Integrating Approaches To Privacy Across The Research Lifecycle
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Integrating Approaches To Privacy Across The Research Lifecycle
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Author :
language : en
Publisher:
Release Date : 2014
Integrating Approaches To Privacy Across The Research Lifecycle written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Longitudinal method categories.
"This paper explores interdisciplinary approaches to privacy in long-term longitudinal studies of human subjects. Long-term longitudinal studies collect, at multiple points over a long period of time, highly-specific and often sensitive data describing the health, socioeconomic, or behavioral characteristics of human subjects. The value of such studies lies in part in their ability to link a set of behaviors and changes to each individual, but these factors tend to make the combination of observable characteristics associated with each subject unique and potentially identifiable. Using the research information lifecycle as a framework, the paper discusses the defining features of long-term longitudinal studies and the associated challenges for researchers tasked with collecting and analyzing such data while protecting the privacy of human subjects. It also describes the disclosure risks and common legal and technical approaches currently used to manage confidentiality in longitudinal data. Finally, it identifies urgent problems and areas for future research to advance the integration of various methods for preserving confidentiality in research data."--Publisher website.
Our Bodies Our Data
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Author : Adam Tanner
language : en
Publisher: Beacon Press
Release Date : 2017-01-10
Our Bodies Our Data written by Adam Tanner and has been published by Beacon Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-01-10 with Medical categories.
How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomes Hidden to consumers, patient medical data has become a multibillion-dollar worldwide trade industry between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of the prescription you recently filled, your hospital records, insurance claims, blood-test results, and more, stripped of your name but possibly with identifiers such as year of birth, gender, and doctor. As computing grows ever more sophisticated, patient dossiers become increasingly vulnerable to reidentification and the possibility of being targeted by identity thieves or hackers. Paradoxically, comprehensive electronic files for patient treatment—the reason medical data exists in the first place—remain an elusive goal. Even today, patients or their doctors rarely have easy access to comprehensive records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book tells the human, behind-the-scenes story of how such a system evolved internationally. It begins with New York advertising man Ludwig Wolfgang Frohlich, who founded IMS Health, the world’s dominant health-data miner, in the 1950s. IMS Health now gathers patient medical data from more than 45 billion transactions annually from 780,000 data feeds in more than 100 countries. Our Bodies, Our Data uncovers some of Frohlich’s hidden past and follows the story of what happened in the following decades. This is both a story about medicine and medical practice, and about big business and maximizing profits, and the places these meet, places most patients would like to believe are off-limits. Our Bodies, Our Data seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives while preserving the rights and interests of every patient. We, the public, deserve a say in this discussion. After all, it’s our data.
Measuring Media Use And Exposure
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Author : Christina Peter
language : en
Publisher: Herbert von Halem Verlag
Release Date : 2019-09-11
Measuring Media Use And Exposure written by Christina Peter and has been published by Herbert von Halem Verlag this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-09-11 with Business & Economics categories.
The precise measurement of media use and exposure to media content posits currently one of the main methodological challenges in communication research. Against this background, new communication technologies have been gaining particular importance because they change existing patterns of media use and create new types of media use. At the same time, these technologies do not only present a challenge for communication research, but they also provide new opportunities for the assessment of media use. The volume regards current developments and trends in the measurement of media use and exposure from various perspectives. Contributions deal with the refinement and advancement of classical approaches, and new methods and measures of assessing media use are introduced and evaluated. They also discuss the advantages and challenges of using online behavioral data as indicators for media exposure. Contributions tackle questions how different methods of measuring media use and exposure can be combined to gain a more accurate picture and what pitfalls can occur.
The Oxford Handbook Of Public Health Ethics
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Author : Anna C. Mastroianni
language : en
Publisher: Oxford University Press
Release Date : 2019-07-23
The Oxford Handbook Of Public Health Ethics written by Anna C. Mastroianni and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-07-23 with Medical categories.
