Protecting Genetic Privacy In Biobanking Through Data Protection Law
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Protecting Genetic Privacy In Biobanking Through Data Protection Law
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Author : Dara Hallinan
language : en
Publisher:
Release Date : 2021
Protecting Genetic Privacy In Biobanking Through Data Protection Law written by Dara Hallinan and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021 with Law categories.
Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.
Protecting Genetic Privacy In Biobanking Through Data Protection Law
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Author : Dara Hallinan
language : en
Publisher: Oxford University Press
Release Date : 2021-03-11
Protecting Genetic Privacy In Biobanking Through Data Protection Law written by Dara Hallinan and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-03-11 with Law categories.
Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe. Hallinan argues that the substantive framework presented by the GDPR already offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking. The book further argues that, whilst numerous problems with this standard of protection are indeed identifiable, the GDPR offers the flexibility to accommodate solutions to these problems, as well as the procedural mechanisms to realise these solutions.
Medical Genetics And Law
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Author : Mair Crouch
language : en
Publisher: Springer Nature
Release Date : 2025-04-28
Medical Genetics And Law written by Mair Crouch and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-04-28 with Law categories.
This book is an essential resource to understanding the intersection of medical genetics and law. In a unique approach, it provides an overview on the biological principles of DNA basics and genetic inheritance linking the knowledge with the ethical and legal challenges presented by modern developments in genetics. The first chapters educate the reader in key concepts such as cell division, genetic inheritance, genome study methods, genetic screening and testing across various countries. It further expands into complex issues where regulation is required, in particular: controversial aspects of genetic modifications, ethical concerns around patient confidentiality and biobanks' role in linking genetic variation to complex diseases. It includes legal cases regarding negligence claims from conception to adulthood and reflects on the impact of present and future developments in genomics on the law. Readers will gain a deeper understanding of how developments in genetics impact individuals and society, helping them navigate this rapidly evolving field. Given the interdisciplinary approach, the book is suitable for both medical and law students, practicing lawyers, medical practitioners, and genetic counselors. It is particularly beneficial for those who deal with medical negligence and need to understand the genetic aspects of such cases.
The Emergence Of Biolaw
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Author : Takis Vidalis
language : en
Publisher: Springer Nature
Release Date : 2022-06-20
The Emergence Of Biolaw written by Takis Vidalis and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-06-20 with Law categories.
This book introduces “biolaw” as an integrated and distinct field in contemporary legal studies. Corresponding to the legal dimension of bioethics, the term “biolaw” is already in use in academic and research activities to denote legal issues emerging mostly from advanced technological applications. This book is a genuine attempt to rationalize the field of biolaw after almost four decades of continuous production of relevant legislation and judgments worldwide. This experience is a robust basis for defending a) a separate legal object, covering the total of legal norms that govern the management of life as a natural phenomenon in all its possible forms, and b) an “evolutionary” approach that opens the discussion on a future conciliation of legal regulation with the Theory of Evolution on the ground of biolaw.
Cybersecurity Privacy And Data Protection In Eu Law
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Author : Maria Grazia Porcedda
language : en
Publisher: Bloomsbury Publishing
Release Date : 2023-03-23
Cybersecurity Privacy And Data Protection In Eu Law written by Maria Grazia Porcedda and has been published by Bloomsbury Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-03-23 with Law categories.
Is it possible to achieve cybersecurity while safeguarding the fundamental rights to privacy and data protection? Addressing this question is crucial for contemporary societies, where network and information technologies have taken centre stage in all areas of communal life. This timely book answers the question with a comprehensive approach that combines legal, policy and technological perspectives to capture the essence of the relationship between cybersecurity, privacy and data protection in EU law. The book explores the values, interconnections and tensions inherent to cybersecurity, privacy and data protection within the EU constitutional architecture and its digital agendas. The work's novel analysis looks at the interplay between digital policies, instruments including the GDPR, NIS Directive, cybercrime legislation, e-evidence and cyber-diplomacy measures, and technology as a regulatory object and implementing tool. This original approach, which factors in the connections between engineering principles and the layered configuration of fundamental rights, outlines all possible combinations of the relationship between cybersecurity, privacy and data protection in EU law, from clash to complete reconciliation. An essential read for scholars, legal practitioners and policymakers alike, the book demonstrates that reconciliation between cybersecurity, privacy and data protection relies on explicit and brave political choices that require an active engagement with technology, so as to preserve human flourishing, autonomy and democracy.
The De Gruyter Handbook On Law And Digital Technologies
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Author : Massimo Durante
language : en
Publisher: Walter de Gruyter GmbH & Co KG
Release Date : 2025-09-22
The De Gruyter Handbook On Law And Digital Technologies written by Massimo Durante and has been published by Walter de Gruyter GmbH & Co KG this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-09-22 with Computers categories.
