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Caring For Children With Complex Needs In The Community


Caring For Children With Complex Needs In The Community
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Caring For Children With Complex Needs In The Community


Caring For Children With Complex Needs In The Community
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Author : Jean Teare
language : en
Publisher: John Wiley & Sons
Release Date : 2009-01-22

Caring For Children With Complex Needs In The Community written by Jean Teare and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-01-22 with Medical categories.


Caring for the Child with Complex Needs in Community Settingsprovides a valuable overview of the key factors relating to caringfor children with complex and continuing care needs. Despite itsfrequent and increasing use, complex care needs is a term withoutan agreed definition. This shortfall of knowledge is addressed inthis book through critical discussion of evidence-based researchand current health, social and education policy. It brings togetherthe latest knowledge into one text providing practitioners with thecrucial information needed when working with this diverse and broadgroup of children. Caring for the Child with Complex Needs in Community Settingsexplores caring for technology-dependent children who requirerespiratory assistance; caring for children who require homeenteral tube feeds; and caring for children with complexdisabilities. It looks at multi-agency care, respite care forfamilies, social service support and educational support ofchildren with complex needs. Practitioners from health, socialservices and education backgrounds have contributed to the chaptersusing case studies, while a parent of a child with complex needshas provided a personal view of caring. This accessible andpractical text provides core knowledge and vital insight requiredfor successful delivery of community care for children with complexand continuing care needs.



Caring For Children With Neurodevelopmental Disabilities And Their Families


Caring For Children With Neurodevelopmental Disabilities And Their Families
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Author : Claudia Maria Vargas
language : en
Publisher: Routledge
Release Date : 2004-09-10

Caring For Children With Neurodevelopmental Disabilities And Their Families written by Claudia Maria Vargas and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2004-09-10 with Education categories.


Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences. Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. Caring for Children With Neurodevelopmental Disabilities and Their Families constitutes a crucial new resource for all those professionally and personally concerned with these children.



Parents Experiences In Caring For Children With Complex Healthcare Needs In The Community


Parents Experiences In Caring For Children With Complex Healthcare Needs In The Community
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Author : Sarah Lawry
language : en
Publisher:
Release Date : 2008

Parents Experiences In Caring For Children With Complex Healthcare Needs In The Community written by Sarah Lawry and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008 with categories.




Parents As Care Managers


Parents As Care Managers
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Author : Gillian Bridge
language : en
Publisher: Routledge
Release Date : 2019-07-23

Parents As Care Managers written by Gillian Bridge and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-07-23 with Social Science categories.


First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children’s lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.



Developing Community Based Systems Of Services For Children With Special Health Care Needs And Their Families


Developing Community Based Systems Of Services For Children With Special Health Care Needs And Their Families
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Author : John C. MacQueen
language : en
Publisher:
Release Date : 1991

Developing Community Based Systems Of Services For Children With Special Health Care Needs And Their Families written by John C. MacQueen and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1991 with Child health services categories.




Ensuring Quality And Accessible Care For Children With Disabilities And Complex Health And Educational Needs


Ensuring Quality And Accessible Care For Children With Disabilities And Complex Health And Educational Needs
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-11-24

Ensuring Quality And Accessible Care For Children With Disabilities And Complex Health And Educational Needs written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-11-24 with Social Science categories.


Children with disabilities and complex medical and educational needs present a special challenge for policy makers and practitioners. These children exhibit tremendous heterogeneity in their conditions and needs, requiring a varied array of services to meet those needs. Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs. The unmet needs of children with disabilities and complex medical and educational needs can cause great suffering for these children and for those who love and care for them. To examine how systems can be configured to meet the needs of children and families as they struggle with disabilities and complex health and educational needs, the National Academies of Sciences, Engineering, and Medicine held a workshop in December 2015. The goal of the workshop was to highlight the main barriers and promising solutions for improving care and outcome of children with complex medical and educational needs. Workshop participants examined prevention, care, service coordination, and other topics relevant to children with disabilities and complex health and educational needs, along with their families and caregivers. More broadly, the workshop seeks actionable understanding on key research questions for enhancing the evidence base; promoting and sustaining the quality, accessibility, and use of relevant programs and services; and informing relevant policy development and implementation. By engaging in dialogue to connect the prevention, treatment, and implementation sciences with settings where children are seen and cared for, the forum seeks to improve the lives of children by improving the systems that affect those children and their families. This publications summarizes the presentations and discussions from the workshop.



Parenting Matters


Parenting Matters
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-11-21

Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-11-21 with Social Science categories.


Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.



Beyond Basic Care


Beyond Basic Care
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Author : Roy I. Brown
language : en
Publisher: Captus Press
Release Date : 1996

Beyond Basic Care written by Roy I. Brown and has been published by Captus Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1996 with Handicapped Education Developing countries categories.




As If Children Matter


As If Children Matter
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Author : Roeher Institute
language : en
Publisher: North York, Ont. : Roeher Institute
Release Date : 1995

As If Children Matter written by Roeher Institute and has been published by North York, Ont. : Roeher Institute this book supported file pdf, txt, epub, kindle and other format this book has been release on 1995 with Social Science categories.


This book is a collection of articles from people throughout the Americas examining the rights of all children, in particular children with disabilities. The contributors look at such issues as what these rights are and how their denial affects children's lives; the impact of an increasingly fast-paced, morally dazed world on families and children; how poverty, lack of services, and institutionalization affect children and their families; and how policy influences children's rights to justice, medical treatment, day care, and education. A number of articles focus on partnerships in community living as a means of strengthening the family through policy initiatives, promoting the rights of children through social policy, and strengthening communities through policy and program initiatives. Personal stories from children with disabilities and their family members illustrate the points raised.



Integrating Children With Special Needs Into Community Child Care Settings


Integrating Children With Special Needs Into Community Child Care Settings
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Author : Lori Drogosh
language : en
Publisher:
Release Date : 1990

Integrating Children With Special Needs Into Community Child Care Settings written by Lori Drogosh and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1990 with categories.