Help Me What I Wish Families Knew About Me Cfs
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Help Me What I Wish Families Knew About Me Cfs
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Author : Dr Cherla Meisterman Lisw, PhD
language : en
Publisher:
Release Date : 2020-05-28
Help Me What I Wish Families Knew About Me Cfs written by Dr Cherla Meisterman Lisw, PhD and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-05-28 with categories.
HELP ME! What I Wish Families Knew About ME/CFS, subtitled, MYALGIC ENCEPHALOMYELITIS (ME) Also Known As: CHRONIC FATIGUE SYNDROME by Rebecca Susan Culbertson, MSW/LISW. Foreword by Dr. Cherla Meisterman, PhD, LISW. HELP ME! This book pleads for families, partners and friends to educate themselves about this horrific illness that literally rips families apart. Divorce rates are over 75% for couples when a spouse has been diagnosed with ME/CFS. A frightening statistic. This book is written for those who have been diagnosed with Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia, or any other chronic debilitating disease. It is written for those who are in limbo, suffering still without a diagnosis, and this book is also written to educate families and friends of persons with ME/CFS. This book will help you learn how to maintain your dignity while dealing with doctors who doubt your illness. You will discover self reporting charts later in this book for use with family, physicians, employers and others. It is difficult to maintain your self confidence if persons in your life do not understand the current state of your functioning. It is of vital importance to educate those around you, when you are able. This book can be a tool to that end. The book provides information about when and how to apply for disability insurance you certainly deserve. Are you watching your former financial security implode right before your eyes? Learn how to deal with creditors and how to manage financial debt with less stress. The book will teach you techniques that the author has used in her Family Therapy Practice with patients in living lives of positivity, seeking happiness, and practicing humility. Learn methods of living with ME/CFS while still setting life goals to realistically achieve your dreams. And importantly, the book is written from the viewpoint of having been diagnosed with ME/CFS herself, and then filtered through her professional perspective as a psychotherapist. Michael McVicker a Prevention Specialist and Family Therapist, concludes this book, (in Chapter 26) with THE IMPORTANCE OF HAVING A PERSONAL SUPPORT SYSTEM. Michael uses true life storytelling mixed with humor to inform families from his section titled, A VIEW FROM THE SIDELINE. He tells his story from watching (at times helplessly) and supporting his spouse, the author of this book, through the misery this illness brings. He also writes through the lens of being a stepfather to their two teenage sons, and watching their ascent into adulthood. He deals with topics not currently addressed in other ME/CFS literature currently available, including sex and intimacy. Divorce is seldom the most ecological solution to this real life crisis. Divorce only exacerbates the familial problems. Dr. Cherla Meisterman, PhD, LISW, (Dr. Cherla's Musings, Chapter 18) offers methods of treating patients with ME/CFS, and attempts to invite other professional therapists to join her in treating this very needy population. With divorce rates so high, questions arise about why more ME/CFS patients do not seek psychotherapy treatment. To me, as a ME/CFS sufferer, it is very clear. Treatment is financially prohibitive, and more importantly persons with this diagnosis have been told verbally and nonverbally, over and over "it's all in your head". So why would any ME/CFS patient want to go to psychotherapy? ("Why go and prove the wrong headed physicians correct - "it's all in my head"?) If the patient is supported by his or her partner, and if the patient feels believed that their illness is real, then psychotherapy may become an option that could potentially save relationships and lower divorce rates. Dr. Cherla addresses how to go about selecting the best therapist for you, and things to consider prior to making that phone call. There are worksheets included for your written expression, and for use with physicians, family members, and others.
Chronic Fatigue Syndrome Me
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Author : Elizabeth Turp
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2011-04-15
Chronic Fatigue Syndrome Me written by Elizabeth Turp and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-04-15 with Health & Fitness categories.
People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.
Can I Tell You About Me Chronic Fatigue Syndrome
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Author : Jacqueline Rayner
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2014-01-21
Can I Tell You About Me Chronic Fatigue Syndrome written by Jacqueline Rayner and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-01-21 with Health & Fitness categories.
Meet Mollie – a woman with an illness called ME (Myalgic Encephalomyelitis) or CFS (Chronic Fatigue Syndrome), and her family, Mike, Ellie and Eric. Mollie and her family help readers to understand what ME/CFS is, what it is like to have it and how it can affect their family life. Mollie can't always do things that other mums do because of her illness, which can sometimes be frustrating, but they share strategies that help them all to cope. The family also explain how ME/CFS can affect different people in different ways. This illustrated book is an ideal introduction to this often misunderstood condition. It shows family, friends and anyone who knows someone with the condition how they can support someone with ME/CFS, and their family.
Wish It Wasn T M E
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Author : Michelle Flatt
language : en
Publisher: Xlibris Corporation
Release Date : 2013-05-28
Wish It Wasn T M E written by Michelle Flatt and has been published by Xlibris Corporation this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-05-28 with Biography & Autobiography categories.
I hope that if you have Myalgic Encephalomyelitis (ME) (or know someone who has) you will find this book useful. M.E. can affect different people in different ways. Some people are able to carry on with a normal life as long as they pace themselves, others are housebound or even bedridden. This book is about my story, how I developed M.E. and how I have tried to search for an answer and treatment for the symptoms I experience.
