Participatory Research In Palliative Care
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Participatory Research In Palliative Care
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Author : Katharina Heimerl
language : en
Publisher: Oxford University Press
Release Date : 2013
Participatory Research In Palliative Care written by Katharina Heimerl and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013 with Medical categories.
Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
Participatory Research In Palliative Care Actions And Reflections
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Author : Jo Hockley
language : en
Publisher: OUP Oxford
Release Date : 2012-12-06
Participatory Research In Palliative Care Actions And Reflections written by Jo Hockley and has been published by OUP Oxford this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-12-06 with Medical categories.
Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration, empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not only reducing costs but at the same time improving quality of care. While palliative care puts the patient and family at the centre, Participatory Research in Palliative Care discusses a new research methodology that puts practitioners at the heart of the research process as collaborators who work together with researchers to resolve problems in practice. Divided into three sections, it provides theoretical groundings of action research, a greater focus on exemplars from studies within palliative care, and discusses prominent issues when using such a methodology. All three sections are illustrated by an action research study undertaken by the author within a palliative care setting. Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.
Participatory Research In Palliative Care
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Author : J. M. Hockley
language : en
Publisher:
Release Date : 2013
Participatory Research In Palliative Care written by J. M. Hockley and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013 with Palliative treatment categories.
'Participatory Research in Palliative Care' discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care as well as discusses the prominent issues currently faced in this methodology from a global perspective.
Ethics In Participatory Research For Health And Social Well Being
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Author : Sarah Banks
language : en
Publisher: Routledge
Release Date : 2018-08-06
Ethics In Participatory Research For Health And Social Well Being written by Sarah Banks and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-08-06 with Social Science categories.
Participatory research is well-established as an approach involving people with a direct interest in, or experience of, the issue being studied in carrying out research. However, it raises unique and challenging ethical issues. Traditional concerns with respect for the rights to confidentiality, consent, privacy and protection of ‘research informants’ do not translate easily into participatory research. Boundaries between researchers and those researched are often blurred; research trajectories may be emergent and unpredictable; and major ethical issues revolve around partnership, power, equality and respect for diverse knowledges. The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors. Focusing on developing ethical awareness, confidence and courage to act in ethically challenging situations in everyday research practice, this book is an invaluable resource for all participatory researchers.
Compassionate Communities
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Author : Klaus Wegleitner
language : en
Publisher: Routledge
Release Date : 2015-06-26
Compassionate Communities written by Klaus Wegleitner and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-06-26 with Social Science categories.
Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.
Patient Participation In Palliative Care
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Author : Barbara Monroe
language : en
Publisher: OUP Oxford
Release Date : 2003-06-19
Patient Participation In Palliative Care written by Barbara Monroe and has been published by OUP Oxford this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-06-19 with Medical categories.
Patient participation and user involvement are central to current thinking about the effective delivery of desired healthcare outcomes. Working with the person who lies behind every patient is core to palliative care. A voice can only become significant when it is listened to and acted upon. With palliative care increasingly addressing the needs of people with a variety of conditions in a range of settings, as well as with advances in research, technology, and information, the challenge to be 'a voice for the voiceless' is greater than ever. This book addresses key aspects in the provision of patient-centred palliative care and tracks significant developments in user involvement. It sets the philosophy within the cultural, social and political context of modern healthcare, particularly addressing issues of quality, standards, education and bereavement. A key component in the delivery of high quality palliative care is the multi-professional team. Following a discussion of teamwork, five core professions present a critical analysis of their working practices. The book concludes with a commentary from a palliative care user and a bereaved carer. It is often somewhat glibly asserted that the patient is, or should be, at the centre of care. There have been few attempts to examine how to keep him or her there without professional needs and protocols crowding him or her out. This book asks how we listen and why we listen. The book focuses on the challenges of how professionals can keep the needs of the patient central in clinical care and how the patient can influence the direction of that care.
Action Research Innovation And Change
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Author : Thomas Stern
language : en
Publisher: Routledge
Release Date : 2013-12-17
Action Research Innovation And Change written by Thomas Stern and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-12-17 with Education categories.
Action research continues to see a growth in interest both internationally and across disciplines. This book demonstrates the diversity in settings and focus for action research and provides a guide to its core aspiration: to achieve principled change. Written by authors from a range of countries and range of disciplines (including education, health care, palliative care, social work and community development), this book answers these key questions: How can action research be used to achieve principled change? How has action research been applied in various disciplines and in different countries? What can be learnt about the conduct of action research from these diverse settings? By means of detailed case studies of successful projects and discussions that challenge and raise theoretical questions, this book explores some of the contemporary cutting edge applications and conceptualisations of action research. Action research paves the way for the empowerment of people involved in social action, and the examples of successful change processes that are the core of this book will prove inspirational and provide practical advice. Written by a range of leading international researchers in the field, this book will define the future for action research for years to come.
Cancer On The Margins
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Author : Judy Gould
language : en
Publisher: University of Toronto Press
Release Date : 2009-01-01
Cancer On The Margins written by Judy Gould and has been published by University of Toronto Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-01-01 with Medical categories.
Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public.
Involving Service Users In Health And Social Care Research
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Author : Lesley Lowes
language : en
Publisher: Routledge
Release Date : 2013-01-11
Involving Service Users In Health And Social Care Research written by Lesley Lowes and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-01-11 with Health & Fitness categories.
Service user involvement in research can range from the extremes of being the subject, to being the initiator or investigator, of a research study. The activity of the professional researcher can also range from being the person undertaking the research, to being a partner with, or mentor to, service users. This broad scope of levels of involvement is reflected in the contributions in this book, both in the research experiences reported and in the writing of the chapters themselves. With contributions coming from a range of service areas including learning disabilities, cancer care, older people and mental illness, chapters look at important research issues such as: strategies for working in true partnership avoiding ‘tokenism’ involving service users at all stages of the research process communication and terminology involving service users of different ages and experience training needs of professionals and service users problems surrounding ‘payment’ for service users other ethical and practical issues. This book is invaluable reading for researchers in health and social care from academic, professional and service user backgrounds.
Perspectives On Behavioural Interventions In Palliative And End Of Life Care
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Author : Rebecca S Allen
language : en
Publisher: Routledge
Release Date : 2018-06-12
Perspectives On Behavioural Interventions In Palliative And End Of Life Care written by Rebecca S Allen and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-06-12 with Psychology categories.
The challenges faced by individuals and families at the end of life are still incredibly diverse, and many behavioural interventions and clinical approaches have been developed to address this great diversity of experiences in the face of dying and death, helping providers to care for their clients. Perspectives on Behavioural Interventions in Palliative and End-of-Life Care is an accessible resource that collates and explores interventions that can be used to address a wide range of behavioural, psychological, social and spiritual issues that arise when people are facing advanced chronic or life-limiting illness. With perspectives from experienced clinicians, providers, and caregivers from around the world, this book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field. Its chapters explore: Interventions to enhance communication and decision making The management of physical and mental health symptoms Meaning-Centred Psychotherapy for cancer patients Dignity Therapy Interventions embracing cultural diversity and intersectionality. Together with Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Context, the book provides a foundation for collaborative international and interprofessional work by providing state-of science information on behavioural interventions addressing mental health and wellness. It is of interest to academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work, and is essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.