Patients As Policy Actors
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Patients As Policy Actors
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Author : Beatrix Rebecca Hoffman
language : en
Publisher: Rutgers University Press
Release Date : 2011
Patients As Policy Actors written by Beatrix Rebecca Hoffman and has been published by Rutgers University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011 with Health & Fitness categories.
Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.
Globalisation Markets And Healthcare Policy
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Author : Jonathan Tritter
language : en
Publisher: Routledge
Release Date : 2009-09-10
Globalisation Markets And Healthcare Policy written by Jonathan Tritter and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-09-10 with Medical categories.
Although the last two decades have seen the healthcare systems of most developed countries face pressure for major reform, the impact of this reform on the relationship between empowerment, consumerism and citizen’s rights has received limited research attention. Globalisation, Markets and Healthcare Policy sets out to redress this imbalance. This book explores the extent to which globalisation and commercialisation relate to current and emerging health policies. It also looks at the implications for citizens, patients and social rights, as well as how policy making interacts with the interests of global and European trade and economic policies. Topics discussed include: How the impact of globalisation on health systems is apparent in the influence of international actors and European policies. How the impact of globalisation is mediated by national priorities and policies and is therefore reflected in diverse influences. How commercialisation of health is presented as benefiting citizens and patients but has the potential to undermine the aims and values inherent in health systems. How the role of citizens' interests, social rights, patient’s rights and priorities of patient and public involvement need to be separated from commercialisation, choice and consumerism in health care. Essential reading for policy makers and students of public policy, politics, law and health services, Globalisation, Markets and Healthcare Policy will also appeal to those interested in patient involvement international healthcare, international relations, trans-national organisations and the EU.
Patient Safety Law Policy And Practice
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Author : John Tingle
language : en
Publisher: Taylor & Francis
Release Date : 2011-03-02
Patient Safety Law Policy And Practice written by John Tingle and has been published by Taylor & Francis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-03-02 with Law categories.
The chapters in this book explore the patient safety managerial structures that exist in countries where there are developed patient safety infrastructures and cultures. The legal structures of these countries are explored and related to major in-country patient safety issues in order to draw comparisons and conclusions on patient safety.
Guide To U S Health And Health Care Policy
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Author : Thomas R. Oliver
language : en
Publisher: CQ Press
Release Date : 2014-09-03
Guide To U S Health And Health Care Policy written by Thomas R. Oliver and has been published by CQ Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-09-03 with Political Science categories.
Guide to U.S. Health and Health Care Policy provides the analytical connections showing students how issues and actions are translated into public policies and institutions for resolving or managing health care issues and crises, such as the recent attempt to reform the national health care system. The Guide highlights the decision-making cycle that requires the cooperation of government, business, and an informed citizenry in order to achieve a comprehensive approach to advancing the nation’s health care policies. Through 30 topical, operational, and relational essays, the book addresses the development of the U.S. health care system and policies, the federal agencies and public and private organizations that frame and administer those policies, and the challenges of balancing the nation’s health care needs with the rising costs of medical research, cost-effective treatment, and adequate health insurance. Key Features: The 30 topical essays investigate the fundamental political, social, economic, and procedural initiatives that drive health and health care policy decisions affecting Americans at the local, regional, and national levels Essential themes traced throughout the chapters include providing access to health care, national and international intervention, nutrition and health, human and financial resource allocation, freedom of religion versus public policy, discrimination and health care policy, universal health care coverage, private health care versus publicly funded health care, and the immediate and long-term costs associated with disease prevention, treatment, and health maintenance A Glossary of Key Health Care Policy Terms and Events, a selected Master Bibliography, and a thorough Index are included. This must-have reference for political science and public policy students who seek to understand the issues affecting health care policy in the U.S. is suitable for academic, public, high school, government, and professional libraries.
Dictionary Of European Actors
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Author : Elisabeth Lambert Abdelgawad
language : en
Publisher: Primento
Release Date : 2015-04-07
Dictionary Of European Actors written by Elisabeth Lambert Abdelgawad and has been published by Primento this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-07 with Law categories.
If the European political space has been extensively explored, research has remained all too often focused on the institutions of the European Union and the Council of Europe rather than on the actors who make Europe. This dictionary brings a new angle to scholarship on Europe by systematically investigating its actors: those who work within the institutions or in close contact with them; those who are the targets of European policies; those in the name of whom reforms are carried out; those who promote Europe and those who oppose it. It showcases a comprehensive, interdisciplinary approach that bridges the usual separation between the European Union and the Council of Europe. In each entry, contributors selected among the leading specialists in their fields of research present the state of the art and the most current research perspectives on European actors. Students, teachers and researchers with an interest in Europe will find this volume to be a valuable work of reference and a source of new and stimulating ideas and perspectives on Europe. More broadly, the dictionary will appeal to ‘professionals of Europe’ eager to gain insights into their working environment as well as to readers interested in understanding Europe through its actors.
Rare Disease Drug Development
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Author : Raymond A. Huml
language : en
Publisher: Springer Nature
Release Date : 2021-11-08
Rare Disease Drug Development written by Raymond A. Huml and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-11-08 with Medical categories.