Natural disasters and cholera outbreaks. Ebola, SARS, and concerns over pandemic flu. HIV and AIDS. E. coli outbreaks from contaminated produce and fast foods. Threats of bioterrorism. Contamination of compounded drugs. Vaccination refusals and outbreaks of preventable diseases. These are just some of the headlines from the last 30-plus years highlighting the essential roles and responsibilities of public health, all of which come with ethical issues and the responsibilities they create. Public health has achieved extraordinary successes. And yet these successes also bring with them ethical tension. Not all public health successes are equally distributed in the population; extraordinary health disparities between rich and poor still exist. The most successful public health programs sometimes rely on policies that, while improving public health conditions, also limit individual rights. Public health practitioners and policymakers face these and other questions of ethics routinely in their work, and they must navigate their sometimes competing responsibilities to the health of the public with other important societal values such as privacy, autonomy, and prevailing cultural norms. This Oxford Handbook provides a sweeping and comprehensive review of the current state of public health ethics, addressing these and numerous other questions. Taking account of the wide range of topics under the umbrella of public health and the ethical issues raised by them, this volume is organized into fifteen sections. It begins with two sections that discuss the conceptual foundations, ethical tensions, and ethical frameworks of and for public health and how public health does its work. The thirteen sections that follow examine the application of public health ethics considerations and approaches across a broad range of public health topics. While chapters are organized into topical sections, each chapter is designed to serve as a standalone contribution. The book includes 73 chapters covering many topics from varying perspectives, a recognition of the diversity of the issues that define public health ethics in the U.S. and globally. This Handbook is an authoritative and indispensable guide to the state of public health ethics today.
Actionable Intelligence
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Author : John Fantuzzo
language : en
Publisher: Springer
Release Date : 2015-11-04
Actionable Intelligence written by John Fantuzzo and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-11-04 with Political Science categories.
Multifaceted social problems like disaster relief, homelessness, health care, and academic achievement gaps cannot be adequately addressed with isolated and disconnected public service agencies. The Actionable Intelligence for Social Policy model addresses the limitations to traditional approaches to American public administration.
The Ethics Of Biomedical Big Data
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Author : Brent Daniel Mittelstadt
language : en
Publisher: Springer
Release Date : 2016-08-03
The Ethics Of Biomedical Big Data written by Brent Daniel Mittelstadt and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-08-03 with Philosophy categories.
This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
Research Anthology On Privatizing And Securing Data
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Author : Management Association, Information Resources
language : en
Publisher: IGI Global
Release Date : 2021-04-23
Research Anthology On Privatizing And Securing Data written by Management Association, Information Resources and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-04-23 with Computers categories.
With the immense amount of data that is now available online, security concerns have been an issue from the start, and have grown as new technologies are increasingly integrated in data collection, storage, and transmission. Online cyber threats, cyber terrorism, hacking, and other cybercrimes have begun to take advantage of this information that can be easily accessed if not properly handled. New privacy and security measures have been developed to address this cause for concern and have become an essential area of research within the past few years and into the foreseeable future. The ways in which data is secured and privatized should be discussed in terms of the technologies being used, the methods and models for security that have been developed, and the ways in which risks can be detected, analyzed, and mitigated. The Research Anthology on Privatizing and Securing Data reveals the latest tools and technologies for privatizing and securing data across different technologies and industries. It takes a deeper dive into both risk detection and mitigation, including an analysis of cybercrimes and cyber threats, along with a sharper focus on the technologies and methods being actively implemented and utilized to secure data online. Highlighted topics include information governance and privacy, cybersecurity, data protection, challenges in big data, security threats, and more. This book is essential for data analysts, cybersecurity professionals, data scientists, security analysts, IT specialists, practitioners, researchers, academicians, and students interested in the latest trends and technologies for privatizing and securing data.
