Families And End Of Life Treatment Decisions
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Families And End Of Life Treatment Decisions
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Author : Thérèse Callus
language : fr
Publisher: Primento
Release Date : 2013-07-23
Families And End Of Life Treatment Decisions written by Thérèse Callus and has been published by Primento this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-07-23 with Law categories.
"The book of life is the supreme book that we can neither close nor reopen at will."This quotation from Lamartine, the French poet, once a perfect illustration of the end of life in bygone societies, can no longer be said to apply. In fact, today, in one out of two cases in our modern societies, it is the medical team who closes this book without any intention of cutting life short. Generally, however, the physicians do not make this decision alone. While a competent patient increasingly participates in medical decisions, including when it’s a matter of life or death, those nearest to him (usually the family but not always) endorse this responsibility once he becomes incapable of expressing his wishes. Many questions surround not only this concept of «nearest and dearest», or “loved ones”, but also their roles and legitimacy. Whether they act as the patient’s legal representative, authorised agent or trustee, or if they are stripped of all legal power, will the «loved one» be simply consulted by the caregivers on the presumed wishes of the patient regarding end-of-life choices? Or must they guarantee him a genuine right of self-determination? To this end, will they be granted a right of information only about the patient’s condition, or even access to his medical records? Will their role be affected by the existence of living wills drawn up by the patient in question ? The outcome of debates between legal experts and physicians, philosophers and sociologists from seventeen countries, the chapters in this book analyse the current status and role of these relatives (and non- relatives) close to the patient at the end of life. Numerous European national laws are thus compared and are also benchmarked against other practices, in North and South America, in Africa and in some Asian countries. Beyond the legal, cultural and ethical differences that clearly separate these various traditions, a recurrent question arises: more than providing paternalistic protection, does the “loved one” not always have to ensure respect for what «their patient» would have wanted, thus guaranteeing up to the end of his life a basic right, namely his decision-making autonomy? If this book demonstrates the difficulty of such a task in different contexts, it also attempts to pave the way to a more humanistic approach across cultures to advocate respect for the patient at the very end of his life.
Families And End Of Life Treatment Decisions
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Author : Brigitte Feuillet
language : en
Publisher: Emile Bruylant
Release Date : 2013
Families And End Of Life Treatment Decisions written by Brigitte Feuillet and has been published by Emile Bruylant this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013 with Advance directives (Medical care) categories.
"The book of life is the supreme book that we can neither close nor reopen at will". This quotation from Lamartine, the French poet, once a perfect illustration of neither the close of life in bygone societies, can no longer be said to apply. In fact, today, in one out of two cases in our modern societies, it is the medical team who closes this book without any intention of cutting life short. Generally, however, the physicians do not make this decision alone. While a competent patient increasingly participates in medical decisions, including when it's a matter of life or death, those nearest to him (usually the family but not always) endorse this responsibility once he becomes incapable of expressing his wishes. Many questions surround not only this concept of "nearest and dearest", or "loved ones", but aise their roles and legitimacy. Whether they act as the patients Iegal representative, authorised agent or trustee, or if they are stripped of all legal power, will the "doved one" be simply consulted by the caregivers on the presumed wishes of the patient regarding end-of-life choices ? Or must they guarantee him a genuine right of self-determination ? To this end, will they be granted a right of information only about the patients condition, or even access to his medical records ? Will their role be affected by the existence of living wills drawn up by the patient in question ? The outcome of debates between legal experts and physicians, philosophers and sociologists from seventeen countries, the chapters in this book analyse the current status and role of these relatives (and non- relatives) close to the patient at the end of life. Numerous European national laws are thus compared and are also benchmarked against other practices, in North and South America, in Africa and in some Asian countries. Beyond the legal, cultural and ethical differences that clearly separate these various traditions, a recurrent question arises: more than providing paternalistic protection, does the "loved one" not always have to ensure respect for what "their patient" would have wanted, thus guaranteeing up to the end of his lite a basic right, namely his decision-making autonomy ? If this book demonstrates the difficulty of such a task in different contexts, it also attempts to pave the way to a more humanistic approach across cultures to advocate respect for the patient at the very end of his lite.
Fragility Fracture Nursing
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Author : Karen Hertz
language : en
Publisher: Springer
Release Date : 2018-06-15
Fragility Fracture Nursing written by Karen Hertz and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-06-15 with Medical categories.
This open access book aims to provide a comprehensive but practical overview of the knowledge required for the assessment and management of the older adult with or at risk of fragility fracture. It considers this from the perspectives of all of the settings in which this group of patients receive nursing care. Globally, a fragility fracture is estimated to occur every 3 seconds. This amounts to 25 000 fractures per day or 9 million per year. The financial costs are reported to be: 32 billion EUR per year in Europe and 20 billon USD in the United States. As the population of China ages, the cost of hip fracture care there is likely to reach 1.25 billion USD by 2020 and 265 billion by 2050 (International Osteoporosis Foundation 2016). Consequently, the need for nursing for patients with fragility fracture across the world is immense. Fragility fracture is one of the foremost challenges for health care providers, and the impact of each one of those expected 9 million hip fractures is significant pain, disability, reduced quality of life, loss of independence and decreased life expectancy. There is a need for coordinated, multi-disciplinary models of care for secondary fracture prevention based on the increasing evidence that such models make a difference. There is also a need to promote and facilitate high quality, evidence-based effective care to those who suffer a fragility fracture with a focus on the best outcomes for recovery, rehabilitation and secondary prevention of further fracture. The care community has to understand better the experience of fragility fracture from the perspective of the patient so that direct improvements in care can be based on the perspectives of the users. This book supports these needs by providing a comprehensive approach to nursing practice in fragility fracture care.
