Community Genetics And Genetic Alliances
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Community Genetics And Genetic Alliances
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Author : Aviad E. Raz
language : en
Publisher: Routledge
Release Date : 2009-09-10
Community Genetics And Genetic Alliances written by Aviad E. Raz and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-09-10 with Social Science categories.
Carrier testing of adults provides information about the risk of passing a genetic mutation to your children, leading to reproductive (and some say, eugenic) decisions. Excessive carrier screening may have adverse effects, but it can also prevent suffering and open up new reproductive options. Raz's study focuses on the interplay of community genetics (the medical organisation of carrier screening) and genetic alliances (networks of individuals at risk), exploring how 'genetic communities' are emerging both within existing ethnic groups and around patients' organizations. While the interplay between carrier testing, reproduction and eugenics has sparked many discussions, this study provides a novel and much-needed perspective on its actual implementation and interpretation by community members. Conflating a cross-cultural spectrum of genetic communities, the benefits and perils of supporting (or restricting) carrier screening are located within broader social issues such as religion, ethnicity, multi-culturalism, abortion, stigmatization, suffering and care-giving. While carrier screening emerges as ultimately a morally justified pronatalist endeavour for the reduction of suffering, thus being different in principle from the 'old' eugenics, it can also carry unintended adverse consequences if left unattended to consumers, communities, or health professionals.
Understanding Genetics
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Author : Genetic Alliance
language : en
Publisher: Lulu.com
Release Date : 2009
Understanding Genetics written by Genetic Alliance and has been published by Lulu.com this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009 with Biology categories.
The purpose of this manual is to provide an educational genetics resource for individuals, families, and health professionals in the New York - Mid-Atlantic region and increase awareness of specialty care in genetics. The manual begins with a basic introduction to genetics concepts, followed by a description of the different types and applications of genetic tests. It also provides information about diagnosis of genetic disease, family history, newborn screening, and genetic counseling. Resources are included to assist in patient care, patient and professional education, and identification of specialty genetics services within the New York - Mid-Atlantic region. At the end of each section, a list of references is provided for additional information. Appendices can be copied for reference and offered to patients. These take-home resources are critical to helping both providers and patients understand some of the basic concepts and applications of genetics and genomics.
Community Genetics And Genetic Alliances
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Author : Aviad E. Raz
language : en
Publisher: Routledge
Release Date : 2009-09-10
Community Genetics And Genetic Alliances written by Aviad E. Raz and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-09-10 with Medical categories.
The social and bioethical aspects of carrier testing and its assimilation by specific groups are examined through several qualitative case studies in traditional (religious, ethnic) as well as modern (secular-consumerist) communities in Israel and the U.S. Comparing the views of community members and health professionals, the analysis offers a new look on the relations between eugenics and "genetic responsibility."
Understanding Genetics
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Author : Genetic Alliance
language : en
Publisher:
Release Date : 2010
Understanding Genetics written by Genetic Alliance and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010 with categories.
The purpose of the manual is to provide a genetics educational resource for patients and health professionals in the District of Columbia and increase awareness of specialty care in genetics. The manual opens with a basic introduction to genetic concepts followed by a description of the different types and applications of genetic tests. Information is also provided about diagnosis of a genetic disease, family-history taking, newborn screening, and genetic counseling. Helpful resources are included to assist in patient care, patient and professional education, and specialty genetics services in the District of Columbia and surrounding areas. At the end of each section, a list of selected references is provided if any additional information is desired. In addition, a series of consumer fact sheets are provided to be copied and offered to patients. These take-home resources will be critical in helping patients understand some of the basic concepts and applications of genetics.
Community Centered Family Health History
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Author : Vaughn Edelson
language : en
Publisher:
Release Date : 2010-12-01
Community Centered Family Health History written by Vaughn Edelson and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010-12-01 with categories.
Evaluation of family health history represents a first step in identifying genetic contributors to health and can serve as an important basis for improving healthcare and encouraging a healthy lifestyle. Though family health history tools abound, neither the premise that they will make a difference in health outcomes nor the analysis of their usefulness along a medical-nonmedical continuum has been validated in a systematic, evidence-based study as measured by changed behavior leading to better personal health. The fundamental purpose of this project was to create and evaluate a customizable, nonmedical family health history toolkit (Does It Run In the Family?), informed by oral history and folklore traditions.
Kin Gene Community
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Author : Daphna Birenbaum-Carmeli
language : en
Publisher: Berghahn Books
Release Date : 2010
Kin Gene Community written by Daphna Birenbaum-Carmeli and has been published by Berghahn Books this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010 with Human reproductive technology categories.
Jewish Israeli environment. --Book Jacket.
Bioethics And Biopolitics In Israel
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Author : Hagai Boas
language : en
Publisher: Cambridge University Press
Release Date : 2018-01-11
Bioethics And Biopolitics In Israel written by Hagai Boas and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-01-11 with Law categories.
A collection of studies in bioethics and society that goes beyond conventional medical ethics and suggests political, socio-legal, and empirical analysis.
Genetics As Social Practice
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Author : Barbara Prainsack
language : en
Publisher: Routledge
Release Date : 2016-04-22
Genetics As Social Practice written by Barbara Prainsack and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-04-22 with Social Science categories.
Recent debate about the ethical and regulatory dimensions of developments in genetics has sidelined societal and cultural aspects, which arguably are indispensable for a nuanced understanding of the complexities of the topic. Regulatory and ethical debates benefit from taking seriously this ’third dimension’ of culture, which often determines the configurations and limits of the space within which scientific, ethical and legal debate can take place. To fill this gap, this volume brings together contributions exploring the mutual relationships between genetics, markets, societies and identities in genetics and genomics. It draws upon the recent transdisciplinary debate on how socio-cultural factors influence understandings of ’genetics2.0' and shows how individual and collective identities are challenged or reinforced by cultural meanings and practices of genetics. This book will become a standard reference for everyone seeking to make sense of the controversies and shifts in the field of genetics in the second decade of the twenty-first century.
Assisting Reproduction Testing Genes
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Author : Daphna Birenbaum-Carmeli
language : en
Publisher: Berghahn Books
Release Date : 2009-08-30
Assisting Reproduction Testing Genes written by Daphna Birenbaum-Carmeli and has been published by Berghahn Books this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-08-30 with Social Science categories.
Following the routinization of assisted reproduction in the industrialized world, technologies such as in vitro fertilization, preimplantation genetic diagnosis, and DNA-based paternity testing have traveled globally and are now being offered to couples in numerous non-Western countries. This volume explores the application and impact of these advanced reproductive and genetic technologies in societies across the globe. By highlighting both the cross-cultural similarities and diverse meanings that technologies may assume as they enter multiple contexts, the book aims to foster understanding of both the technologies and the settings. Enhanced by cross-cultural perspectives, the book addresses the challenges that globalization presents to local understandings of science, technology, and medicine.
Risky Genes
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Author : Jessica Mozersky
language : en
Publisher: Routledge
Release Date : 2013
Risky Genes written by Jessica Mozersky and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013 with Health & Fitness categories.
What does it mean to be told you have an increased risk of genetic breast cancer because you are of Ashkenazi Jewish origin? In a time of ever increasing knowledge about variations in genetic disease risk among different populations, there is a pressing need for research regarding the implications of such information for members of high-risk populations. With first hand, intimate descriptions of women's experiences of being Jewish and of being at increased risk of genetic breast cancer, this book offers new insight into the ongoing debates regarding the implications of genetic research for populations, and of new genetic knowledge for individual and collective identity.