Healthcare Delivery For Children With Medical Complexity

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Healthcare Delivery For Children With Medical Complexity

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Author : Nancy Murphy
language : en
Publisher: Springer Nature
Release Date : 2025-07-01

Healthcare Delivery For Children With Medical Complexity written by Nancy Murphy and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-07-01 with Medical categories.

This book describes the state of the art of pediatric complex care, sharing the authors' decades of experience in an academic health center to illustrate points. The authors are pediatric generalist and subspecialist providers, among others, who care for children with medical complexity in a Pediatric Complex Care program. Children with medical complexity (CMC) are a small yet impactful pediatric population, a subset of children with special healthcare needs that include multi-system, non-categorical, chronic conditions, high resource and technology dependencies, medical fragility, and functional impairments. CMC do not fit into traditional systems of care. They require the continuous collaboration of pediatric subspecialists, community and public health partners, and family caregivers. The field of Pediatric Complex Care is rapidly evolving, yet lacks a well-prepared workforce built on clear educational competencies and clinical guidelines. In this compact volume, the authors review models of care for CMC, and how these models intersect with larger public health systems, dependent on collaborative networks of community-based and family partnerships. They explore ethical considerations, including implications for policy and practice. Among the topics covered are: The Specialty and Scope of Complex Care Pediatrics Ethical Considerations in the Care of Children with Medical Complexity Implications for Policy and Practice Healthcare Delivery for Children with Medical Complexity: The State of the Art and Future Directions is an essential resource for all medical professionals who care for CMC, public policy makers, medical educators, healthcare leaders, and community partners and stakeholders.

Understanding And Managing The Complexity Of Healthcare

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Author : William B. Rouse
language : en
Publisher: MIT Press
Release Date : 2014-07-03

Understanding And Managing The Complexity Of Healthcare written by William B. Rouse and has been published by MIT Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-07-03 with Medical categories.

An argument that understanding healthcare delivery as a complex adaptive system will help us design a system that yields better health outcomes. Breakthroughs in medical science, innovations in medical technologies, and improvements in clinical practices occur today at an increasingly rapid rate. Yet because of a fragmented healthcare delivery system, many Americans are unable to benefit from these developments. How can we design a system that can provide high-quality, affordable healthcare for everyone? In this book, William Rouse and Nicoleta Serban introduce concepts, principles, models, and methods for understanding, and improving, healthcare delivery. Approaching the topic from the perspectives of engineering and statistics, they argue that understanding healthcare delivery as a complex adaptive system will help us design a system that is more efficient, effective, and equitable. The authors use multilevel simulation models as a quantitative tool for evaluating alternate ways of organizing healthcare delivery. They employ this approach, for example, in their discussions of affordability, a prevention and wellness program, chronic disease management, and primary care accessibility for children in the Medicaid program. They also consider possible benefits from a range of technologies, including electronic health records and telemedicine; data mining as an alternative to randomized trials; conceptual and analytical methodologies that address the complexity of the healthcare system; and how these principles, models, and methods can enable transformational change.

High Performance Healthcare Using The Power Of Relationships To Achieve Quality Efficiency And Resilience

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Author : Jody Hoffer Gittell
language : en
Publisher: McGraw Hill Professional
Release Date : 2009-04-17

High Performance Healthcare Using The Power Of Relationships To Achieve Quality Efficiency And Resilience written by Jody Hoffer Gittell and has been published by McGraw Hill Professional this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-04-17 with Business & Economics categories.

In her groundbreaking book The Southwest Airlines Way, Jody Hoffer Gittell revealed the management secrets of the company Fortune magazine called “the most successful airline in history.” Now, the bestselling business author explains how to apply those same principles in one of our nation’s largest, most important, and increasingly complex industries. High Performance Healthcare explains the critical concept of “relational coordination”—coordinating work through shared goals, shared knowledge, and mutual respect. Because of the way healthcare is organized, weak links exist throughout the chain of communication. Gittell clearly demonstrates that relational coordination strengthens those weak links, enabling providers to deliver high quality, efficient care to their patients. Using Gittell’s innovative management methods, you will improve quality, maximize efficiency, and compete more effectively. High Performance Healthcare walks you step by step through the process of: Identifying weak areas of relational coordination within your organization Transforming work practices that are creating barriers to relational coordination Building a high performance work system to foster consistent relational coordination across all disciplines The book includes case studies illustrating how some healthcare organizations are already transforming themselves using Gittell’s proven tools. It concludes by identifying industry-level obstacles to high performance healthcare and showing how individual organizations and their leaders can support sweeping change at the highest levels. Policy changes and increased access to care will not alone answer the healthcare industry’s problems. Timely, accurate, problem-solving communication that crosses all organizational boundaries is a powerful response to business as usual. High Performance Healthcare explains exactly how to achieve this crucial dynamic, providing a long-awaited cure to an industry in crisis.

Icf

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Author : Olaf Kraus de Camargo
language : en
Publisher: Mac Keith Press
Release Date : 2019-03-25

Icf written by Olaf Kraus de Camargo and has been published by Mac Keith Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-03-25 with Medical categories.

From time to time in the field of healthcare, an exciting new development emerges to challenge and potentially transform thinking and behaviour. The International Classification of Functioning, Disability and Health (ICF) and its framework is undoubtedly one of these transformative resources and is increasingly widely used in the field of childhood disability. This accessible handbook introduces the ICF to professionals working with children with disabilities and their families. It contains an overview of the elements of the ICF but focusses on practical applications, including how the ICF framework can be used with children, families and carers to formulate health and management goals. The Appendices contain case studies for individuals and interdisciplinary teams to work through and discuss, alongside other resources, and a copy of an ICF code set for children and youth is available to download online. Importantly, the book includes a chapter written by a parent of a child with impairments, illustrating the potential diverse applications of the ICF framework. The ICF’s relationship with patient-reported outcome measures (PROMs) and future alternatives to the current ICF framework are also examined. Clinicians, paediatricians and other healthcare providers in neurodisability, community-based health professionals, policy makers and the families and carers of children with disabilities will find this title an indispensable resource.

