Dementia Activist
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Dementia Activist
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Author : Helga Rohra
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2016-07-21
Dementia Activist written by Helga Rohra and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-07-21 with Health & Fitness categories.
What's happening to me?' Successful translator and linguist Helga Rohra was understandably good with words - that is, until she found herself getting in a muddle when she spoke. She started to forget the way home, even though she could remember her address. Her confusing symptoms increased and Helga was diagnosed with dementia at age 50 - but she hasn't let herself be labelled with the usual stereotypes. With entertaining vim Helga shows that her life is still as abundant and self-determined as ever, dismantling the negative stereotypes that often surround a dementia diagnosis. She speaks frankly and with humour about her diagnosis and life with young onset Lewy Body Dementia. She explains the changes in her everyday life and the challenges she faces, and shares practical tips that prove it is possible to live well with dementia. Helga also talks about her activism work, which has made hers one of the key voices internationally in dementia advocacy.
What The Hell Happened To My Brain
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Author : Kate Swaffer
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2016-01-21
What The Hell Happened To My Brain written by Kate Swaffer and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-01-21 with Health & Fitness categories.
Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia. Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity. Kate's powerful words will challenge misconceptions about dementia, and open our eyes to new ways of supporting people with the diagnosis. A must read for people with dementia and their families as well as for professionals and carers.
Dear Alzheimer S
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Author : Keith Oliver
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2019-04-18
Dear Alzheimer S written by Keith Oliver and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-04-18 with Health & Fitness categories.
Keith Oliver was diagnosed with Alzheimer's in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.
Dementia Friendly Communities
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Author : Susan McFadden
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2020-11-19
Dementia Friendly Communities written by Susan McFadden and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-11-19 with Health & Fitness categories.
Creating dementia-friendly communities can give people with dementia the chance to continue meaningful lives with reciprocal personal relationships. Underpinning successful dementia-friendly communities is an awareness of people with dementia as active citizens and the importance of supporting engagement in community life. This book offers an overview of the dementia-friendly communities movement, showing the many benefits of this approach. It describes community initiatives from across the globe, such as Dementia Friends, memory cafes, and creative engagement with the arts through organizations like TimeSlips. This compassionate book tells another story about dementia, away from negative stereotypes. This alternative approach claims people can retain a sense of dignity, hold onto hope, sustain meaningful relationships, and live with a sense of purpose with support from their communities.
Alzheimer S Through The Alphabet
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Author : Leslie F. Hergert
language : en
Publisher: Archway Publishing
Release Date : 2018-03-22
Alzheimer S Through The Alphabet written by Leslie F. Hergert and has been published by Archway Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-03-22 with Biography & Autobiography categories.
This book provides a vivid story of life with Alzheimersor at least, one story of one family with an unusual sense of humor. Told in an unconventional style (through the alphabet rather than chronologically), Leslie F. Hergert describes the sadness, humor, and challenges of caring for a partner with Alzheimers Disease through its many stages. Each letter of the alphabet provides reflections on some facet of the Alzheimers experience, told with honesty and a wry eye. Leslie spoke at our conference on Dementia and attendees said that her stories were the most powerful part of a very good conference. Her book extends that speech to provide an inside view of living with Alzheimers, a comfort for others living with the disease and an education for outsiders. Nancy Willbanks, Somerville Cambridge Elder Services Ms. Hergert writes candidly and poignantly about her experience caring for her husband with early onset Alzheimers Disease. She touches upon the major cognitive, psychological, and functional changes that occur over the course of the disease, and she provides practical tips to caregivers on how to manage them. She also writes movingly about the multiple emotions she felt as she accompanied her husband on the journey, reminding all of us that there are moments of joy and laughter even among those of loss and grief. I have no doubt that readers will find her words of wisdom helpful. Serena Chao, MD, MSc; Geriatrics Division Chief, Cambridge Health Alliance; Instructor of Medicine, Harvard Medical School
The 10 Best Questions For Living With Alzheimer S
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Author : Dede Bonner
language : en
Publisher: Simon and Schuster
Release Date : 2008-11-04
The 10 Best Questions For Living With Alzheimer S written by Dede Bonner and has been published by Simon and Schuster this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-11-04 with Health & Fitness categories.
