Palliative Care For Children And Families


Palliative Care For Children And Families
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When Children Die


When Children Die
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2003-10-30

When Children Die written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-10-30 with Medical categories.


This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.



Supporting The Child And The Family In Paediatric Palliative Care


Supporting The Child And The Family In Paediatric Palliative Care
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Author : Erica Brown
language : en
Publisher: Jessica Kingsley Publishers
Release Date : 2007-06-15

Supporting The Child And The Family In Paediatric Palliative Care written by Erica Brown and has been published by Jessica Kingsley Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-06-15 with Family & Relationships categories.


Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families. Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral. This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.



Palliative Care For Children And Families


Palliative Care For Children And Families
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Author : Jayne Price
language : en
Publisher:
Release Date : 2009

Palliative Care For Children And Families written by Jayne Price and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009 with Children categories.


Providing an in-depth look at the issues surrounding the palliative care of children, this innovative text considers both malignant and non-malignant cases, and the specialist treatment required. The interdisplinary contributor team spans both education and practice. This is insightful reading for all studying children's nursing.



Palliative Care For Children And Families


Palliative Care For Children And Families
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Author : Jayne Price
language : en
Publisher: Red Globe Press
Release Date : 2009-08-20

Palliative Care For Children And Families written by Jayne Price and has been published by Red Globe Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-08-20 with Medical categories.


Written from an interdisciplinary perspective and combining theory, practice and case examples, this book gives a helpful insight into the difficult job of caring for critically ill children.



When Children Die


When Children Die
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2003-01-09

When Children Die written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-01-09 with Medical categories.


The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.



Oxford Textbook Of Palliative Care For Children


Oxford Textbook Of Palliative Care For Children
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Author : Richard Hain
language : en
Publisher: Oxford University Press
Release Date : 2021-07-27

Oxford Textbook Of Palliative Care For Children written by Richard Hain and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-07-27 with Medical categories.


The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.



A Really Practical Handbook Of Children S Palliative Care


A Really Practical Handbook Of Children S Palliative Care
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Author : Justin Amery
language : en
Publisher: Lulu.com
Release Date : 2012-02-23

A Really Practical Handbook Of Children S Palliative Care written by Justin Amery and has been published by Lulu.com this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-02-23 with Science categories.


A Really Practical Handbook of Children's Palliative Care for Doctors and Nurses Anywhere in the World offers really practical solutions to common problems faced by health professionals caring for dying children and their families, whatever their culture



Textbook Of Interdisciplinary Pediatric Palliative Care


Textbook Of Interdisciplinary Pediatric Palliative Care
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Author : Joanne Wolfe
language : en
Publisher: Elsevier Health Sciences
Release Date : 2011-01-26

Textbook Of Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and has been published by Elsevier Health Sciences this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-01-26 with Medical categories.


The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.



Pediatric Palliative Care


Pediatric Palliative Care
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Author : Lindsay B. Ragsdale
language : en
Publisher: Oxford University Press
Release Date : 2020-02-03

Pediatric Palliative Care written by Lindsay B. Ragsdale and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-02-03 with Medical categories.


The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"



Pediatric Palliative Care


Pediatric Palliative Care
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Author : Stefan J. Friedrichsdorf
language : en
Publisher: MDPI
Release Date : 2019-02-08

Pediatric Palliative Care written by Stefan J. Friedrichsdorf and has been published by MDPI this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-02-08 with Children categories.


This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children