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Quality Of Life Measurement In Neurodegenerative And Related Conditions


Quality Of Life Measurement In Neurodegenerative And Related Conditions
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Quality Of Life Measurement In Neurodegenerative And Related Conditions


Quality Of Life Measurement In Neurodegenerative And Related Conditions
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Author : Crispin Jenkinson
language : en
Publisher: Cambridge University Press
Release Date : 2011-02-03

Quality Of Life Measurement In Neurodegenerative And Related Conditions written by Crispin Jenkinson and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-02-03 with Medical categories.


Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.



Quality Of Life Measurement In Neurodegenerative And Related Conditions


Quality Of Life Measurement In Neurodegenerative And Related Conditions
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Author : Crispin Jenkinson
language : en
Publisher:
Release Date : 2014-05-14

Quality Of Life Measurement In Neurodegenerative And Related Conditions written by Crispin Jenkinson and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-05-14 with Nervous system categories.


Outlines the development and application of a variety of patient-reported outcome measures in a wide range of neurological conditions.



Amyotrophic Lateral Sclerosis


Amyotrophic Lateral Sclerosis
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Author : Francesco Pagnini
language : en
Publisher: Oxford University Press
Release Date : 2018

Amyotrophic Lateral Sclerosis written by Francesco Pagnini and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with Medical categories.


Amyotrophic lateral sclerosis: Understanding and optimizing quality of life and psychological well-being presents a comprehensive and up-to-date review of the enhancement of the lives of people with amyotrophic lateral sclerosis (ALS) and their caregivers. ALS is a progressive, fatal neurodegenerative disorder. No current medical therapy can reverse or stop its progression, and the promotion of quality of life and psychological well-being is a central component of ALS care. Health care professionals who work in this field should incorporate attention to psychological, emotional, and relational aspects of the disease into their approach to care. This book provides some of the knowledge and direction necessary for optimizing the quality of care for individuals with ALS and their caregivers. Topics discussed include an ALS-centred view of quality of life, depressive features, anxiety, resilience, cognitive impairment, complementary and alternative medicines, and psychological research.



Children And Young People S Response To Parental Illness


Children And Young People S Response To Parental Illness
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Author : David Morley
language : en
Publisher: CRC Press
Release Date : 2016-09-15

Children And Young People S Response To Parental Illness written by David Morley and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-09-15 with Medical categories.


Assessment of the impact of parental illness has gathered significant momentum over recent years. This book provides an up-to-date guide, for a variety of professionals, on how a range of conditions might impact upon children and young people. Each chapter provides an overview of current literature, an evaluation of relevant interventions, an ‘in practice’ section that provides guidance for readers in terms of best practice, and future research directions. Although the primary focus of the book is directed at children’s and young people’s response to their parent’s condition, the challenges of parenting are also frequently highlighted. Additionally, the text provides an overview of measurement issues when investigating children’s and young people’s response to parental illness.



Fragile X Spectrum Disorders


Fragile X Spectrum Disorders
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Author : Randi Jenssen Hagerman
language : en
Publisher: Frontiers Media SA
Release Date : 2022-08-29

Fragile X Spectrum Disorders written by Randi Jenssen Hagerman and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-08-29 with Science categories.




Physical Exercise For Age Related Neuromusculoskeletal Disorders


Physical Exercise For Age Related Neuromusculoskeletal Disorders
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Author : Xue-Qiang Wang
language : en
Publisher: Frontiers Media SA
Release Date : 2023-01-19

Physical Exercise For Age Related Neuromusculoskeletal Disorders written by Xue-Qiang Wang and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-01-19 with Science categories.




Metal Based Neurodegeneration


Metal Based Neurodegeneration
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Author : Robert Crichton
language : en
Publisher: John Wiley & Sons
Release Date : 2006-05-01

Metal Based Neurodegeneration written by Robert Crichton and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-05-01 with Medical categories.


This exciting new book opens a window into the causes ofdebilitating neurological disorders such as Parkinson’sdisease, CJD and Huntington’s disease, and gives indicationsof the prospects for therapy, based on the understanding ofmolecular defects involved in these diseases. Looking at each specific neurological disorder in turn, the bookoutlines the role of metals in human biology, in particular in thebrain and explores tools for testing potential therapeuticstrategies. It concludes with an overview of the potential of bothchelation and antioxidant therapy and outlines some perspectivesfor the future.



Aphasia And Related Neurogenic Communication Disorders


Aphasia And Related Neurogenic Communication Disorders
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Author : Ilias Papathanasiou
language : en
Publisher: Jones & Bartlett Learning
Release Date : 2021-06-03

Aphasia And Related Neurogenic Communication Disorders written by Ilias Papathanasiou and has been published by Jones & Bartlett Learning this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-06-03 with Medical categories.


"Aphasia and Related Neurogenic Communication Disorders is designed for the graduate course on Aphasia. Part 1 of the textbook covers aphasiology, while part 2 addresses related disorders. Overall, the textbook offers an overview of aphasia and related neurogenic communication disorders by presenting important recent advances and clinically relevant information. It emphasizes Evidence Based Practice by critically reviewing the pertinent literature and its relevance for best clinical practices. Case studies in all clinical chapters illustrate key topics, and a "Future Directions" section in each chapter provides insight on where the field may be headed. The WHO ICF Framework is introduced in the beginning of the text and then reinforced and infused throughout"--



Financial Incentives To Encourage Development Of Therapies That Address Unmet Medical Needs For Nervous System Disorders


Financial Incentives To Encourage Development Of Therapies That Address Unmet Medical Needs For Nervous System Disorders
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-10-22

Financial Incentives To Encourage Development Of Therapies That Address Unmet Medical Needs For Nervous System Disorders written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-10-22 with Medical categories.


The Institute of Medicine (IOM) Forum on Neuroscience and Nervous System Disorders, in collaboration with the IOM Forum on Drug Discovery, Development, and Translation, convened a workshop on January 20-21, 2015, to explore policy changes that might increase private sector investment in research and development innovation that fills unmet medical needs for central nervous system (CNS) disorders. Workshop participants strategized about how to incentivize companies to fortify their CNS drug development programs, shrinking obstacles that currently deter ventures. Representatives from academia, government agencies, patient groups, and industry gathered to share information and viewpoints, and to brainstorm about budget-neutral policy changes that could help widen the pipeline toward drugs that address unmet needs for CNS disorders. This report summarizes the presentations and discussion of the workshop.



Official Journal Of The European Communities


Official Journal Of The European Communities
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Author :
language : en
Publisher:
Release Date : 1998

Official Journal Of The European Communities written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998 with European communities categories.