Handling Sickle Cell Disease
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Handling Sickle Cell Disease
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Author : Yvette LaPierre
language : en
Publisher: ABDO
Release Date : 2021-08-01
Handling Sickle Cell Disease written by Yvette LaPierre and has been published by ABDO this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-08-01 with Juvenile Nonfiction categories.
This book explores sickle cell disease and how people with the disease manage it. It examines how sickle cell affects daily life, work, and school, and it explains the latest treatments available. Features include a glossary, web resources, source notes, and an index. Aligned to Common Core Standards and correlated to state standards. Essential Library is an imprint of Abdo Publishing, a division of ABDO.
Managing Sickle Cell Disease
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Author : Shirley Hill
language : en
Publisher: Temple University Press
Release Date : 2003-04-09
Managing Sickle Cell Disease written by Shirley Hill and has been published by Temple University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-04-09 with Health & Fitness categories.
As many as 30,000 African Americans have sickle cell disease (SCD). Though the political activism of the 1960s and a major 1970s health campaign spurred demands for testing, treatment, and education programs, little attention has been given to how families cope with SCD. This first study to give SCD a social, economic, and cultural context documents the daily lives of families living with this threatening illness. Specifically, Shirley A. Hill examines how low-income African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.The 23 mostly single mothers Hill studies survive in an inner-city world of social inequality. Despite limited means, they actively participate, create, and define the social world they live in, their reality shaped by day-to-day caregiving. These women overcome obstacles by utilizing such viable alternatives as sharing child care with relatives within established kinship networks.Highlighting the role of class, race, and gender in the illness experience, Hill interprets how these women reject, redefine, or modify the objective scientific facts about SCD. She acknowledges and explains the relevance of child-bearing and motherhood to African American women's identity, revealing how the revelation of the SCD trait or the diagnosis of one child often does not affect a woman's interpretation of her reproductive rights.
Sickle Cell Pain
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Author : Samir K. Ballas
language : en
Publisher: Lippincott Williams & Wilkins
Release Date : 2015-06-01
Sickle Cell Pain written by Samir K. Ballas and has been published by Lippincott Williams & Wilkins this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-06-01 with Medical categories.
Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Sickle Cell Disease In Clinical Practice
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Author : Jo Howard
language : en
Publisher: Springer
Release Date : 2015-02-12
Sickle Cell Disease In Clinical Practice written by Jo Howard and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-02-12 with Medical categories.
Sickle Cell Disease is the most common genetic disease world wide and in the UK. It has marked geographical variation in its distribution in the UK, with a concentration in London and other major conurbations (Birmingham and Manchester). In these areas, specialist centres have become established offering expert, up to date care for both inpatients and out patients with Sickle Cell Disease. Although patient numbers are increasing outside these areas, the expertise of health professionals can be patchy. This book aims to provide a user friendly, accessible resource for areas with smaller numbers of patients, to allow them to provide equitable care with the larger well established centres. Sickle Cell Disease can be associated with acute life threatening complications, when clear, easily available advice is needed, and with chronic long term complications which may need liaison with other health professionals. Clear treatment protocols for all the common complications of sickle cell disease, are outlined here, with summaries of key evidence and references.
A Parent S Guide To Managing Sickle Cell Disease
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Author : Lola Oni
language : en
Publisher:
Release Date : 2021
A Parent S Guide To Managing Sickle Cell Disease written by Lola Oni and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021 with Parents of chronically ill children categories.
Addressing Sickle Cell Disease
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2020-12-22
Addressing Sickle Cell Disease written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-12-22 with Medical categories.
Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.
Sickle Cell Disease
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Author : United States. Sickle Cell Disease Guideline Panel
language : en
Publisher:
Release Date : 1993
Sickle Cell Disease written by United States. Sickle Cell Disease Guideline Panel and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1993 with Anemia in children categories.
Sickle Cell Disease
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Author : Jeanne A. Smith
language : en
Publisher: DIANE Publishing
Release Date : 1997-08
Sickle Cell Disease written by Jeanne A. Smith and has been published by DIANE Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 1997-08 with categories.
Developed by a private-sector panel of health care experts and a consumer representative, this clinical practice guideline sets forth a comprehensive program for identifying, diagnosing, and treating newborns and infants with sickle cell disease and recommends education and counseling strategies for their parents. Addresses neonatal screening and provides specific recommendations on the newborn population to be screened, laboratory methods for screening and diagnosing the disease, and medical management of patients. Includes tables, glossary, references, and sources for patient education materials.
A Parent S Guide To Managing Sickle Cell Disease
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Author : Lola Oni
language : en
Publisher:
Release Date : 2012
A Parent S Guide To Managing Sickle Cell Disease written by Lola Oni and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012 with Sickle cell anemia in children categories.
Sickle Cell Disease
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Author : Baba P.D. Inusa
language : en
Publisher: BoD – Books on Demand
Release Date : 2016-11-10
Sickle Cell Disease written by Baba P.D. Inusa and has been published by BoD – Books on Demand this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-11-10 with Medical categories.
This book addresses a wide range of clinically relevant topics and issues in sickle cell disease. This is written by experts in their own field offering a robust, engaging discussion about the presentations and mechanisms of actions in the multiple complications associated with sickle cell disease. This first of the series addresses pain, which is considered the hallmark of sickle cell presentation. It looks at the basic mechanism of pain in sickle cell disease. A more detailed review of precision medicine gives a clear well laid out presentation that is incisive and yet gives in-depth detail relevant to both the clinician and the researcher in the basic laboratory. The same pattern is shown in the discussion on respiratory, cardiac and neurological complications. The 14 chapters also include an overview of sickle cell disease especially in the paediatric age. The content is organized into well-designed broad sections on overview regarding diagnosis including point of care and the role of digital apps in patient management. A key aspect of the book is the opportunity it affords expert physicians to express well-reasoned opinions regarding complex issues in sickle cell disease. The readership would find that it provides a well-described, concise and immediate applicable answers to complex questions. This is highly recommended for scientists and clinicians alike.