Improving Access To And Confidentiality Of Research Data
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Improving Access To And Confidentiality Of Research Data
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2000-09-11
Improving Access To And Confidentiality Of Research Data written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000-09-11 with Social Science categories.
Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risksâ€"both absolute and relativeâ€"created by researchers and research data, as well as by other data users and other types of data.
Expanding Access To Research Data
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2005-12-11
Expanding Access To Research Data written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2005-12-11 with Computers categories.
Policy makers need information about the nationâ€"ranging from trends in the overall economy down to the use by individuals of Medicareâ€"in order to evaluate existing programs and to develop new ones. This information often comes from research based on data about individual people, households, and businesses and other organizations, collected by statistical agencies. The benefit of increasing data accessibility to researchers and analysts is better informed public policy. To realize this benefit, a variety of modes for data accessâ€" including restricted access to confidential data and unrestricted access to appropriately altered public-use dataâ€"must be used. The risk of expanded access to potentially sensitive data is the increased probability of breaching the confidentiality of the data and, in turn, eroding public confidence in the data collection enterprise. Indeed, the statistical system of the United States ultimately depends on the willingness of the public to provide the information on which research data are based. Expanding Access to Research Data issues guidance on how to more fully exploit these tradeoffs. The panel's recommendations focus on needs highlighted by legal, social, and technological changes that have occurred during the last decade.
Expanding Access To Research Data
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2005-11-11
Expanding Access To Research Data written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2005-11-11 with Computers categories.
Policy makers need information about the nationâ€"ranging from trends in the overall economy down to the use by individuals of Medicareâ€"in order to evaluate existing programs and to develop new ones. This information often comes from research based on data about individual people, households, and businesses and other organizations, collected by statistical agencies. The benefit of increasing data accessibility to researchers and analysts is better informed public policy. To realize this benefit, a variety of modes for data accessâ€" including restricted access to confidential data and unrestricted access to appropriately altered public-use dataâ€"must be used. The risk of expanded access to potentially sensitive data is the increased probability of breaching the confidentiality of the data and, in turn, eroding public confidence in the data collection enterprise. Indeed, the statistical system of the United States ultimately depends on the willingness of the public to provide the information on which research data are based. Expanding Access to Research Data issues guidance on how to more fully exploit these tradeoffs. The panel's recommendations focus on needs highlighted by legal, social, and technological changes that have occurred during the last decade.
Innovations In Federal Statistics
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2017-04-21
Innovations In Federal Statistics written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-04-21 with Social Science categories.
Federal government statistics provide critical information to the country and serve a key role in a democracy. For decades, sample surveys with instruments carefully designed for particular data needs have been one of the primary methods for collecting data for federal statistics. However, the costs of conducting such surveys have been increasing while response rates have been declining, and many surveys are not able to fulfill growing demands for more timely information and for more detailed information at state and local levels. Innovations in Federal Statistics examines the opportunities and risks of using government administrative and private sector data sources to foster a paradigm shift in federal statistical programs that would combine diverse data sources in a secure manner to enhance federal statistics. This first publication of a two-part series discusses the challenges faced by the federal statistical system and the foundational elements needed for a new paradigm.
Improving Access To And Confidentiality Of Research Data
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2000-08-11
Improving Access To And Confidentiality Of Research Data written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000-08-11 with Social Science categories.
Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risksâ€"both absolute and relativeâ€"created by researchers and research data, as well as by other data users and other types of data.
Protecting Data Privacy In Health Services Research
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2001-01-13
Protecting Data Privacy In Health Services Research written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-01-13 with Computers categories.
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
Improving Access To Data While Protecting Confidentiality
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Author : George T. Duncan
language : en
Publisher:
Release Date : 1989
Improving Access To Data While Protecting Confidentiality written by George T. Duncan and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1989 with Confidential communications categories.
Private Lives And Public Policies
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Author : Panel on Confidentiality and Data Access
language : en
Publisher: National Academies Press
Release Date : 1993-01-15
Private Lives And Public Policies written by Panel on Confidentiality and Data Access and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1993-01-15 with Computers categories.
Americans are increasingly concerned about the privacy of personal data--yet we demand more and more information for public decision making. This volume explores the seeming conflicts between privacy and data access, an issue of concern to federal statistical agencies collecting the data, research organizations using the data, and individuals providing the data. A panel of experts offers principles and specific recommendations for managing data and improving the balance between needed government use of data and the privacy of respondents. The volume examines factors such as the growth of computer technology, that are making confidentiality an increasingly critical problem. The volume explores how data collectors communicate with data providers, with a focus on informed consent to use data, and describes the legal and ethical obligations data users have toward individual subjects as well as toward the agencies providing the data. In the context of historical practices in the United States, Canada, and Sweden, statistical techniques for protecting individuals' identities are evaluated in detail. Legislative and regulatory restraints on access to data are examined, including a discussion about their effects on research. This volume will be an important and thought-provoking guide for policymakers and agencies working with statistics as well as researchers and concerned individuals.
Beyond The Hipaa Privacy Rule
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2009-03-24
Beyond The Hipaa Privacy Rule written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-03-24 with Computers categories.
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Privacy In Statistical Databases
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Author : Josep Domingo-Ferrer
language : en
Publisher: Springer
Release Date : 2004-06-30
Privacy In Statistical Databases written by Josep Domingo-Ferrer and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2004-06-30 with Computers categories.
Privacy in statistical databases is about ?nding tradeo?s to the tension between the increasing societal and economical demand for accurate information and the legal and ethical obligation to protect the privacy of individuals and enterprises, which are the source of the statistical data. Statistical agencies cannot expect to collect accurate information from individual or corporate respondents unless these feel the privacy of their responses is guaranteed; also, recent surveys of Web users show that a majority of these are unwilling to provide data to a Web site unless they know that privacy protection measures are in place. “Privacy in Statistical Databases2004” (PSD2004) was the ?nal conference of the CASC project (“Computational Aspects of Statistical Con?dentiality”, IST-2000-25069). PSD2004 is in the style of the following conferences: “Stat- tical Data Protection”, held in Lisbon in 1998 and with proceedings published by the O?ce of O?cial Publications of the EC, and also the AMRADS project SDC Workshop, held in Luxemburg in 2001 and with proceedings published by Springer-Verlag, as LNCS Vol. 2316. The Program Committee accepted 29 papers out of 44 submissions from 15 di?erentcountriesonfourcontinents.Eachsubmittedpaperreceivedatleasttwo reviews. These proceedings contain the revised versions of the accepted papers. These papers cover the foundations and methods of tabular data protection, masking methods for the protection of individual data (microdata), synthetic data generation, disclosure risk analysis, and software/case studies.