Caring For Children Who Have Severe Neurological Impairment
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Caring For Children Who Have Severe Neurological Impairment
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Author : Julie M. Hauer
language : en
Publisher: JHU Press
Release Date : 2013-08
Caring For Children Who Have Severe Neurological Impairment written by Julie M. Hauer and has been published by JHU Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-08 with Family & Relationships categories.
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Oxford Textbook Of Palliative Care For Children
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Author : Richard Hain
language : en
Publisher: Oxford University Press
Release Date : 2021-07-27
Oxford Textbook Of Palliative Care For Children written by Richard Hain and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-07-27 with Medical categories.
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Pediatric Palliative Care
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Author : Stefan J. Friedrichsdorf
language : en
Publisher: MDPI
Release Date : 2019-02-08
Pediatric Palliative Care written by Stefan J. Friedrichsdorf and has been published by MDPI this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-02-08 with Children categories.
This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Case Studies In Neuropalliative Care
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Author : Maisha T. Robinson
language : en
Publisher: Case Studies in Neurology
Release Date : 2018-06-28
Case Studies In Neuropalliative Care written by Maisha T. Robinson and has been published by Case Studies in Neurology this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-06-28 with Medical categories.
This guide delivers problem-based scenarios in neuropalliative care; improving quality of life for patients with neurologic diseases.
Perspectives On Palliative Care For Children And Young People
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Author : Rita Pfund
language : en
Publisher: CRC Press
Release Date : 2017-11-22
Perspectives On Palliative Care For Children And Young People written by Rita Pfund and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-11-22 with Medical categories.
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Orthopedic Care Of Patients With Cerebral Palsy
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Author : Philip D. Nowicki
language : en
Publisher: Springer Nature
Release Date : 2020-06-22
Orthopedic Care Of Patients With Cerebral Palsy written by Philip D. Nowicki and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-06-22 with Medical categories.
Many of the existing books focusing on the orthopedic management of patients with cerebral palsy encompass only care for the young patient, but this practical text reviews and delineates orthopedic care for patients with cerebral palsy throughout the lifespan. Readers will find a discussion of both non-operative and operative orthopedic management across all ages and functional levels. The text presents a general overview of cerebral palsy, evaluation of patients with cerebral palsy, and procedures commonly used to treat various orthopedic conditions in patients with cerebral palsy. Spasticity management and gait evaluation are likewise highlighted, and surgical chapters cover techniques for the hip, knee, foot and ankle, and spine. It also incorporates chapters focused on issues related to the rehabilitation of patients with cerebral palsy, including bracing, orthotics and other durable medical equipment, physical and occupational therapy, pain management, and adaptive activities and sports, which aim to improve the overall quality of life for patients through the lifespan. Finally, there is a chapter focused on the care transition from childhood to adulthood, an area of importance often neglected in current texts covering patients with cerebral palsy. Whether in the operating room, multi-specialty clinic or private office, Orthopedic Care of Patients with Cerebral Palsy will be a go-to resource for orthopedists, pediatricians and all medical professionals caring for this population.
The Physician S Guide To Caring For Children With Disabilities And Chronic Conditions
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Author : Robert E. Nickel
language : en
Publisher:
Release Date : 2000
The Physician S Guide To Caring For Children With Disabilities And Chronic Conditions written by Robert E. Nickel and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000 with Medical categories.
Children and adolescents with ongoing health conditions need primary care that makes sure their preventive, acute and specialised needs are met and treatments coordinated. This is a comprehensive reference for their health professionals.
Neurodevelopmental Disabilities
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Author : Dilip R. Patel
language : en
Publisher: Springer Science & Business Media
Release Date : 2011-04-07
Neurodevelopmental Disabilities written by Dilip R. Patel and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-04-07 with Medical categories.
Increasingly more and more children with developmental disabilities survive into adulthood. Pediatricians and other clinicians are called upon to care for an increasing number of children with developmental disabilities in their practice and thus there is a need for a practical guide specifically written for paediatricians and primary care clinicians that addresses major concepts of neurodevelopmental pediatrics. In the United States, the specialty training leading to a conjoint board certification by the American Board of Pediatrics and American Board of Psychiatry and Neurology, requires a total of 6 years of training (2 years of pediatrics, 1 year of neurology, 18 months of child neurology, 18 months of neurodevelopmental disabilities). As of December 2006, in the US, there were 241 pediatricians and 55 child neurologists certified in the subspecialty of Neurodevelopmental Disabilities. Thus most of the children with developmental disabilities are seen by pediatricians and therefore it is important for these pediatricians to be well informed of common issues in the field. The 60,000 or so pediatricians in the United States (and hundreds more in other countries) are the main target audience for a practical book on neurodevelopmental pediatrics.
Feeding And Nutrition In Children With Neurodevelopmental Disability
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Author : Peter B. Sullivan
language : en
Publisher: John Wiley & Sons
Release Date : 2009-07-13
Feeding And Nutrition In Children With Neurodevelopmental Disability written by Peter B. Sullivan and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-07-13 with Medical categories.
This book is written to assist those who have responsibility for the nutritional and gastrointestinal care of children with neurodisability. The emphasis throughout is on the importance of multidisciplinary care. It is concerned with the problems surrounding the nutritional management of children with neurological impairment who have difficulty swallowing and feeding. Written from a multidisciplinary perspective by a group of authors with considerable clinical and research experience in this area, it covers: ? The epidemiology of feeding disorders in children with cerebral palsy ? Nutritional assessment ? Evaluation of oral-motor function ? Dietetic management ? Nursing issues in the nutritional care of the disabled child ? Tube feeding ? Gastrointestinal problems and their investigation
Neurological Problems In Childhood
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Author : Neil Gordon
language : en
Publisher: CRC Press
Release Date : 1993-06-14
Neurological Problems In Childhood written by Neil Gordon and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1993-06-14 with Medical categories.
This very readable book focuses on the most frequently encountered paediatric neurological disorders, both acute and chronic. It is aimed at paediatricians, physiotherapists, speech therapists and occupational therapists. Common conditions such as learning disorders, epilepsy, cerebral palsy and migraine are fully discussed, but many rarer conditions and those which raise particular management problems are also included. Detailed knowledge of the more unusual disorders can be left to the specialist paediatric neurologist, but everyone involved in the care of children needs to know about their existence and what this may imply. A wealth of relevant, clinical information is presented in an accessible style, and photographs are used to show distinguishing features of different conditions. This book is for paediatricians, both those working in hospitals and in the community, and for those in training; for physiotherapists, speech therapists, psychologists and teachers and all those who wish to understand the basics of how neurological disease affects the children with whom they are working.