Decision Making Near The End Of Life
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Author : James L. Werth Jr.
language : en
Publisher: Routledge
Release Date : 2008-10-20
Decision Making Near The End Of Life written by James L. Werth Jr. and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-10-20 with Psychology categories.
Decision Making near the End of Life provides a comprehensive overview of the recent developments that have impacted decision-making processes within the field of end-of-life care. The most current developments in all aspects of major underlying issues such as public attitudes, the impact of media, bioethics, and legal precedent provide the background information for the text. The authors examine various aspects of end-of-life choices and decision-making, including communication (between and among family, medical personnel, the dying person), advance directives, and the emergence of hospice and palliative care institutions. The book also explores a variety of psychosocial considerations that arise in decision-making, including religion/spirituality, family caregiving, disenfranchised and diverse groups, and the psychological and psychiatric problems that can impact both the dying person and loved ones. Case studies and first-person stories about decision-making, written by professionals in the field, bring a uniquely personal touch to this valuable text.
When Children Die
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2003-02-09
When Children Die written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-02-09 with Medical categories.
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Dying In America
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-03-19
Dying In America written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-03-19 with Medical categories.
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
End Of Life Decisions
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Author : Maurice Steinberg
language : en
Publisher: American Psychiatric Pub
Release Date : 1998
End Of Life Decisions written by Maurice Steinberg and has been published by American Psychiatric Pub this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with Medical categories.
In recent years, the lens of the media has narrowed issues of euthanasia and assisted suicide to a drama involving two players: Dr. Kevorkian and the law. This has left suffering patients and their families unrecognized and isolated when facing the most painful life decision. Here at last is a book that addresses the role of psychiatry in dealing with a major, controversial topic in American medicine today -- treatment decisions at the end of life. End-of-Life Decisions: A Psychosocial Perspective acknowledges and explores the role psychiatrists can play as advisers to the terminally ill and their loved ones. It describes the wide range of emotional and psychiatric issues faced by the patient, family, and physician that affect choices patients make to limit treatment or seek physician assistance in dying. A distinguished group of contributors, all of whom have extensive experience dealing with end-of-life issues in clinical practice, address topics that may not have been considered previously. From dealing with issues of terminal illnesses in children, to making difficult treatment decisions for patients with AIDS; from judging the competency of clinically depressed patients for making sound decisions, to understanding the influence of family dynamics, economic forces, and language differences on doctor-patient communication -- the book uses specific case studies and data to explore the role of professionals in end-of-life decisions. End-of-Life Decisions strikes a careful balance between the need for patient autonomy and the challenge to make well-formulated treatment decisions. This book will heighten modern medicine's and society's consciousness concerning the difficult challenges faced by patients and their families when making end-of-life decisions
Approaching Death
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Author : Committee on Care at the End of Life
language : en
Publisher: National Academies Press
Release Date : 1997-10-30
Approaching Death written by Committee on Care at the End of Life and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1997-10-30 with Medical categories.
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
End Of Life Decisions
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Author : Joseph T. Batuello
language : en
Publisher: Virtual Bookworm.Com Pub Incorporated
Release Date : 2003-01-01
End Of Life Decisions written by Joseph T. Batuello and has been published by Virtual Bookworm.Com Pub Incorporated this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-01-01 with Self-Help categories.
The time in life when a person or their loved one confronts a serious or terminal illness is trying and stressful. Serious decisions must often be made on short notice and with a minimum of preparation. This time is often burdened by the emotional shock of impending death, and the associated grief. Many people are unprepared to face these trying circumstances and often have little understanding of the medical facts and options available to them.End-of-Life Decisions: A Practical Guide is a concise book designed to provide the relevant information that dying patients and loved ones need to deal with medical decisions and the end of life. It presents, in everyday language, the basic facts regarding end-of-life decision making, the relevant issues concerning mechanical ventilation and tube feeding, as well as discussions of hospice and palliative care, and pain control. This book omits academic discussions of philosophy and tangential anecdotes. When people are confronted with the imminent death of a loved one, they do not wish to wade through hundreds of pages of theory; they need concise facts and accurate information. That's exactly what End-of-Life Decisions provides.
Family Communication At The End Of Life
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Author : Maureen P. Keeley
language : en
Publisher: MDPI
Release Date : 2018-03-23
Family Communication At The End Of Life written by Maureen P. Keeley and has been published by MDPI this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-03-23 with Communication in families categories.
This book is a printed edition of the Special Issue "Family Communication at the End of Life" that was published in Behavioral Sciences