Privacy Research And Best Practices

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Privacy Research And Best Practices

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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-02-24

Privacy Research And Best Practices written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-02-24 with Computers categories.

Recent disclosures about the bulk collection of domestic phone call records and other signals intelligence programs have stimulated widespread debate about the implications of such practices for the civil liberties and privacy of Americans. In the wake of these disclosures, many have identified a need for the intelligence community to engage more deeply with outside privacy experts and stakeholders. At the request of the Office of the Director of National Intelligence, the National Academies of Sciences, Engineering, and Medicine convened a workshop to address the privacy implications of emerging technologies, public and individual preferences and attitudes toward privacy, and ethical approaches to data collection and use. This report summarizes discussions between experts from academia and the private sector and from the intelligence community on private sector best practices and privacy research results.

G3p Good Privacy Protection Practice In Clinical Research

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Author : Karl-Heinz Schriever
language : en
Publisher: Walter de Gruyter GmbH & Co KG
Release Date : 2014-10-02

G3p Good Privacy Protection Practice In Clinical Research written by Karl-Heinz Schriever and has been published by Walter de Gruyter GmbH & Co KG this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-10-02 with Medical categories.

Establishing ethical and privacy protection aspects in scientific research, especially in medical research, has a long history. Medical data are usually more sensible than other personal data and require therefore an even higher degree of protection than other personal data. In recent research projects genetic evaluations become more and more important and trigger thereby new and continuing activities in the context of data protection. Genetic data as a subset of medical data are the most sensible category of personal data and require therefore the highest degree of data protection. The book provides a systematic and itemized approach to data protection in clinical research including the handling of genetic material, genetic samples as well as derived genetic data and the subsequent secure storage of them. The set up of different kinds of clinical trials having in addition a genetic part, the concept of a genetic informed consent as well as collection schemes of samples are described in detail. Technical requirements and aspects of data protection including pseudonymization and anonymization procedures taking into account ethics committees requirements as well as the underlying legal framework are also presented. Without any exception, all principles and methods presented are best practices, repeatedly applied in different clinical environments and by no means theoretical considerations.

The Art Of Online Research Methods Ethical Considerations And Bestpractices

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Author : Pasquale De Marco
language : en
Publisher: Pasquale De Marco
Release Date : 2025-07-10

The Art Of Online Research Methods Ethical Considerations And Bestpractices written by Pasquale De Marco and has been published by Pasquale De Marco this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-07-10 with Social Science categories.

**The Art of Online Research: Methods, Ethical Considerations, and Best Practices** provides a comprehensive guide to conducting effective online research. This book empowers researchers with the knowledge and skills to navigate the digital landscape, collect and analyze data responsibly, and make meaningful contributions to their fields. Covering a wide range of topics, from sampling techniques and data collection methods to ethical considerations and best practices, this book offers practical guidance for researchers at all levels. It explores the unique challenges and opportunities presented by online research, ensuring that researchers are well-equipped to conduct rigorous and ethical studies. With its emphasis on ethical research practices, this book highlights the importance of privacy and confidentiality, informed consent, and social justice issues. It provides researchers with the tools they need to address ethical dilemmas and ensure the responsible use of online research methods. **The Art of Online Research** also delves into emerging trends and technological advancements in online research. It examines the impact of artificial intelligence and discusses the future of this rapidly evolving field. This book prepares researchers for the challenges and opportunities that lie ahead, ensuring that they remain at the forefront of research innovation. Featuring case studies and examples from various disciplines, this book provides real-world insights into the application of online research methods. Researchers will gain a deeper understanding of how to design effective online surveys, conduct ethical online interviews, and analyze online data to draw meaningful conclusions. Whether you are a seasoned researcher or just starting out in the field, **The Art of Online Research** is an indispensable resource. It provides a comprehensive overview of online research methods, ethical considerations, and best practices, empowering researchers to conduct high-quality and impactful studies. If you like this book, write a review!

Protecting Data Privacy In Health Services Research

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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2001-01-13

Protecting Data Privacy In Health Services Research written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-01-13 with Computers categories.

The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Beyond The Hipaa Privacy Rule

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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2009-03-24

Beyond The Hipaa Privacy Rule written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-03-24 with Computers categories.

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Beyond The Hipaa Privacy Rule

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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2009-02-24

Beyond The Hipaa Privacy Rule written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-02-24 with Computers categories.

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Oecd Health Policy Studies Health Data Governance Privacy Monitoring And Research

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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2015-10-05

Oecd Health Policy Studies Health Data Governance Privacy Monitoring And Research written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-10-05 with categories.

This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.

Privacy Trust And Social Media

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Author : Joanna Paliszkiewicz
language : en
Publisher: Taylor & Francis
Release Date : 2023-12-11

Privacy Trust And Social Media written by Joanna Paliszkiewicz and has been published by Taylor & Francis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-12-11 with Business & Economics categories.

Trust is important – it influences new technologies adoption and learning, enhances using social media, new technologies, IoT, and blockchain, and it contributes to the practical implementations of cybersecurity policy in organizations. This edited research volume examines the main issues and challenges associated with privacy and trust on social media in a manner relevant to both practitioners and scholars. Readers will gain knowledge across disciplines on trust and related concepts, theoretical underpinnings of privacy issues and trust on social media, and empirically-validated trust-building practice on social media. Social Media, Privacy Issues and Trust-building aims to bring together the theory and practice of social media, privacy issues, and trust. It offers a look at the current state of trust and privacy, including a comprehensive overview of both research and practical applications. It shows the latest state of knowledge on the topic and will be of interest to researchers, students at an advanced level, and academics, in the fields of business ethics, entrepreneurship, management of technology and innovation, marketing, and information management. Practitioners can also use the book as a toolbox to improve their understanding and promote opportunities related to building social media trust while taking into consideration of privacy issues.

Information Security And Privacy Research

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Author : Dimitris Gritzalis
language : en
Publisher: Springer
Release Date : 2012-06-06

Information Security And Privacy Research written by Dimitris Gritzalis and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-06-06 with Computers categories.

This book constitutes the refereed proceedings of the 27th IFIP TC 11 International Information Security Conference, SEC 2012, held in Heraklion, Crete, Greece, in June 2012. The 42 revised full papers presented together with 11 short papers were carefully reviewed and selected from 167 submissions. The papers are organized in topical sections on attacks and malicious code, security architectures, system security, access control, database security, privacy attitudes and properties, social networks and social engineering, applied cryptography, anonymity and trust, usable security, security and trust models, security economics, and authentication and delegation.

Privacy And Identity Management The Smart Revolution

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Author : Marit Hansen
language : en
Publisher: Springer
Release Date : 2018-06-08

Privacy And Identity Management The Smart Revolution written by Marit Hansen and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018-06-08 with Computers categories.

This book contains selected papers presented at the 12th IFIP WG 9.2, 9.5, 9.6/11.7, 11.6/SIG 9.2.2 International Summer School on Privacy and Identity Management, held in Ispra, Italy, in September 2017. The 12 revised full papers, 5 invited papers and 4 workshop papers included in this volume were carefully selected from a total of 48 submissions and were subject to a three-phase review process. The papers combine interdisciplinary approaches to bring together a host of perspectives: technical, legal, regulatory, socio-economic, social, societal, political, ethical, anthropological, philosophical, and psychological. They are organized in the following topical sections: privacy engineering; privacy in the era of the smart revolution; improving privacy and security in the era of smart environments; safeguarding personal data and mitigating risks; assistive robots; and mobility and privacy.