Privacy Confidentiality And Health Research
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Privacy Confidentiality And Health Research
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Author : William W. Lowrance
language : en
Publisher: Cambridge University Press
Release Date : 2012-06-21
Privacy Confidentiality And Health Research written by William W. Lowrance and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-06-21 with Law categories.
The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.
Privacy Confidentiality And Health Research
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Author : William W. Lowrance
language : en
Publisher:
Release Date : 2014-05-14
Privacy Confidentiality And Health Research written by William W. Lowrance and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-05-14 with Health services accessibility categories.
Examines how privacy, confidentiality, consent, identifiability, safeguards and data sharing affect the pursuit of health research for the common good.
Protecting Data Privacy In Health Services Research
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2001-01-13
Protecting Data Privacy In Health Services Research written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-01-13 with Computers categories.
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
Beyond The Hipaa Privacy Rule
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2009-03-24
Beyond The Hipaa Privacy Rule written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-03-24 with Computers categories.
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Privacy Under A Microscope
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Author : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions
language : en
Publisher:
Release Date : 1999
Privacy Under A Microscope written by United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1999 with Law categories.
Medical Records Privacy
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Author : United States. General Accounting Office
language : en
Publisher:
Release Date : 1999
Medical Records Privacy written by United States. General Accounting Office and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1999 with Confidential communications categories.
Data Protection And Privacy In Healthcare
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Author : Ahmed Elngar
language : en
Publisher: CRC Press
Release Date : 2021-03-09
Data Protection And Privacy In Healthcare written by Ahmed Elngar and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-03-09 with Technology & Engineering categories.
The Healthcare industry is one of the largest and rapidly developing industries. Over the last few years, healthcare management is changing from disease centered to patient centered. While on one side the analysis of healthcare data plays an important role in healthcare management, but on the other side the privacy of a patient’s record must be of equal concern. This book uses a research-oriented approach and focuses on privacy-based healthcare tools and technologies. It offers details on privacy laws with real-life case studies and examples, and addresses privacy issues in newer technologies such as Cloud, Big Data, and IoT. It discusses the e-health system and preserving its privacy, and the use of wearable technologies for patient monitoring, data streaming and sharing, and use of data analysis to provide various health services. This book is written for research scholars, academicians working in healthcare and data privacy domains, as well as researchers involved with healthcare law, and those working at facilities in security and privacy domains. Students and industry professionals, as well as medical practitioners might also find this book of interest.
Privacy Confidentiality And Discrimination In Genetics
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Author : United States. Congress. House. Committee on Commerce. Task Force on Health Records and Genetic Privacy
language : en
Publisher:
Release Date : 1998
Privacy Confidentiality And Discrimination In Genetics written by United States. Congress. House. Committee on Commerce. Task Force on Health Records and Genetic Privacy and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with Law categories.
Learning From Experience
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Author : William W. Lowrance
language : en
Publisher:
Release Date : 2002
Learning From Experience written by William W. Lowrance and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2002 with Medical records categories.
Under what conditions may data not collected specifically for research, such as primary medical data, be re-used for health research without comprimising the privacy of the data-subjects? This report explores how the two social goods - improved knowledge and privacy - implied in this question can be persued simultaneously. It describes the importance of the issue, reviews the background, mentions many examples of research and privact protection, identifies problems, and suggests ways forward.
Innovations In Federal Statistics
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2017-04-21
Innovations In Federal Statistics written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-04-21 with Social Science categories.
Federal government statistics provide critical information to the country and serve a key role in a democracy. For decades, sample surveys with instruments carefully designed for particular data needs have been one of the primary methods for collecting data for federal statistics. However, the costs of conducting such surveys have been increasing while response rates have been declining, and many surveys are not able to fulfill growing demands for more timely information and for more detailed information at state and local levels. Innovations in Federal Statistics examines the opportunities and risks of using government administrative and private sector data sources to foster a paradigm shift in federal statistical programs that would combine diverse data sources in a secure manner to enhance federal statistics. This first publication of a two-part series discusses the challenges faced by the federal statistical system and the foundational elements needed for a new paradigm.