The De Gruyter Handbook on Law and Digital Technologies provides a comprehensive, accessible and thought-provoking guide to the current and future regulation of digital technologies. It addresses key legal challenges such as reconceptualizing crucial, deep-rooted notions, including those of person, autonomy, democracy, the rule of law, sovereignty, constitutionalism and governance. The handbook proposes critical explorations of the potential impact of digital technologies on new and traditional forms of governance and regulation across different and competitive normative perspectives such as law, economy, social norms and legal design. In this framework, it addresses the societal transformations brought about by digital technologies, the legal means for regulating the field, and the impact of governance in areas such as fintech, sustainability, outer space, or healthcare.
Principles And Advances In Population Neuroscience
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Author : Tomáš Paus
language : en
Publisher: Springer Nature
Release Date : 2024-11-23
Principles And Advances In Population Neuroscience written by Tomáš Paus and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-11-23 with Science categories.
Principles and Advances in Population Neuroscience is aimed at enhancing our understanding of forces that shape the human brain and, as such, contribute to inter-individual variations in cognitive abilities, behavior and mental health throughout the lifespan. This book builds on a monograph "Population Neuroscience" (published by Springer in 2013; ISBN: 978-3-642-36450-1), a recent book on “Digital Ethology: Human Behavior in Geospatial Context” (published by MIT Press in 2024; ISBN: 9780262548137), and the collaborative work carried in the CHARGE and ENIGMA Consortia. Using collective expertise and knowledge with combining epidemiology, genetics and neuroimaging, the authors provide an overview of the basic principles and current advances in this field.
Ukrainian Healthcare Law In The Context Of European And International Law
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Author : Roman Maydanyk
language : en
Publisher: Springer Nature
Release Date : 2022-10-12
Ukrainian Healthcare Law In The Context Of European And International Law written by Roman Maydanyk and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-10-12 with Law categories.
This is an increasingly timely book, focusing on issues arising from the impact of COVID-19 on the health care law of the Central and East European countries. It deals with dualism and system of health care law, depicts legal personality in the field of health care, examines property rights and turnover of human tissues, considers moral rights in this field, intellectual ownership in the field of medicine and pharmacy, contracts on health care and contracts on rendering medical services, the legal relationships of transplantology, post-mortem reproduction and donorship, features of family personal property rights in the field of health care, problems of legal regulation of medical workers labour, investigates private legal relationships of surrogate motherhood with foreign element. Special attention is given to the alternative resolution of health care disputes and impact of pandemic on the effective health rights protection. The book is intended for wide auditoria of scholars and practitioners, who engaged in health care rights protection, as well as judges and practicing lawyers, graduate and undergraduate students.
Gdpr And Biobanking
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Author : Santa Slokenberga
language : en
Publisher: Springer Nature
Release Date : 2021-01-05
Gdpr And Biobanking written by Santa Slokenberga and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-01-05 with Law categories.
This open access book focuses on the discrepancies in biobank research regulations that are among the most significant hurdles to effective research collaboration. The General Data Protection Regulation (GDPR) has established stringent requirements for the processing of health and genetic data, while simultaneously allowing considerable multi-level exceptions for the purposes of scientific research. In addition to directly applicable exceptions, the GDPR places the regulatory responsibility for further defining how the Member States strike a balance between the individuals' rights and the public interest in research within their national legal orders. Since Member States' approaches to the trade-off between data subjects' rights on the one hand, and appropriate safeguards on the other, differ according to their ethical and legal traditions, their data protection requirements for research also differ considerably. This study takes a comprehensive approach to determine how the GDPR affects regulatory regimes on the use of personal data in biobanking research, with a particular focus on the balance between individuals' rights, public interest and scientific research. In this regard, it has two main goals: first, to scrutinize the GDPR research regime, its objective and constitutive elements, the impact it has on biobanking, and its role in a changing EU landscape post-Brexit; and second, to examine how various exceptions have been operationalized nationally, and what challenges and opportunities this diversification entails. The book not only captures the complexity GDPR creates for biobanking, but also sheds light on various approaches to tackling the corresponding challenges. It offers the first comprehensive analysis of GDPR for biobanking, and the most up-to-date overview of the national biobank regulatory frameworks in Europe.
Cyber Law Privacy And Security Concepts Methodologies Tools And Applications
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Author : Management Association, Information Resources
language : en
Publisher: IGI Global
Release Date : 2019-06-07
Cyber Law Privacy And Security Concepts Methodologies Tools And Applications written by Management Association, Information Resources and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-06-07 with Law categories.
The internet is established in most households worldwide and used for entertainment purposes, shopping, social networking, business activities, banking, telemedicine, and more. As more individuals and businesses use this essential tool to connect with each other and consumers, more private data is exposed to criminals ready to exploit it for their gain. Thus, it is essential to continue discussions involving policies that regulate and monitor these activities, and anticipate new laws that should be implemented in order to protect users. Cyber Law, Privacy, and Security: Concepts, Methodologies, Tools, and Applications examines current internet and data protection laws and their impact on user experience and cybercrime, and explores the need for further policies that protect user identities, data, and privacy. It also offers the latest methodologies and applications in the areas of digital security and threats. Highlighting a range of topics such as online privacy and security, hacking, and online threat protection, this multi-volume book is ideally designed for IT specialists, administrators, policymakers, researchers, academicians, and upper-level students.