Population Biobanks And The Principle Of Reciprocity

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Reciprocity In Population Biobanks

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Author : Ma'n H. Zawati
language : en
Publisher: Academic Press
Release Date : 2021-09-22

Reciprocity In Population Biobanks written by Ma'n H. Zawati and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-09-22 with Medical categories.

Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era begins by discussing how current judicial interpretation keeps standard of disclosure at the core of genomic research. The book then outlines multiple limitations individualistic autonomy faces in the context of gene and population biobanks, including an analysis of the complexities of benefit considerations in the research setting. Second, the book explores how individualistic autonomy fails to acknowledge the multilateral relationships implicated in genomic research, including those that affect the broader research community, research participants' families, and the general public. In carrying out this analysis, this book pays special attention to alternative approaches and ways researchers, public health officials, and judicial bodies might interact in years to come. In other words, implementing an understanding of relational autonomy that acknowledges and sustains the multilateral relationships found in genomic research without compromising the rights of participants. In short, this book proposes a reconceived duty to inform for researchers and a new standard of disclosure that is more meaningful and impactful for research participants and researchers. - Examines the limitations individualistic autonomy faces in the context of gene and population biobanks - Proposes a reconceived duty to inform for researchers and a new standard of disclosure more meaningful to genomic research participants - Suggests ways researchers, public health officials, and judicial bodies might interact to drive genomic research while still protecting research participants

Population Biobanks And The Principle Of Reciprocity

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Author : Ma'n H. Zawati
language : en
Publisher:
Release Date : 2018

Population Biobanks And The Principle Of Reciprocity written by Ma'n H. Zawati and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with categories.

Samples and data from population studies are stored for long periods of time, and can be accessed by national and international researchers to further their own studies and contribute to their understanding of the impact of a number of factors (e.g., environment, lifestyle) on common diseases and their progression. Part 2 of this Chapter discusses the nature of the researcher's duty to inform, which is the result of an individualistic conception of autonomy. Parts 3 and 4 review the restrictive conception of autonomy, and concludes that it is rooted in a unilateral approach that is incongruous with the nature of biobank genomic research. Finally, part 5 proposes that autonomy be complemented by the principle of reciprocity, which would not only create a fair and balanced relationship between researchers and participants, but would also recognize the public as a key contributor to genomic research.

Biobanking Of Human Biospecimens

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Author : Pierre Hainaut
language : en
Publisher: Springer
Release Date : 2017-06-06

Biobanking Of Human Biospecimens written by Pierre Hainaut and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-06-06 with Medical categories.

This volume is the first comprehensive text on human biobanking, authored by scientists and regulatory officers who have led the field over the past 10 years. It covers biobanking issues and its importance in advancing the field of research in cancer, cardiovascular, metabolic, and other diseases. Biobanks of human specimens have become the cornerstone for research on human health that harnesses the power of “omics” technologies to identify biomarkers for disease susceptibility. Biobanks are an essential component of the development of personalized medicine, which relies on the molecular analysis of biospecimens that are truly representative of individuals and of diseases. Over the past decade, biobanking has been the focus of major investments and developments aimed at developing appropriate infrastructure, methods, networking practice and evidence-based pre-analytical procedures. This volume explores topics including specimen storage, protocol design, specimen collection, pre-analytical processing and preservation, long-term storage, retrieval and separation, and distribution to analytical laboratory platforms. These activities are extremely complex and are essential for biomedical and biotechnological developments and this text provides critical information about biobanking for the development of future forms of medicine.​

Promoting The Human In Law Policy And Medicine

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Author :
language : en
Publisher: BRILL
Release Date : 2024-11-11

Promoting The Human In Law Policy And Medicine written by and has been published by BRILL this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-11-11 with Law categories.

Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized “humanity” in her academic work and in policymaking. As such, she forged a strong intellectual legacy, notably through her work on the human right to science, genomic and health-related data sharing, genome editing, human reproductive technologies, stem cell research, the rights of children, and population health. This collection of essays honours her extraordinary academic contributions to law, policy, and medicine.

Ethical Issues In Governing Biobanks

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Author : Nikola Biller-Andorno
language : en
Publisher: Routledge
Release Date : 2016-05-13

Ethical Issues In Governing Biobanks written by Nikola Biller-Andorno and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-05-13 with Science categories.

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.

Humanity Across International Law And Biolaw

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Author : Britta van Beers
language : en
Publisher: Cambridge University Press
Release Date : 2014-02-13

Humanity Across International Law And Biolaw written by Britta van Beers and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-02-13 with Law categories.

An examination of how the concept of humanity is mobilized to make legal arguments in different areas of law.

Principles And Practice In Biobank Governance

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Author : Mark Stranger
language : en
Publisher: Routledge
Release Date : 2016-04-15

Principles And Practice In Biobank Governance written by Mark Stranger and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-04-15 with Social Science categories.

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Medical Genetics And Law

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Author : Mair Crouch
language : en
Publisher: Springer Nature
Release Date : 2025-04-28

Medical Genetics And Law written by Mair Crouch and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-04-28 with Law categories.

This book is an essential resource to understanding the intersection of medical genetics and law. In a unique approach, it provides an overview on the biological principles of DNA basics and genetic inheritance linking the knowledge with the ethical and legal challenges presented by modern developments in genetics. The first chapters educate the reader in key concepts such as cell division, genetic inheritance, genome study methods, genetic screening and testing across various countries. It further expands into complex issues where regulation is required, in particular: controversial aspects of genetic modifications, ethical concerns around patient confidentiality and biobanks' role in linking genetic variation to complex diseases. It includes legal cases regarding negligence claims from conception to adulthood and reflects on the impact of present and future developments in genomics on the law. Readers will gain a deeper understanding of how developments in genetics impact individuals and society, helping them navigate this rapidly evolving field. Given the interdisciplinary approach, the book is suitable for both medical and law students, practicing lawyers, medical practitioners, and genetic counselors. It is particularly beneficial for those who deal with medical negligence and need to understand the genetic aspects of such cases.

Human Genetic Biobanks In Asia

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Author : Margaret Sleeboom-Faulkner
language : en
Publisher: Routledge
Release Date : 2008-11-19

Human Genetic Biobanks In Asia written by Margaret Sleeboom-Faulkner and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-11-19 with Business & Economics categories.

This volume investigates human genetic biobanking and its regulation in various countries in Asia, including Japan, the People’s Republic of China, the Republic of China, Hong Kong, India and Indonesia.

Biobanks

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Author : Herbert Gottweis
language : en
Publisher: Routledge
Release Date : 2008-04-28

Biobanks written by Herbert Gottweis and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-04-28 with Social Science categories.

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores: the interrelated conditions needed for a biobank to be created and to exist the rise of the new bio-economy the redefinition of citizenship accompanying national biobank developments This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.