Genetic Governance
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Genetic Governance
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Author : Robin Bunton
language : en
Publisher: Routledge
Release Date : 2005-03-18
Genetic Governance written by Robin Bunton and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2005-03-18 with Social Science categories.
A new perspective on a topical and hotly debated subject Both editors have, individually and collaboratively, written successful books for Routledge Contributors from key international academics in public health and genetics
The Governance Of Genetic Information
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Author : Heather Widdows
language : en
Publisher: Cambridge University Press
Release Date : 2009-09-03
The Governance Of Genetic Information written by Heather Widdows and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-09-03 with Law categories.
This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.
Creation And Governance Of Human Genetic Research Databases
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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2006-10-25
Creation And Governance Of Human Genetic Research Databases written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-10-25 with categories.
Summarises proceedings of a conference looking at examples of human genetic research databases, how they are established, how they are managed and governed, how they might be commercialised, and what the policy considerations might be.
The Global Governance Of Genetic Resources
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Author : Florian Rabitz
language : en
Publisher: Taylor & Francis
Release Date : 2017-04-28
The Global Governance Of Genetic Resources written by Florian Rabitz and has been published by Taylor & Francis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-04-28 with Political Science categories.
Cover -- Half Title -- Title Page -- Copyright Page -- Contents -- List of figures and tables -- List of acronyms -- Acknowledgements -- 1 Introduction -- 2 Regime complexity and institutional change -- 3 Genetic resources and biotechnology -- 4 Property regimes -- 5 Plant genetic resources for food and agriculture -- 6 Biopiracy -- 7 Viral genetic resources -- 8 Marine genetic resources -- 9 Conclusions -- Bibliography -- Index.
Governance Of Genetic Resources
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Author : Catherine Rhodes
language : en
Publisher: Edward Elgar Publishing
Release Date : 2013-11-29
Governance Of Genetic Resources written by Catherine Rhodes and has been published by Edward Elgar Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-11-29 with Nature categories.
This timely study will be of interest to students and academics concerned with the management of genetic resources and its connection to issues such as intellectual property rights, biodiversity conservation and food security. It will appeal strongly t
Human Genes And Neoliberal Governance
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Author : Antoinette Rouvroy
language : en
Publisher: Routledge
Release Date : 2007-12-13
Human Genes And Neoliberal Governance written by Antoinette Rouvroy and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-12-13 with Law categories.
Original and interdisciplinary, this is the first book to explore the relationship between a neoliberal mode of governance and the so-called genetic revolution. Looking at the knowledge-power relations in the post-genomic era and addressing the pressing issues of genetic privacy and discrimination in the context of neoliberal governance, this book demonstrates and explains the mechanisms of mutual production between biotechnology and cultural, political, economic and legal frameworks. In the first part Antoinette Rouvroy explores the social, political and economic conditions and consequences of this new ‘perceptual regime’. In the second she pursues her analysis through a consideration of the impact of ‘geneticization’ on political support of the welfare state and on the operation of private health and life insurances. Genetics and neoliberalism, she argues, are complicit in fostering the belief that social and economic patterns have a fixed nature beyond the reach of democratic deliberation, whilst the characteristics of individuals are unusually plastic, and within the scope of individual choice and responsibility. This book will be of interest to all students of law, sociology and politics.
Global Governance Of Genetic Resources
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Author : Sebastian Oberthür
language : en
Publisher: Routledge
Release Date : 2013-10-30
Global Governance Of Genetic Resources written by Sebastian Oberthür and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-10-30 with Business & Economics categories.