A good mind knows the right answers...but a great mind knows the right questions. And never are the 10 Best Questions™ more important than after the life-altering diagnosis of Alzheimer's disease. Drawing on cutting-edge research and advice given by experts from the Alzheimer's Association, Mayo Clinic, and UCLA's Memory Clinic and Center for Aging -- as well as personal stories from caretakers, including television star and activist Linda Dano and nationally syndicated columnist Harriet Cole -- The 10 Best Questions™ for Living with Alzheimer's is a guide you'll take with you to your doctor's office and keep close at hand as your loved one progresses from the initial diagnosis through all the stages of the disease. In addition to the medical questions, you'll also learn what you need to ask your spouse or parent; questions to assess home safety issues, driving skills, and home care; and how to care for your own emotional, legal, and financial health. With a wealth of resources and up-to-the-minute information, The 10 Best Questions™ for Living with Alzheimer's shows you and your family how to move past a scary diagnosis and use the power of questions to become your own best health advocate -- for yourself and for your loved one.
Talking With Dementia Reconsidered
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Author : Keith Oliver
language : en
Publisher: McGraw-Hill Education (UK)
Release Date : 2024-05-01
Talking With Dementia Reconsidered written by Keith Oliver and has been published by McGraw-Hill Education (UK) this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-05-01 with Health & Fitness categories.
“The voice of lived experience is ever growing and without doubt we should never miss an opportunity like this to listen, capture and learn from it.” Paola Barbarino, CEO, Alzheimer’s Disease International “This latest book will help so many people - those with dementia and their loved ones.” Victoria Derbyshire, British Journalist, Newsreader and Broadcaster “Talking with Dementia Reconsidered is a landmark, which will inspire professionals, researchers and the upcoming cohort of people whose lives are affected by dementia.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “I would strongly advise all health and social care professionals to read this and rethink what they “know” about dementia.” Dr Hilda Hayo Chief Admiral Nurse and CEO, Dementia UK This book places people living with a diagnosis of dementia at its core, providing each person with the opportunity to express themselves whilst viewing their lives in relation to the Kitwood flower model. Authored by a person living with dementia, an experienced consultant clinical psychologist and a respected academic, the three combine to amplify and showcase the words of the Fifteen people living with dementia, in an original, authentic and unique way. This book: Gives readers transparent insight into the lives, hopes and fears of a diverse range of people living with various forms of dementia Shows how each petal of the Kitwood flower with love at its centre is a helpful framework for each person to describe their life Links the interviews with issues, frameworks, policy and practice Examines what stakeholders can take from this book to advance dementia care. Talking with Dementia Reconsidered truthfully adds to the growing knowledge base of what life with dementia is really like in an engaging and informative way. It is essential reading for anyone and everyone directly or indirectly affected by dementia through lived experience, studying dementia or working professionally to support those affected. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Dr Keith Oliver is an Alzheimer's Society Ambassador and Dementia Service User Envoy for Kent and Medway Partnership NHS Trust in the UK. He retired from being a head teacher when diagnosed with Alzheimer’s at age 55. Keith is Series editor for the Reconsidering Dementia Series. Reinhard Guss is Associate Fellow of the British Psychological Society and former Dementia Work Stream Lead for the Faculty of the Psychology of Older People (FPOP). Reinhard is a Consultant Clinical Psychologist and Neuropsychologist working within the National Health Service. Dr Ruth Bartlett is Associate Professor at the University of Southampton, UK, co-director of the University’s Doctoral Training Centre in Dementia Care and Principal Investigator of an interdisciplinary, cross-faculty research project funded by the Alzheimer’s Society.
Losing Me While Losing You
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Author : Jeanette A. Auger
language : en
Publisher: Fernwood Publishing
Release Date : 2021-09-21T00:00:00Z
Losing Me While Losing You written by Jeanette A. Auger and has been published by Fernwood Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-09-21T00:00:00Z with Health & Fitness categories.
Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.
Everyday Citizenship And People With Dementia
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Author : Ann-Charlotte Nedlund
language : en
Publisher: Liverpool University Press
Release Date : 2019-11-01
Everyday Citizenship And People With Dementia written by Ann-Charlotte Nedlund and has been published by Liverpool University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-11-01 with Social Science categories.
An edited volume discussing the underpinning concepts of citizenship, agency, and participation in the context of the everyday lives of people living with a dementia. The editors explain the theoretical underpinning of citizenship before the contributors show the way it can broaden the everyday lives of people with dementia.
Critical Dementia Studies
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Author : Richard Ward
language : en
Publisher: Taylor & Francis
Release Date : 2023-03-15
Critical Dementia Studies written by Richard Ward and has been published by Taylor & Francis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-03-15 with Social Science categories.
This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.