Building European Reference Networks In Health Care
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Building European Reference Networks In Health Care
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Author : W. Palm
language : en
Publisher:
Release Date : 2013
Building European Reference Networks In Health Care written by W. Palm and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013 with Health services administration categories.
Under the European Directive on the application of patients' rights in cross-border health care the development of European reference networks was promoted as one of the prime areas for cross-border cooperation among Member States. These networks are meant to improve access to and provision of high-quality health care to all patients who have conditions requiring a concentration of specialized resources or expertise. At the same time they could act as focal points for medical training and research information dissemination and evaluation especially for rare diseases. The idea of pooling resources in order to better address medical conditions that are rare or require very specialized expertise or equipment corresponds with moves towards concentration of specialized health care services often motivated by common health systems challenges like tightening financial constraints workforce shortages and growing attention for quality and safety. This book examines the different ways in which the concept of reference networks has been implemented in European countries and what kind of medical conditions or interventions it covers in various countries. It also looks at the motivations behind the establishment of such networks the regulatory and administrative processes for identifying and designating them as well as the financial arrangements needed for their proper functioning. This study outlines the key policy implications and challenges for developing the concept of reference networks at national and European levels. Ultimately we aim to provide a better understanding of the issues that may be encountered when implementing the Directive.
Building European Reference Networks In Health Care
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Author : Willy Palm
language : en
Publisher: World Health Organization
Release Date : 2013
Building European Reference Networks In Health Care written by Willy Palm and has been published by World Health Organization this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013 with Medical categories.
Under the European Directive on the application of patients' rights in cross-border health care, the development of European reference networks was promoted as one of the prime areas for cross-border cooperation among Member States. These networks are meant to improve access to and provision of high-quality health care to all patients who have conditions requiring a concentration of specialized resources or expertise. At the same time they could act as focal points for medical training and research, information dissemination and evaluation, especially for rare diseases. The idea of pooling resources in order to better address medical conditions that are rare or require very specialized expertise or equipment, corresponds with moves towards concentration of specialized health care services, often motivated by common health systems challenges like tightening financial constraints, workforce shortages and growing attention for quality and safety. This book examines the different ways in which the concept of reference networks has been implemented in European countries, and what kind of medical conditions or interventions it covers in various countries. It also looks at the motivations behind the establishment of such networks, the regulatory and administrative processes for identifying and designating them, as well as the financial arrangements needed for their proper functioning. This study outlines the key policy implications and challenges for developing the concept of reference networks at national and European levels. Ultimately we aim to provide a better understanding of the issues that may be encountered when implementing the Directive.
Building Regional Health Care Networks In Europe
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Author : John Oates
language : en
Publisher: IOS Press
Release Date : 2000
Building Regional Health Care Networks In Europe written by John Oates and has been published by IOS Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000 with Community health services categories.
Title page -- Contents -- INTRODUCTION -- EXECUTIVE SUMMARY -- 1. VISION OF A COMPREHENSIVE RHCN -- 2. RHCNs - MAKING IT HAPPEN -- 3. RHCNs - THE FUTURE (1998 - 2002) -- 4. RHCNs - A PERSPECTIVE BY COUNTRY -- Appendix A: Glossary and Abbreviations -- Appendix B: Healthcare Standardisation Organisations -- Appendix C: References -- Appendix D: Description of six EU IVFP projects building RHCNs
Patient Engagement In Healthcare A Preliminary Set Of Measures To Evaluate Patient Engagement In The European Reference Networks
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Author : Diana Marinello
language : en
Publisher: OAE Publishing Inc.
Release Date : 2021-08-17
Patient Engagement In Healthcare A Preliminary Set Of Measures To Evaluate Patient Engagement In The European Reference Networks written by Diana Marinello and has been published by OAE Publishing Inc. this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-08-17 with Medical categories.
Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed by EURORDIS and patient representatives involved in the ERNs (ePAG advocates) through a participatory and iterative process. The work was organised in three different phases: (1) clarify roles and identify common goals for ePAG advocates’ engagement in the ERNs; (2) define a set of measures; and (3) test the measures in three different ePAGs (European Patient Advocacy Groups). Results: The project allowed developing a common understanding among ePAG advocates of their role and goals in the ERNs and defining a patient-driven evaluation framework to assess their level of engagement in the ERNs’ activities and how effectively they were working to fulfil their role. Conclusion: Engaging with ERN clinicians to refine the framework would probably render it more relevant to the reality and priorities of the specific ERNs and more valuable as a tool to build a strong partnership culture. Such an evaluation framework could be integrated into the ERNs’ quality improvement system to ensure that the networks’ activities are driven by and remain responsive to patients’ needs.
Share Care Cure
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Author :
language : en
Publisher:
Release Date : 2017
Share Care Cure written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with categories.
European Reference Networks (ERN) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare medical diseases or conditions that require highly specialised treatment and a concentration of knowledge and resources. To review a patient{u2019}s diagnosis and treatment, ERN coordinators will convene a 'virtual' advisory board of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools. This way it is the medical knowledge and expertise that travel rather than the patients, who have the comfort of staying in their supportive home environments.
Eu Health Programme Support To Erns
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Author :
language : en
Publisher:
Release Date : 2018
Eu Health Programme Support To Erns written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with categories.
European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They tackle rare or low prevalence complex diseases and conditions that require highly specialised treatment and a concentration of knowledge and resources. The first ERNs were approved in December 2016 and launched in March 2017. The networks comprise more than 900 highly specialised healthcare units located in 313 hospitals in 25 Member States and Norway. The 24 ERNs are working on a range of thematic issues, including bone disorders, childhood cancer and immunodeficiency. Over the next 5 years, ERNs are expected to reinforce their capacities to benefit thousands of EU patients suffering from a rare or complex condition.
Application Of The Ern Model In European Cross Border Healthcare Cooperation Outside The Rare Diseases Area
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Author :
language : en
Publisher:
Release Date : 2018
Application Of The Ern Model In European Cross Border Healthcare Cooperation Outside The Rare Diseases Area written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with categories.
European Reference Networks (ERNs) were created by the Directive on the Application of Patients' Rights in Cross-Border Healthcare. They offer a means by which patients with rare and complex diseases can gain access to highly specialised knowledge from across the European Union. The Expert Panel has been asked to advise on areas that can benefit most from the ERN model, options for the new networks in the longer term and the roles that they might assume, and how best national health systems could integrate networks into their national frameworks.
The Palgrave International Handbook Of Healthcare Policy And Governance
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Author : E. Kuhlmann
language : en
Publisher: Springer
Release Date : 2016-01-18
The Palgrave International Handbook Of Healthcare Policy And Governance written by E. Kuhlmann and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-01-18 with Political Science categories.
Starting with more general issues of healthcare policy and governance in a global perspective and using the lens of national case studies of healthcare reform, this handbook addresses key themes in the debates over changing healthcare policy.
Rare Diseases 2008 2016
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Author :
language : en
Publisher:
Release Date : 2018
Rare Diseases 2008 2016 written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with categories.
Rare diseases are a threat to the health of EU citizens insofar as they are life-threatening, highly complex diseases, affecting millions of European citizens. Healthcare systems are not designed to address the problems raised by the scant knowledge, the rarity of the experts and the multidisciplinary dimension of these diseases. Furthermore, research is hampered by the lack of data. The patients' voice is difficult to hear as there are thousands of different diseases. Despite all these challenges, year after year, the European Union is building solutions to address the problems in an efficient way.
The Changing Role Of The Hospital In European Health Systems
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Author : Martin McKee
language : en
Publisher: Cambridge University Press
Release Date : 2020-08-13
The Changing Role Of The Hospital In European Health Systems written by Martin McKee and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-08-13 with Health & Fitness categories.
A team of world-leading policy experts and clinicians analyse the changing role of the hospital across Europe.