Rare Diseases In The Age Of Health 2 0
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Rare Diseases In The Age Of Health 2 0
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Author : Rajeev K. Bali
language : en
Publisher: Springer Science & Business Media
Release Date : 2013-10-21
Rare Diseases In The Age Of Health 2 0 written by Rajeev K. Bali and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-10-21 with Technology & Engineering categories.
This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.
Rare Diseases Epidemiology Update And Overview
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Author : Manuel Posada de la Paz
language : en
Publisher: Springer
Release Date : 2017-12-06
Rare Diseases Epidemiology Update And Overview written by Manuel Posada de la Paz and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-12-06 with Medical categories.
The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.
Rare Diseases Epidemiology Update And Overview
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Author : Manuel Posada de la Paz
language : en
Publisher: Springer
Release Date : 2017-12-20
Rare Diseases Epidemiology Update And Overview written by Manuel Posada de la Paz and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-12-20 with Medical categories.
The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.
Analyzing Current Digital Healthcare Trends Using Social Networks
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Author : Baral, Sukanta Kumar
language : en
Publisher: IGI Global
Release Date : 2024-04-05
Analyzing Current Digital Healthcare Trends Using Social Networks written by Baral, Sukanta Kumar and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-04-05 with Computers categories.
In the world of digital healthcare, a critical issue looms large, demanding the immediate attention of academic scholars. The convergence of developing medical technologies, innovative digital solutions, and intricate healthcare structures has set the stage for a seismic transformation. However, the understanding of this evolving landscape remains inadequate, and the urgency to decipher these intricacies has never been more pressing. As we witness the rapid expansion of mobile-based digital healthcare, a fundamental problem becomes evident – a lack of comprehensive research on the industry's structure and dynamics. This gaping void in knowledge is the challenge that Analyzing Current Digital Healthcare Trends Using Social Networks undertakes with groundbreaking academic rigor. This book is a key resolution to this overarching problem, and it is meticulously designed to serve academic scholars seeking to unravel the intricacies of the digital healthcare ecosystem. By delving deep into the web of stakeholders, industry-specific challenges, and regulatory frameworks, it provides a comprehensive analysis that is long overdue. Extensive use of research articles, case studies, and empirical evidence serves as a compass to navigate the complexities of digital healthcare. The ultimate goal is to empower academic scholars with knowledge, bridging the gap between theory and practice.
Articles On Fatigue
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Author : American Society for Testing Materials
language : en
Publisher:
Release Date : 1950
Articles On Fatigue written by American Society for Testing Materials and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1950 with Metals categories.
Communicating Rare Diseases And Disorders In The Digital Age
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Author : Costa, Liliana Vale
language : en
Publisher: IGI Global
Release Date : 2020-01-03
Communicating Rare Diseases And Disorders In The Digital Age written by Costa, Liliana Vale and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-01-03 with Medical categories.
A primary concern of rare disease diagnosis is the lack of accurate information that may lead to delayed interventions, administering inaccurate treatments, and social consequences. Health communication continues to be one-way and rely on the expertise from the health practitioner. In such a broad spectrum of rare diseases, patients may find it difficult to obtain timely information, accurate diagnosis, and appropriate treatments, surgeries, medications, or psychological counseling in their own countries. The use of information and communication technologies can create new communication channels that address this lack of knowledge. Communicating Rare Diseases and Disorders in the Digital Age is an essential reference source that uses computer-mediated communication to improve patient knowledge when afflicted or dealing with rare health conditions. Featuring research on topics such as support networking, eHealth management, and social computing, this book is ideally designed for health practitioners, physicians, patients, medical administrators, nurses, surgeons, infectious disease educators, hospital directors, world health organizations, academicians, students, and researchers seeking coverage on current advances in health communication, computer science, and epidemiology.
Rare Diseases Epidemiology
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Author : Manuel Posada de la Paz
language : en
Publisher: Springer
Release Date : 2012-11-07
Rare Diseases Epidemiology written by Manuel Posada de la Paz and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-11-07 with Medical categories.
In our etiologic research, we epidemiologists need to leave behind the concepts of ‘cohort’ study and ‘case–control’ study and adopt that of the etiologic study as the singular substitute for these. With this sentence, the famous epidemiologist Professor Olli S. Miettinen began his personal re ection on the future of the epidemiology [1]. He sought to highlight the fact that the role of the epidemiologist should be mainly focused on aetiological research. Nevertheless, the widespread idea still exists that epidemiology is limited to purely providing gures and descriptive data on the frequency and distribution of disease. Indeed, it is more than likely that the precise aim of those rst classic epidemiological steps, i. e. , methods essentially based on describing the distri- tion of a given disease, is still not all that well understood by many scientists, let alone the general public. Such descriptions seek to generate hypotheses and afford explanations for key factors (be these risk factors or the presumable causes th- selves), which might justify differences in terms of persons, time or place and, in turn, ultimately serve to develop preventive measures and/or gain quality-adjusted life years. To restrict the goals of epidemiology to activities exclusively concerned with reporting gures or even complex statistical results is a great mistake, one that renders it dif cult to take full advantage of the epidemiologist’s true role, which is “to study disease determinants and to assess the actual impact of factors involved in their development, distribution and dissemination”.
Rare Diseases
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Author : Mani T. Valarmathi
language : en
Publisher: BoD – Books on Demand
Release Date : 2021-09-22
Rare Diseases written by Mani T. Valarmathi and has been published by BoD – Books on Demand this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-09-22 with Medical categories.
A rare disease is any disease or condition that affects a small percentage of the population. Many rare conditions are life-threatening or chronically debilitating, and unfortunately do not have appropriate treatments, rendering them incurable. In recent years, there has been substantial development in the area of rare disease research and its clinical applications, for instance, rare disease biology and genomics, epidemiology and preventions, early detection and screening, and diagnosis and treatment. In this context, this book consolidates the recent advances in rare disease biology and therapeutics, covering a wide spectrum of interrelated topics, and disseminates this essential knowledge in a comprehensible way to a greater scientific and clinical audience as well as patients, caregivers, and drug and device manufacturers, especially to support rare disease product development. Chapters cover such diseases as Felty’s syndrome, Löfgren’s syndrome, mesothelioma, epidermolysis bullosa, and more. This book is a valuable resource not only for medical and allied health students but also for researchers, clinical and nurse geneticists, genetic counselors, and physician assistants.
Rare Diseases And Orphan Products
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2011-04-03
Rare Diseases And Orphan Products written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-04-03 with Medical categories.
Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.
Issues In Healthcare Management Economics And Education 2013 Edition
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Author :
language : en
Publisher: ScholarlyEditions
Release Date : 2013-05-01
Issues In Healthcare Management Economics And Education 2013 Edition written by and has been published by ScholarlyEditions this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-05-01 with Medical categories.
Issues in Healthcare Management, Economics, and Education: 2013 Edition is a ScholarlyEditions™ book that delivers timely, authoritative, and comprehensive information about Health Care Management. The editors have built Issues in Healthcare Management, Economics, and Education: 2013 Edition on the vast information databases of ScholarlyNews.™ You can expect the information about Health Care Management in this book to be deeper than what you can access anywhere else, as well as consistently reliable, authoritative, informed, and relevant. The content of Issues in Healthcare Management, Economics, and Education: 2013 Edition has been produced by the world’s leading scientists, engineers, analysts, research institutions, and companies. All of the content is from peer-reviewed sources, and all of it is written, assembled, and edited by the editors at ScholarlyEditions™ and available exclusively from us. You now have a source you can cite with authority, confidence, and credibility. More information is available at http://www.ScholarlyEditions.com/.