The Ethics Of Biomedical Big Data
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The Ethics Of Biomedical Big Data
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Author : Brent Daniel Mittelstadt
language : en
Publisher: Springer
Release Date : 2016-08-03
The Ethics Of Biomedical Big Data written by Brent Daniel Mittelstadt and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-08-03 with Philosophy categories.
This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
The Big Data Agenda
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Author : Annika Richterich
language : en
Publisher: University of Westminster Press
Release Date : 2018-04-13
The Big Data Agenda written by Annika Richterich and has been published by University of Westminster Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-04-13 with Social Science categories.
This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.
Big Data Health Law And Bioethics
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Author : I. Glenn Cohen
language : en
Publisher: Cambridge University Press
Release Date : 2018-03-08
Big Data Health Law And Bioethics written by I. Glenn Cohen and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-03-08 with Law categories.
When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors.
The Oxford Handbook Of Ethics Of Ai
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Author : Markus Dirk Dubber
language : en
Publisher:
Release Date : 2020
The Oxford Handbook Of Ethics Of Ai written by Markus Dirk Dubber and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020 with Business & Economics categories.
This interdisciplinary and international handbook captures and shapes much needed reflection on normative frameworks for the production, application, and use of artificial intelligence in all spheres of individual, commercial, social, and public life.
Ethical Reasoning In Big Data
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Author : Jeff Collmann
language : en
Publisher: Springer
Release Date : 2016-04-22
Ethical Reasoning In Big Data written by Jeff Collmann and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-04-22 with Computers categories.
This book springs from a multidisciplinary, multi-organizational, and multi-sector conversation about the privacy and ethical implications of research in human affairs using big data. The need to cultivate and enlist the public’s trust in the abilities of particular scientists and scientific institutions constitutes one of this book’s major themes. The advent of the Internet, the mass digitization of research information, and social media brought about, among many other things, the ability to harvest – sometimes implicitly – a wealth of human genomic, biological, behavioral, economic, political, and social data for the purposes of scientific research as well as commerce, government affairs, and social interaction. What type of ethical dilemmas did such changes generate? How should scientists collect, manipulate, and disseminate this information? The effects of this revolution and its ethical implications are wide-ranging. This book includes the opinions of myriad investigators, practitioners, and stakeholders in big data on human beings who also routinely reflect on the privacy and ethical issues of this phenomenon. Dedicated to the practice of ethical reasoning and reflection in action, the book offers a range of observations, lessons learned, reasoning tools, and suggestions for institutional practice to promote responsible big data research on human affairs. It caters to a broad audience of educators, researchers, and practitioners. Educators can use the volume in courses related to big data handling and processing. Researchers can use it for designing new methods of collecting, processing, and disseminating big data, whether in raw form or as analysis results. Lastly, practitioners can use it to steer future tools or procedures for handling big data. As this topic represents an area of great interest that still remains largely undeveloped, this book is sure to attract significant interest by filling an obvious gap in currently available literature.
Genomic And Precision Medicine
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Author : Geoffrey S. Ginsburg
language : en
Publisher: Academic Press
Release Date : 2022-04-09
Genomic And Precision Medicine written by Geoffrey S. Ginsburg and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-04-09 with Science categories.
Genomic and Precision Medicine: Oncology, Third Edition focuses on the applications of genome discovery as research points to personalized cancer therapies. Each chapter is organized to cover the application of genomics and personalized medicine tools and technologies to a) Risk Assessment and Susceptibility, b) Diagnosis and Prognosis, c) Pharmacogenomics and Precision Therapeutics, and d) Emerging and Future Opportunities in the field. - Provides a comprehensive volume written and edited by oncology genomic specialists for oncology health providers - Includes succinct commentary and key learning points that will assist providers with their local needs for implementation of genomic and personalized medicine into practice - Presents an up-to-date overview on major opportunities for genomic and personalized medicine in practice - Covers case studies that highlight the practical use of genomics in the management of patients
Ethics And Integrity In Health And Life Sciences Research
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Author : Zvonimir Koporc
language : en
Publisher: Emerald Group Publishing
Release Date : 2018-12-06
Ethics And Integrity In Health And Life Sciences Research written by Zvonimir Koporc and has been published by Emerald Group Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-12-06 with Social Science categories.