Lighting Up A Hidden World
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Author : Valerie Free
language : en
Publisher: FriesenPress
Release Date : 2016-09-30
Lighting Up A Hidden World written by Valerie Free and has been published by FriesenPress this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-09-30 with Health & Fitness categories.
The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition “chronic fatigue syndrome” which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.
Knowing Me
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Author : Caeia March
language : en
Publisher: Women's Press (UK)
Release Date : 1998
Knowing Me written by Caeia March and has been published by Women's Press (UK) this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with Fiction categories.
In this anthology, women affected by Myalgic Encephalomyelitis and Chronic Fatigue Syndrome recall their experiences being diagnosed and trying to cope with the illness, as well as its effect on their family and friends.
An Adolescent S Guide To Me Cfs
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Author : Vidhima Shetty
language : en
Publisher:
Release Date : 2018-08
An Adolescent S Guide To Me Cfs written by Vidhima Shetty and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-08 with Medical categories.
A brief book on ME to provide young people and their parents an excellent overview of what this disease is including its history and possible causes. While there is still no cure, there are coping strategies that can help patients better adjust to one of the more debilitating illnesses that affect thousands of youth in our country.
Adolescence And Myalgic Encephalomyelitis Chronic Fatigue Syndrome
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Author : Roberto Patarca Montero
language : en
Publisher: CRC Press
Release Date : 2001-01-03
Adolescence And Myalgic Encephalomyelitis Chronic Fatigue Syndrome written by Roberto Patarca Montero and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-01-03 with Health & Fitness categories.
How thorough is your understanding of ME/CFS? Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Journeys with the Dragon examines the firsthand experiences of four young women stricken with this stigmatized chronic illness and offers advice and support for the victims, as well as for their family and friends. The book focuses on the ways they cope with a stigmatizing chronic illness during adolescence and the impact it has on their lives. It offers a personal “guide to survival” that will appeal to adolescent patients and parents, and it provides a window into the psychosocial implications of illness that is well-suited to professionals. Providing a description of symptoms that vary in intensity every day, such as fatigue, migraine headaches, muscle pain and/or weakness, cognitive dysfunction, and more, this valuable book also gives suggestions on how to cope with this disease as it looks at these patients’experiences from a psychological perspective. You will find reassurance, support, and an increase in knowledge as you become familiar with ME/CFS, and you will learn how real people are living with and managing this illness with strength and courage. Comprehensive and compelling, Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will appeal both to experts and novices. A chronology of the participants’experiences in their own words is followed by scientific discussion of an inductively derived theory that applies to that patient. Some of the areas that Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome focuses on are: the role of stigma for patients and their families family interaction chronic illness management peer concerns development of the self interaction with broader institutions such as medical, educational, and insurance/government disability programs Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome also addresses issues and topics that need to be explored in the future in order to help individuals and families lead easier and more independent lives.
Advances In Me Cfs Research And Clinical Care
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Author : Kenneth J. Friedman
language : en
Publisher: Frontiers Media SA
Release Date : 2019-11-25
Advances In Me Cfs Research And Clinical Care written by Kenneth J. Friedman and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-11-25 with categories.
In 2015, the Institute of Medicine (USA) issued a report critical of the research effort and clinical care for ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) formerly known as Chronic Fatigue Syndrome (CFS) and Chronic Fatigue Immune Deficiency Syndrome (CFIDS). While worldwide investigation into the cause and nature of ME/CFS remains disproportionately small, and treatment remains symptomatic and controversial, modest research continues in all aspects of this disease: epidemiology, possible infectious origins and other triggers, possible involvement of genetics, metabolism, and microbiome, influence of co-morbid conditions, and more. Treatment of patients consists of providing symptomatic relief. Guidance in doing so is provided for the clinician. School-age children require not only treatment but, as revealed in a 25-year retrospective study, continued engagement with peers and social activity. This e-book explores the breadth and depth of current ME/CFS research and clinical care. Its impact for other chronic, complex illnesses should not be overlooked.
Finding Strength In Weakness
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Author : Lynn Vanderzalm
language : en
Publisher: Zondervan
Release Date : 1995
Finding Strength In Weakness written by Lynn Vanderzalm and has been published by Zondervan this book supported file pdf, txt, epub, kindle and other format this book has been release on 1995 with Health & Fitness categories.
Chronic Fatigue Immune Deficiency Syndrome (CFIDS) is not the 'Yuppie flu.' It is a debilitating, incurable illness that hijacks the body's immune system and drains the life out of its victims, often leaving them incapacitated for years. While researchers around the globe explore the causes of treatments for CFIDS, the men, women and children who suffer with the illness grapple with questions like: -Will I ever be normal again? -Of what value am I now that I can't work or go to school anymore? -How will CFIDS affect my marriage and my family? How will CFIDS affect my ability even to consider marriage or having children? -How do I glorify God in the midst of a debilitating illness and pain? Lynn Vanderzalm and her teenage daughter, Alisa, have battled CFIDS for over seven years. In Finding Strength in Weakness, Vanderzalm shares her family's struggles and questions-along with those of 70 other men, women, and children-while offering direction, encouragement, and hope to the countless families who battle with the 'mystery illness of the nineties.'