Creation And Governance Of Human Genetic Research Databases

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Creation And Governance Of Human Genetic Research Databases
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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2006-10-25
Creation And Governance Of Human Genetic Research Databases written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-10-25 with categories.
Summarises proceedings of a conference looking at examples of human genetic research databases, how they are established, how they are managed and governed, how they might be commercialised, and what the policy considerations might be.
Pharmacogenetics Opportunities And Challenges For Health Innovation
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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2009-11-12
Pharmacogenetics Opportunities And Challenges For Health Innovation written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-11-12 with categories.
This book reviews how the emergence of pharmacogenetics will impact the efficiency of pharmaceutical R&D and improve healthcare decision making and clinical care. It discusses what policies need to change in order for the public to reap the benefits from advances in diagnostic genetic testing.
Integration Of Omics Approaches And Systems Biology For Clinical Applications
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Author : Antonia Vlahou
language : en
Publisher: John Wiley & Sons
Release Date : 2018-01-24
Integration Of Omics Approaches And Systems Biology For Clinical Applications written by Antonia Vlahou and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-01-24 with Science categories.
Introduces readers to the state of the art of omics platforms and all aspects of omics approaches for clinical applications This book presents different high throughput omics platforms used to analyze tissue, plasma, and urine. The reader is introduced to state of the art analytical approaches (sample preparation and instrumentation) related to proteomics, peptidomics, transcriptomics, and metabolomics. In addition, the book highlights innovative approaches using bioinformatics, urine miRNAs, and MALDI tissue imaging in the context of clinical applications. Particular emphasis is put on integration of data generated from these different platforms in order to uncover the molecular landscape of diseases. The relevance of each approach to the clinical setting is explained and future applications for patient monitoring or treatment are discussed. Integration of omics Approaches and Systems Biology for Clinical Applications presents an overview of state of the art omics techniques. These methods are employed in order to obtain the comprehensive molecular profile of biological specimens. In addition, computational tools are used for organizing and integrating these multi-source data towards developing molecular models that reflect the pathophysiology of diseases. Investigation of chronic kidney disease (CKD) and bladder cancer are used as test cases. These represent multi-factorial, highly heterogeneous diseases, and are among the most significant health issues in developed countries with a rapidly aging population. The book presents novel insights on CKD and bladder cancer obtained by omics data integration as an example of the application of systems biology in the clinical setting. Describes a range of state of the art omics analytical platforms Covers all aspects of the systems biology approach—from sample preparation to data integration and bioinformatics analysis Contains specific examples of omics methods applied in the investigation of human diseases (Chronic Kidney Disease, Bladder Cancer) Integration of omics Approaches and Systems Biology for Clinical Applications will appeal to a wide spectrum of scientists including biologists, biotechnologists, biochemists, biophysicists, and bioinformaticians working on the different molecular platforms. It is also an excellent text for students interested in these fields.
The Social Life Of Standards
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Author : Janice E. Graham
language : en
Publisher: UBC Press
Release Date : 2021-04-15
The Social Life Of Standards written by Janice E. Graham and has been published by UBC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-04-15 with Social Science categories.
Standards. We apply them, uphold them, or fail to meet them. But how do they get made? Through twelve ethnographic case studies, The Social Life of Standards reveals how standards – political and technical tools for organizing society – are developed, applied, subverted, contested, and reassembled by local communities interacting with norms often created by others. Contributors explore standards at work across different countries and contexts, such as Ebola biomedical safety precautions in Senegal, Colombian farmers contesting politicized seed regulations, and the application of Indigenous standards to Canadian environmental assessments. They emphasize the uncomfortable fit between the inconsistent implementation of standards in the real world and the non-negotiable criteria presupposed by external forces. The Social Life of Standards provides support for a reflexive process that involves local engagement. Ultimately, the goal should be to reach a balance between evidence-based science and the social contexts that can inform more useful and appropriate standards.
Governing Intellectual Property Rights Within Publicly Funded Biobanks
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Author : Rajam Neethu
language : en
Publisher: Kluwer Law International B.V.
Release Date : 2019-06-21
Governing Intellectual Property Rights Within Publicly Funded Biobanks written by Rajam Neethu and has been published by Kluwer Law International B.V. this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-06-21 with Law categories.
Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out of the knowledge emanating from the use of biobank resources lies in managing intellectual property inputs and outputs effectively in keeping with the values core to such research. Focusing on the challenges of involving intellectual property rights (IPRs) particularly in the precompetitive phase of biobank-based research, the book offers an extensive understanding of the role of different IPRs and identifies the gaps in the law and its implications for biobanks. The analysis covers important aspects in relation to biobanks such as: Digital integration and biomedical data storage; Ownership of biological samples; Commercialization and benefit sharing; Partnership models; Public sector research; Disposition of samples; Consent; Cross-border exchange; Trade secrecy; Privacy; Regulatory stewardship; Business strategies; Ethical considerations over biological resources; Patenting of inventions relating to personalized medicine; Ethical parameters within patent law; and Rights regarding genetic data and databases. The book includes observations, case studies and interviews conducted by the author. In conclusion, the author offers cogent recommendations for legal interoperability of IP rules and research practices designed to enhance the ability of biobanks to share, access and reuse data. This book is the first of its kind to explore the organizational and legislative choices for biobanks particularly while engaging in the protection of research results and technology transfer within a publicly funded setting. It will be of substantial interest to all stakeholders in biobanking, especially policymakers, biobankers and researchers working in the field of health law as well as for legal practitioners, academics and patient interest groups.
La Protection Des Donn Es M Dicales
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Author : Deryck Beyleveld
language : en
Publisher: Anthemis
Release Date : 2008
La Protection Des Donn Es M Dicales written by Deryck Beyleveld and has been published by Anthemis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008 with Data protection categories.
The Bioeconomy To 2030 Designing A Policy Agenda
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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2009-04-15
The Bioeconomy To 2030 Designing A Policy Agenda written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-04-15 with categories.
Describes the current status of biotechnologies and, using quantitative analyses of data, it estimates biotechnological developments to 2015. Using other inputs, it creates scenarios to 2030.
The Oecd Observer
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Author : Organisation for Economic Co-operation and Development
language : en
Publisher:
Release Date : 2007
The Oecd Observer written by Organisation for Economic Co-operation and Development and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007 with Europe categories.
Foundations Of Data Science Based Healthcare Internet Of Things
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Author : Parikshit N. Mahalle
language : en
Publisher: Springer Nature
Release Date : 2021-01-22
Foundations Of Data Science Based Healthcare Internet Of Things written by Parikshit N. Mahalle and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-01-22 with Technology & Engineering categories.
This book offers a basic understanding of the Internet of Things (IoT), its design issues and challenges for healthcare applications. It also provides details of the challenges of healthcare big data, role of big data in healthcare and techniques, and tools for IoT in healthcare. This book offers a strong foundation to a beginner. All technical details that include healthcare data collection unit, technologies and tools used for the big data analytics implementation are explained in a clear and organized format.
Oecd Best Practice Guidelines For Biological Resource Centres
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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2007-03-28
Oecd Best Practice Guidelines For Biological Resource Centres written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-03-28 with categories.
These best practice guidelines are intended to serve as a target for the quality management of biological resource center collections. They are the result of discussions held by OECD member countries together with a number of key partner countries ...