Iapp Cipm Certified Information Privacy Manager Study Guide
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Author : Mike Chapple
language : en
Publisher: John Wiley & Sons
Release Date : 2023-01-19
Iapp Cipm Certified Information Privacy Manager Study Guide written by Mike Chapple and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-01-19 with Computers categories.
An essential resource for anyone preparing for the CIPM certification exam and a career in information privacy As cybersecurity and privacy become ever more important to the long-term viability and sustainability of enterprises in all sectors, employers and professionals are increasingly turning to IAPP’s trusted and recognized Certified Information Privacy Manager qualification as a tried-and-tested indicator of information privacy management expertise. In IAPP CIPM Certified Information Privacy Manager Study Guide, a team of dedicated IT and privacy management professionals delivers an intuitive roadmap to preparing for the CIPM certification exam and for a new career in the field of information privacy. Make use of pre-assessments, the Exam Essentials feature, and chapter review questions with detailed explanations to gauge your progress and determine where you’re proficient and where you need more practice. In the book, you’ll find coverage of every domain tested on the CIPM exam and those required to succeed in your first—or your next—role in a privacy-related position. You’ll learn to develop a privacy program and framework, as well as manage the full privacy program operational lifecycle, from assessing your organization’s needs to responding to threats and queries. The book also includes: A head-start to obtaining an in-demand certification used across the information privacy industry Access to essential information required to qualify for exciting new career opportunities for those with a CIPM credential Access to the online Sybex learning environment, complete with two additional practice tests, chapter review questions, an online glossary, and hundreds of electronic flashcards for efficient studying An essential blueprint for success on the CIPM certification exam, IAPP CIPM Certified Information Privacy Manager Study Guide will also ensure you hit the ground running on your first day at a new information privacy-related job.
Engaging Privacy And Information Technology In A Digital Age
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2007-06-28
Engaging Privacy And Information Technology In A Digital Age written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-06-28 with Computers categories.
Privacy is a growing concern in the United States and around the world. The spread of the Internet and the seemingly boundaryless options for collecting, saving, sharing, and comparing information trigger consumer worries. Online practices of business and government agencies may present new ways to compromise privacy, and e-commerce and technologies that make a wide range of personal information available to anyone with a Web browser only begin to hint at the possibilities for inappropriate or unwarranted intrusion into our personal lives. Engaging Privacy and Information Technology in a Digital Age presents a comprehensive and multidisciplinary examination of privacy in the information age. It explores such important concepts as how the threats to privacy evolving, how can privacy be protected and how society can balance the interests of individuals, businesses and government in ways that promote privacy reasonably and effectively? This book seeks to raise awareness of the web of connectedness among the actions one takes and the privacy policies that are enacted, and provides a variety of tools and concepts with which debates over privacy can be more fruitfully engaged. Engaging Privacy and Information Technology in a Digital Age focuses on three major components affecting notions, perceptions, and expectations of privacy: technological change, societal shifts, and circumstantial discontinuities. This book will be of special interest to anyone interested in understanding why privacy issues are often so intractable.
Handbook Of Research On Connecting Research Methods For Information Science Research
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Author : Ngulube, Patrick
language : en
Publisher: IGI Global
Release Date : 2019-12-13
Handbook Of Research On Connecting Research Methods For Information Science Research written by Ngulube, Patrick and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-12-13 with Language Arts & Disciplines categories.
In today’s globalized world, viable and reliable research is fundamental for the development of information. Innovative methods of research have begun to shed light on notable issues and concerns that affect the advancement of knowledge within information science. Building on previous literature and exploring these new research techniques are necessary to understand the future of information and knowledge. The Handbook of Research on Connecting Research Methods for Information Science Research is a collection of innovative research on the methods and application of study methods within library and information science. While highlighting topics including data management, philosophical foundations, and quantitative methodology, this book is ideally designed for librarians, information science professionals, policymakers, advanced-level students, researchers, and academicians seeking current research on transformative methods of research within information science.