Navigating Life With Amyotrophic Lateral Sclerosis
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Navigating Life With Amyotrophic Lateral Sclerosis
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Author : Mark B. Bromberg
language : en
Publisher: Oxford University Press
Release Date : 2017
Navigating Life With Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with Medical categories.
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Navigating Life With Amyotrophic Lateral Sclerosis
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Author : Mark B. Bromberg
language : en
Publisher: Oxford University Press
Release Date : 2017-04-03
Navigating Life With Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-04-03 with Medical categories.
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Als Awareness For Men Navigating Life With Courage
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Author : Laurence Donelson lll
language : en
Publisher: Laurence Donelson lll
Release Date : 2024-04-15
Als Awareness For Men Navigating Life With Courage written by Laurence Donelson lll and has been published by Laurence Donelson lll this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-04-15 with Self-Help categories.
Amyotrophic Lateral Sclerosis
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Author : Hiroshi Mitsumoto
language : en
Publisher: F. A. Davis Company
Release Date : 1998
Amyotrophic Lateral Sclerosis written by Hiroshi Mitsumoto and has been published by F. A. Davis Company this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with Medical categories.
This volume provides comprehensive background for understanding amyotrophic lateral sclerosis (ALS) and a critical review of research. It points out the distinguishing characteristics of the disease and testing procedures for reliable diagnosis.
What You Need To Know About Als
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Author : Harry LeVine III
language : en
Publisher: Bloomsbury Publishing USA
Release Date : 2019-10-11
What You Need To Know About Als written by Harry LeVine III and has been published by Bloomsbury Publishing USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-10-11 with Health & Fitness categories.
This book offers an accessibly written introduction to ALS, focusing on the topics that matter most to anyone whose life has been affected—directly or indirectly—by this condition. Amyotrophic lateral sclerosis (ALS) or Lou Gehrig's disease, is a neurodegenerative disease that affects the motor neurons that drive voluntary movement. Those diagnosed with ALS experience difficulty moving and speaking and, as the condition worsens, difficulty swallowing and breathing. Beyond this definition, however, what do those affected by ALS need to know? What You Need to Know about ALS is a part of Greenwood's Inside Diseases and Disorders series. This series profiles a variety of physical and psychological conditions, and distills vast collections of scientific knowledge into concise, readable volumes. A list of "Top 10" essential questions begins each book, providing quick-access answers to readers' concerns. The text follows a standardized structure, with each chapter exploring a particular facet of the topic. In addition to covering causes, signs and symptoms, diagnosis, and treatment options, books in this series delve into issues that are less commonly addressed but still critical to understand, such as effects on loved ones and caregivers. Case illustrations highlight key themes discussed in the book and are accompanied by insightful analyses and recommendations.
The Challenge Of Palliative Psychology Across The Lifespan Between New Health Emergencies And Paradigm Shifts
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Author : Ines Testoni
language : en
Publisher: Frontiers Media SA
Release Date : 2022-11-17
The Challenge Of Palliative Psychology Across The Lifespan Between New Health Emergencies And Paradigm Shifts written by Ines Testoni and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-11-17 with Science categories.
Navigating Life With Dementia
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Author : James M. Noble
language : en
Publisher: Oxford University Press
Release Date : 2022
Navigating Life With Dementia written by James M. Noble and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022 with Medical categories.
"Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--
Als
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Author : Eliot H. Dunsky
language : en
Publisher: Createspace Independent Publishing Platform
Release Date : 2016-11-04
Als written by Eliot H. Dunsky and has been published by Createspace Independent Publishing Platform this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-11-04 with Amyotrophic lateral sclerosis categories.
Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.
Als Awareness Relationships Attention To Significant Others Family Friends
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Author : Laurence Donelson lll
language : en
Publisher: Laurence Donelson lll
Release Date : 2024-04-04
Als Awareness Relationships Attention To Significant Others Family Friends written by Laurence Donelson lll and has been published by Laurence Donelson lll this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-04-04 with Self-Help categories.
"ALS Awareness Relationships: Attention to Significant Others, Family & Friends" is a compassionate guide for those touched by ALS. It begins with an **introduction** to the importance of awareness and a brief overview of ALS. The book delves into the **impact of ALS**, sharing personal stories and case studies that highlight the challenges faced by patients and their loved ones. Navigating the complex web of **relationships** affected by ALS, the book offers insights into the changing dynamics within families and the challenges faced by significant others. It emphasizes the creation of strong **support systems**, providing a list of resources and organizations for caregivers. Communication is key, and the book discusses **techniques** for maintaining strong relationships, alongside communication aids and technology. It also addresses the often-overlooked aspect of **self-care for caregivers**, offering strategies for managing stress and the importance of self-care routines. The book encourages **advocacy and involvement** in the ALS community, suggesting ways to become an advocate and organize community events. It shares **stories of hope and resilience**, providing messages of hope and inspiration from the ALS community. Concluding with reflections on the journey and the future of ALS awareness, the book also includes a comprehensive **resources section** with a list of ALS associations and educational materials for further reading. This book is an essential resource for anyone seeking to understand and support those affected by ALS.
Someone I Love Has Als
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Author : Jodi O'Donnell-Ames
language : en
Publisher: People Tested Publications
Release Date : 2015-09-09
Someone I Love Has Als written by Jodi O'Donnell-Ames and has been published by People Tested Publications this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-09-09 with categories.
Kevin and Jodi O'Donnell, were a young New Jersey couple busy raising a toddler and making plans for their future when they received life-altering news in 1995 that changed everything as they knew it. Kevin was only 30 years old when he was told that his health problems were the result of a rare, terminal disease called ALS (Amyotrophic Lateral Sclerosis), or Lou Gehrig's disease. Kevin and Jodi had not heard of ALS until then and had no idea how those three letters would challenge everything they thought to be certain. After more than 20 years of working with ALS families, Jodi realized that more information and better resources could be available to help families who are coming to grips with the challenges of the disease and the caregiving responsibilities that are involved. In the Introduction to "Someone I Love Has ALS: A Family Caregiver's Guide," Jodi recounts the journey she took as a caregiver, advocate and writer and embraces and shares the lessons learned throughout the pages of this wonderful guide, "This guide was created by a variety of caregivers and professionals who have years of experience with various aspects of ALS. It was written by volunteers and experts who care about ALS and your journey. It is the resource that I wish we had received along with the shocking diagnosis." Although Kevin died of ALS in 2001 at the age 35, the disease never won the battle. ALS only strengthened Kevin and Jodi's love for God and each other and it created an even bigger purpose and plan: the creation of Hope Loves Company(r), the only non-profit whose mission is to support the children and grandchildren caregivers of PALS (people with ALS).