contributions from a number of international experts in the field, this thorough and wide-ranging guide is informative reading for all students, academics and professionals with an interest in paediatric psychology and health.