This book provides a broad overview of rare disease drug development. It offers unique insights from various perspectives, including third-party capital providers, caregivers, patient advocacy groups, drug development professionals, marketing and commercial experts, and patients. A unique reference, the book begins with narratives on the many challenges faced by rare disease patient and their caregivers. Subsequent chapters underscore the critical, multidimensional role of patient advocacy groups and the novel approaches to related clinical trials, investment decisions, and the optimization of rare disease registries. The book addresses various rare disease drug development processes by disciplines such as oncology, hematology, pediatrics, and gene therapy. Chapters then address the operational aspects of drug development, including approval processes, development accelerations, and market access strategies. The book concludes with reflections on the authors' case for real-world data and evidence generation in orphan medicinal drug development. Rare Disease Drug Development is an expertly written text optimized for biopharmaceutical R&D experts, commercial experts, third-party capital providers, patient advocacy groups, patients, and caregivers.
Remaking The American Patient
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Author : Nancy Tomes
language : en
Publisher: UNC Press Books
Release Date : 2016-01-06
Remaking The American Patient written by Nancy Tomes and has been published by UNC Press Books this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-01-06 with Medical categories.
In a work that spans the twentieth century, Nancy Tomes questions the popular--and largely unexamined--idea that in order to get good health care, people must learn to shop for it. Remaking the American Patient explores the consequences of the consumer economy and American medicine having come of age at exactly the same time. Tracing the robust development of advertising, marketing, and public relations within the medical profession and the vast realm we now think of as "health care," Tomes considers what it means to be a "good" patient. As she shows, this history of the coevolution of medicine and consumer culture tells us much about our current predicament over health care in the United States. Understanding where the shopping model came from, why it was so long resisted in medicine, and why it finally triumphed in the late twentieth century helps explain why, despite striking changes that seem to empower patients, so many Americans remain unhappy and confused about their status as patients today.
The Public Shaping Of Medical Research
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Author : Peter Wehling
language : en
Publisher: Routledge
Release Date : 2014-11-27
The Public Shaping Of Medical Research written by Peter Wehling and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-11-27 with Social Science categories.
Patient organizations and social health movements offer one of the most important and illuminating examples of civil society engagement and participation in scientific research and research politics. Influencing the research agenda, and initiating, funding and accelerating the development of diagnostic tools, effective therapies and appropriate health-care for their area of interest, they may champion alternative, sometimes controversial, programs or critique dominant medical paradigms. Some movements and organizations advocate for medical recognition of contested illnesses, as with fibromyalgia orADHD, while some attempt to "de-medicalize" others, such as obesity or autism. Bringing together an international selection of leading scholars and representatives from patients' organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. It takes stock of the key findings of the research conducted in the field over the past two decades and addresses emerging problems and future challenges concerning the interrelations between health movements and patient organisations on the one hand, and biomedical research and research policies on the other hand. Combining empirical case studies with conceptual discussion, the book discusses how public participation can contribute to, as well as restrict, the democratization of scientific knowledge production. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge, medical ethics or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.
Comprehensive Care For Hiv Aids
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Author : Teresa L. Scheid
language : en
Publisher: Routledge
Release Date : 2014-08-07
Comprehensive Care For Hiv Aids written by Teresa L. Scheid and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-08-07 with Social Science categories.
A comprehensive health care system consists of services that are coordinated and integrated along the full continuum of care. For HIV patients, this includes physical health care, infectious disease management, crisis care, mental health care, substance abuse counseling, and social support services including housing, transportation, subsistence, and supports for dealing with multiple sources of stigma. This book highlights the dilemmas faced in providing comprehensive, integrated care to individuals living with HIV, providing both an understanding of existing efforts to integrate diverse systems of care, as well as insight into ways in which systems of care must be challenged in order to meet the needs of people living with HIV. Comprehensive Care for HIV/AIDS is the result of collaborative work with the county Health Department, numerous community-based organizations, and several planning boards in a metropolitan area, which have sought to provide integrated care to people living with HIV. It will be a valuable resource to the diverse community of HIV researchers, advocates and providers.
Healthcare Activism
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Author : Susi Geiger
language : en
Publisher: Oxford University Press
Release Date : 2021-09-09
Healthcare Activism written by Susi Geiger and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-09-09 with Health & Fitness categories.
What is the role of activists and civil society in defining and defending the collective good in healthcare, especially in cases where that good seems to be heavily shaped by market dynamics? Presenting conceptual and empirical studies from a variety of healthcare contexts and theoretical perspectives, this book addresses this vital question by drawing together multidisciplinary scholarship from Science and Technology Studies, Sociology, Organisation Studies, Marketing, Philosophy, and Public Health. Healthcare has undergone three major changes over the past decades: the advent of personalized medicine, the marketization of public care systems, and the digitalization of healthcare services. This book maps these changes and illustrates the extent to which they are interlinked to produce a seemingly unstoppable move toward individualization in healthcare. The book also highlights the tensions and challenges arising from these interlinkages, and traces how activists react to these tensions to argue for and defend the common good. It thus sketches a multifaceted picture of healthcare activism in the 21st century as civil society responds to these dynamics at the crossroads of markets and morals, economic and social justifications, individual and collective, and digital and non-digital worlds. Crucially, it also highlights potential solutions for heightening patient voices and broadening participation in healthcare markets in a post Covid-19 world.