Preparing Data For Sharing
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Preparing Data For Sharing
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Author :
language : en
Publisher: Amsterdam University Press
Release Date : 2010
Preparing Data For Sharing written by and has been published by Amsterdam University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010 with Social Science categories.
This data guide takes readers through the cycle of social science research, from applying for a research grant, through conducting the data collection phase, and ultimately to preparing the data for deposit in archives or data repositories. An adaptation of the fourth edition of the Guide to Social Science Data Preparation and Archiving of 2009 by the Inter-University Consortium for Political and Social Research at the University of Michigan, this publication will help researchers to manage, document, and archive their data and to think broadly about which types of digital content should be deposited in such an archive.
Sharing And Reuse Of Health Related Data For Research Purposes
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Author : World Health Organization
language : en
Publisher: World Health Organization
Release Date : 2022-04-06
Sharing And Reuse Of Health Related Data For Research Purposes written by World Health Organization and has been published by World Health Organization this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-04-06 with Medical categories.
This document sets out WHO policy on the sharing and reuse of health-related data for research purposes, and guidance on how to implement the policy. It clarifies for WHO staff the policy and practice on the reuse and onward sharing of health data collected under the auspices of WHO technical programmes for research purposes. Its scope includes research data generated by research undertaken directly by WHO, or funded by WHO, as well as the use of other health data for research purposes. This document also provides further references and resources to assist in the development of a data management and sharing plan that is in alignment with the vision of this policy. This covers both emergency and non-emergency situations and complements the following from the reuse perspective: Policy on use and sharing of data collected in Member States by the World Health Organization (WHO) outside the context of public health emergencies; the Policy Statement on Data Sharing by the World Health Organization in the Context of Public Health Emergencies and; the Joint statement on public disclosure of results from clinical trials.
Principles Of Big Data
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Author : Jules J. Berman
language : en
Publisher: Newnes
Release Date : 2013-05-20
Principles Of Big Data written by Jules J. Berman and has been published by Newnes this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-05-20 with Computers categories.
Principles of Big Data helps readers avoid the common mistakes that endanger all Big Data projects. By stressing simple, fundamental concepts, this book teaches readers how to organize large volumes of complex data, and how to achieve data permanence when the content of the data is constantly changing. General methods for data verification and validation, as specifically applied to Big Data resources, are stressed throughout the book. The book demonstrates how adept analysts can find relationships among data objects held in disparate Big Data resources, when the data objects are endowed with semantic support (i.e., organized in classes of uniquely identified data objects). Readers will learn how their data can be integrated with data from other resources, and how the data extracted from Big Data resources can be used for purposes beyond those imagined by the data creators. Learn general methods for specifying Big Data in a way that is understandable to humans and to computers Avoid the pitfalls in Big Data design and analysis Understand how to create and use Big Data safely and responsibly with a set of laws, regulations and ethical standards that apply to the acquisition, distribution and integration of Big Data resources
Reflections On Sharing Clinical Trial Data
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2020-11-20
Reflections On Sharing Clinical Trial Data written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-11-20 with Medical categories.
On November 18 and 19, 2019, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop in Washington, DC, titled Sharing Clinical Trial Data: Challenges and a Way Forward. The workshop followed the release of the 2015 Institute of Medicine (IOM) consensus study report Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk, and was designed to examine the current state of clinical trial data sharing and reuse and to consider ways in which policy, technology, incentives, and governance could be leveraged to further encourage and enhance data sharing. This publication summarizes the presentations and discussions from the workshop.
Principles And Obstacles For Sharing Data From Environmental Health Research
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-05-29
Principles And Obstacles For Sharing Data From Environmental Health Research written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-05-29 with Science categories.
On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.
Sharing Publication Related Data And Materials
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 2003-04-17
Sharing Publication Related Data And Materials written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-04-17 with Science categories.
Biologists communicate to the research community and document their scientific accomplishments by publishing in scholarly journals. This report explores the responsibilities of authors to share data, software, and materials related to their publications. In addition to describing the principles that support community standards for sharing different kinds of data and materials, the report makes recommendations for ways to facilitate sharing in the future.
Managing And Sharing Research Data
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Author : Louise Corti
language : en
Publisher: SAGE
Release Date : 2019-10-07
Managing And Sharing Research Data written by Louise Corti and has been published by SAGE this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-10-07 with Business & Economics categories.
Written by experts at the UK Data Archive, with over thirty years of experience in working with and teaching people to work with data, this book is the globally-reaching guide for any postgraduate student or researcher looking to build their data management skills. Focused on both primary and secondary data and packed with checklists and templates, it contains everything readers need to know for managing all types data before, during, and after the research process. Building on foundational data management techniques, it offers practical advice and insight into the unique skills needed to work with newer forms of data, like social media and big data. It also demonstrates how to: - Identify quality data that is credible, ethically-sound, and available for use - Choose and collect data suitable for particular research questions and project scopes - Work with personal, communal, administrative, and other sensitive and public data - Make the most of metadata - Visualise and share data using innovative platforms like blogs, infographics, and podcasts.
Sharing Social Science Data
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Author : Joan E. Sieber
language : en
Publisher: SAGE
Release Date : 1991-02-12
Sharing Social Science Data written by Joan E. Sieber and has been published by SAGE this book supported file pdf, txt, epub, kindle and other format this book has been release on 1991-02-12 with Education categories.
This book represents the major accomplishments of social scientists who have pioneered in data sharing, highlighting the advantages for social science. It includes an examination of the reasons for data sharing, the specific sharing practices in various disciplines, the factors affecting the usefulness of shared data and individual and institutional concerns about data sharing. It will be useful to academics across the social sciences.
Sharing Research Data
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 1985-01-01
Sharing Research Data written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1985-01-01 with Political Science categories.
Sharing Clinical Trial Data
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-04-20
Sharing Clinical Trial Data written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-20 with Medical categories.
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.