This important volume covers ethics and integrity in health and life sciences research. It addresses concerns in gene editing, dual use and misuse of biotechnologies, big data and nutritional science in health and medicine, and covers attempts at ensuring ethical practices in such fields are shared internationally.
The Ethics Of Medical Data Donation
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Author : Jenny Krutzinna
language : en
Publisher: Springer
Release Date : 2019-01-16
The Ethics Of Medical Data Donation written by Jenny Krutzinna and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-01-16 with Medical categories.
This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
The Oxford Handbook Of Public Health Ethics
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Author : Anna C. Mastroianni
language : en
Publisher: Oxford University Press
Release Date : 2019-07-23
The Oxford Handbook Of Public Health Ethics written by Anna C. Mastroianni and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-07-23 with Medical categories.
Natural disasters and cholera outbreaks. Ebola, SARS, and concerns over pandemic flu. HIV and AIDS. E. coli outbreaks from contaminated produce and fast foods. Threats of bioterrorism. Contamination of compounded drugs. Vaccination refusals and outbreaks of preventable diseases. These are just some of the headlines from the last 30-plus years highlighting the essential roles and responsibilities of public health, all of which come with ethical issues and the responsibilities they create. Public health has achieved extraordinary successes. And yet these successes also bring with them ethical tension. Not all public health successes are equally distributed in the population; extraordinary health disparities between rich and poor still exist. The most successful public health programs sometimes rely on policies that, while improving public health conditions, also limit individual rights. Public health practitioners and policymakers face these and other questions of ethics routinely in their work, and they must navigate their sometimes competing responsibilities to the health of the public with other important societal values such as privacy, autonomy, and prevailing cultural norms. This Oxford Handbook provides a sweeping and comprehensive review of the current state of public health ethics, addressing these and numerous other questions. Taking account of the wide range of topics under the umbrella of public health and the ethical issues raised by them, this volume is organized into fifteen sections. It begins with two sections that discuss the conceptual foundations, ethical tensions, and ethical frameworks of and for public health and how public health does its work. The thirteen sections that follow examine the application of public health ethics considerations and approaches across a broad range of public health topics. While chapters are organized into topical sections, each chapter is designed to serve as a standalone contribution. The book includes 73 chapters covering many topics from varying perspectives, a recognition of the diversity of the issues that define public health ethics in the U.S. and globally. This Handbook is an authoritative and indispensable guide to the state of public health ethics today.
The Ethical Governance Of Artificial Intelligence And Machine Learning In Healthcare
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Author : Tina Nguyen
language : en
Publisher: Ethics International Press
Release Date : 2023-11-25
The Ethical Governance Of Artificial Intelligence And Machine Learning In Healthcare written by Tina Nguyen and has been published by Ethics International Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-11-25 with Medical categories.
This book explores the ethical governance of Artificial Intelligence (AI) & Machine Learning (ML) in healthcare. AI/ML usage in healthcare as well as our daily lives is not new. However, the direct, and oftentimes long-term effects of current technologies, in addition to the onset of future innovations, have caused much debate about the safety of AI/ML. On the one hand, AI/ML has the potential to provide effective and efficient care to patients, and this sways the argument in favor of continuing to use AI/ML; but on the other hand, the dangers (including unforeseen future consequences of the further development of the technology) leads to vehement disagreement with further AI/ML usage. Due to its potential for beneficial outcomes, the book opts to push for ethical AI/ML to be developed and examines various areas in healthcare, such as big data analytics and clinical decision-making, to uncover and discuss the importance of developing ethical governance for AI/ML in this setting.