This book analyses the status and prospects of the global governance of Access Benefit Sharing (ABS) in the aftermath of 2010’s Nagoya Protocol to the Convention on Biological Diversity (CBD). The CBD’s initial 1992 framework of global ABS governance established the objective of sharing the benefits arising from the use of genetic resources fairly between countries and communities. Since then, ABS has been a contested issue in international politics – not least due to the failure of effective implementation of the original CBD framework. The Nagoya Protocol therefore aims to improve and enhance this framework. Compared to the slow rate of progress on climate change, it has been considered a major achievement of global environmental governance, but it has also been coined a ‘masterpiece of ambiguity’. This book analyses the role of a variety of actors in the emergence of the Nagoya Protocol and provides an up-to-date assessment of the core features of the architecture of global ABS governance. This book offers a central resource regarding ABS governance for those working on and interested in global environmental governance. This is achieved by focusing on two broad themes of the wider research agenda on global environmental governance, namely architecture and agency. Furthermore, individual chapter contributions relate and link ABS governance to other prominent debates in the field, such as institutional complexes, compliance, market-based approaches, EU leadership, the role of small states, the role of non-state actors and more. Partly due to its seeming technical complexity, ABS governance has so far not been at the centre of attention of scholars and practitioners of global environmental governance. In this book, care is taken to provide an accessible account of key functional features of the governance system which enables non-specialists to gain a grasp on the main issues involved, allowing the issue of ABS governance to move centre-stage and be more fully recognised in discussions on global environmental governance.
Genetic Suspects
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Author : Richard Hindmarsh
language : en
Publisher: Cambridge University Press
Release Date : 2010-08-12
Genetic Suspects written by Richard Hindmarsh and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010-08-12 with Medical categories.
As DNA forensic profiling and databasing become established as key technologies in the toolbox of the forensic sciences, their expanding use raises important issues that promise to touch everyone's lives. In an authoritative global investigation of a diverse range of countries, including those at the forefront of these technologies' development and use, this book identifies and provides critical reflection upon the many issues of privacy; distributive justice; DNA information system ownership; biosurveillance; function creep; the reliability of collection, storage and analysis of DNA profiles; the possibility of transferring medical DNA information to forensics databases; and democratic involvement and transparency in governance, an emergent key theme. This book is timely and significant in providing the essential background and discussion of the ethical, legal and societal dimensions for academics, practitioners, public interest and criminal justice organisations, and students of the life sciences, law, politics, and sociology.
The Connected Self
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Author : Heather Widdows
language : en
Publisher: Cambridge University Press
Release Date : 2013-01-17
The Connected Self written by Heather Widdows and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-01-17 with Law categories.
Heather Widdows suggests new ethical frameworks for genetic governance, to replace those that offer little protection and permit significant injustice.
Genetic Testing And The Governance Of Risk In The Contemporary Economy
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Author : Lara Khoury
language : en
Publisher: Springer Nature
Release Date : 2020-10-01
Genetic Testing And The Governance Of Risk In The Contemporary Economy written by Lara Khoury and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-10-01 with Law categories.
This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to provide a comparative analysis of how various legal systems are tackling the challenges produced by the legal aspects of genetic testing in insurance and employment. They cover the diverse set of norms that surround this issue, and share insights into relevant international, regional and national incursions into the field. By doing so, the authors offer a basis for comparative reflection, including on whether transnational standard setting might be useful or necessary for the legal aspects of genetic testing as they relate to the insurance and employment contexts. The respective texts cover a broad range of topics, including the prevalence of genetic testing in the contexts of insurance and employment, and policy factors that might affect this prevalence, such as the design of national health or social insurance systems, of private insurance schemes or the availability of low-cost direct-to-consumer genetic testing. Further, the field of genetics is gaining in importance at the international and regional levels. Relevant concepts – mainly genetic tests and genetic data/information – have been internationally defined, and these definitions have influenced definitions adopted nationally. International law also recognizes a “special status” for human genetic data. The authors therefore also consider these definitions and the recognition of the special status of human genetic data within regional and national legal orders. They investigate the range of norms that specifically address the use of genetic testing in employment and insurance, encompassing international sources – including human rights norms – that may be binding or non-binding, as well national statutory, regulatory and soft-law mechanisms. Accordingly, some of the texts examine general frameworks relevant to genetic testing in each country, including those that stem from general anti-discrimination rules and norms protecting rights to autonomy, self-determination, confidentiality and privacy. In closing, the authors provide an overview of the efficiency of their respective legal regimes’ approaches – specific and generalist – to genetic testing or disclosure of genetic information in the employment or insurance contexts, including the effect of lack of legal guidance. In this regard, some of the authors highlight the need for transnational action in the field and make recommendation for future legal developments.