Opportunities For Improving Programs And Services For Children With Disabilities

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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2018-08-06

Opportunities For Improving Programs And Services For Children With Disabilities written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-08-06 with Medical categories.

Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Vibrant And Healthy Kids

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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2019-12-27

Vibrant And Healthy Kids written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-12-27 with Medical categories.

Children are the foundation of the United States, and supporting them is a key component of building a successful future. However, millions of children face health inequities that compromise their development, well-being, and long-term outcomes, despite substantial scientific evidence about how those adversities contribute to poor health. Advancements in neurobiological and socio-behavioral science show that critical biological systems develop in the prenatal through early childhood periods, and neurobiological development is extremely responsive to environmental influences during these stages. Consequently, social, economic, cultural, and environmental factors significantly affect a child's health ecosystem and ability to thrive throughout adulthood. Vibrant and Healthy Kids: Aligning Science, Practice, and Policy to Advance Health Equity builds upon and updates research from Communities in Action: Pathways to Health Equity (2017) and From Neurons to Neighborhoods: The Science of Early Childhood Development (2000). This report provides a brief overview of stressors that affect childhood development and health, a framework for applying current brain and development science to the real world, a roadmap for implementing tailored interventions, and recommendations about improving systems to better align with our understanding of the significant impact of health equity.

Ensuring Quality And Accessible Care For Children With Disabilities And Complex Health And Educational Needs

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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-10-24

Ensuring Quality And Accessible Care For Children With Disabilities And Complex Health And Educational Needs written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-10-24 with Social Science categories.

Children with disabilities and complex medical and educational needs present a special challenge for policy makers and practitioners. These children exhibit tremendous heterogeneity in their conditions and needs, requiring a varied array of services to meet those needs. Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs. The unmet needs of children with disabilities and complex medical and educational needs can cause great suffering for these children and for those who love and care for them. To examine how systems can be configured to meet the needs of children and families as they struggle with disabilities and complex health and educational needs, the National Academies of Sciences, Engineering, and Medicine held a workshop in December 2015. The goal of the workshop was to highlight the main barriers and promising solutions for improving care and outcome of children with complex medical and educational needs. Workshop participants examined prevention, care, service coordination, and other topics relevant to children with disabilities and complex health and educational needs, along with their families and caregivers. More broadly, the workshop seeks actionable understanding on key research questions for enhancing the evidence base; promoting and sustaining the quality, accessibility, and use of relevant programs and services; and informing relevant policy development and implementation. By engaging in dialogue to connect the prevention, treatment, and implementation sciences with settings where children are seen and cared for, the forum seeks to improve the lives of children by improving the systems that affect those children and their families. This publications summarizes the presentations and discussions from the workshop.

Challenges Of Pediatric Practice In Rural America An Issue Of Pediatric Clinics Of North America

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Author : Mary C. Ottolini
language : en
Publisher: Elsevier Health Sciences
Release Date : 2024-11-27

Challenges Of Pediatric Practice In Rural America An Issue Of Pediatric Clinics Of North America written by Mary C. Ottolini and has been published by Elsevier Health Sciences this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-11-27 with Medical categories.

In this issue of Pediatric Clinics of North America, guest editor Dr. Mary C. Ottolini brings her considerable expertise to the topic of Challenges of Pediatric Practice in Rural America. Nearly one in five children live in rural America, and children and adolescents living in rural communities experience significant health disparities compared to those in urban areas. This issue explores current, relevant topics related to the challenges of providing care to children and adolescents in rural locations. - Contains 13 relevant, practice-oriented topics including rural community approaches to address childhood obesity; mental health challenges in rural environments; substance abuse and neonatal opiate withdrawal syndrome in rural environments; transport challenges; telemedicine; pediatric injuries; and more. - Provides in-depth clinical reviews on the challenges of pediatric practice in rural America, offering actionable insights for clinical practice. - Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create clinically significant, topic-based reviews.

Caring For The Ventilator Dependent Child

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Author : Laura M. Sterni
language : en
Publisher: Humana Press
Release Date : 2016-07-12

Caring For The Ventilator Dependent Child written by Laura M. Sterni and has been published by Humana Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-07-12 with Medical categories.

This book is an important new resource for clinicians caring for ventilator dependent children, who often have complex health care needs, are supported by advanced technology and are at high-risk of serious complications. Despite the complicated health care needs of children who rely on chronic respiratory support, there are few guidelines and little evidence available to guide the clinicians who care for these patients. This book covers the many aspects involved in the care of these complex children, with input from experts in the fields of pediatric pulmonology, intensive care, ethics, respiratory therapy, and nursing. In depth chapters provide an introduction to the use of chronic invasive and non-invasive ventilation in children and describe and review what is known about methods of delivering ventilator support, care of the chronically ventilated patient in the community , use of chronic ventilator support in patients with disorders commonly leading to respiratory failure and outcomes for patients and their caregivers. This book is intended to be useful not only for pediatric pulmonologists, but also for intensivists, cardiologists, physical medicine/rehabilitation specialists, nurses, respiratory therapists and the primary care physicians involved in the complexities of managing care for this unique group of special needs children.

Examining The Advancing Care For Exceptional Kids Act

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Author : United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health
language : en
Publisher:
Release Date : 2017

Examining The Advancing Care For Exceptional Kids Act written by United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with Child health services categories.