Self Management Support To Handle Everyday Life With Parkinson S Disease
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Self Management Support To Handle Everyday Life With Parkinson S Disease
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Author : Carina Hellqvist
language : en
Publisher: Linköping University Electronic Press
Release Date : 2020-04-27
Self Management Support To Handle Everyday Life With Parkinson S Disease written by Carina Hellqvist and has been published by Linköping University Electronic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-04-27 with Electronic books categories.
Background: Being diagnosed with Parkinson´s disease (PD) is a life-altering experience. The long-term condition requires continuous adjustments to the everyday life not only of the person affected, but also for care partners. There is still insufficient knowledge on how best to support this process of acceptance and adjustment to encourage self-management. Aims: The aim of this thesis is to enhance the knowledge and understanding of self-management for persons with PD (PwPD) and their care partners. Furthermore, to investigate whether the self-management intervention Swedish National Parkinson School can be used as a tool to support self-management, and how nurses specialised in the care of persons with Parkinson´s disease can tailor their support to encourage self-management in everyday life. Method and design: Both qualitative and quantitative designs and methods were used in the three studies included in this thesis. Participants included a total of 209 persons. Of these, 127 were persons with PD and 75 were care partners. Participants with PD were largely in the middle stages of the disease. The time since diagnosis ranged from less than one year to over 20 years, and most participants had lived with the disease for around five years. Participants were cared for at five separate outpatient clinics, both geriatric and neurological, in three county and two university hospitals across Sweden. Data collection included observations, interviews, self-reported questionnaires and audio-recordings of the National Parkinson School in clinical care. The overall results of this thesis were obtained using a qualitative approach, where the results of the three studies were analysed using qualitative thematic analysis as described by Braun and Clarke (2006). Results: In combining the results of the separate studies through thematic analysis three distinct but interrelated themes were evident. These described the processes and efforts of persons to accept, manage and adjust to everyday life with PD. The theme “A changed reality” involves participants´ descriptions of how life changed after the diagnosis of PD. For many this was a shock, and both the person affected and their care partners experienced a variety of emotions such as anger, denial and hopelessness. It changed their personal identities, their perception of themselves as individuals and as a couple. They worried about what the future would hold, and the uncertainty was hard to accept and handle. One strategy for processing and beginning to acknowledge the new situation involved speaking openly about the diagnosis. The second theme “Finding a new path”, involves a description of how, after accepting or at least acknowledging, their new reality, participants started to find ways of managing the impact of PD on everyday life, incorporating it into their current life and identity. Many felt new knowledge was needed and turned to books and websites on PD. An intervention which was appreciated in terms of providing tools for self-observation and self-knowledge was the Swedish National Parkinson School. Participants later used these techniques to communicate and observe symptoms and healthcare needs. Being an active participant in life and performing activities such as physical exercise or other activities they enjoyed were also used as a strategy to feel satisfaction in life. Participants frequently worked out self-care and compensatory strategies to handle everyday tasks. Another strategy they found comforting and helpful involved retaining a positive mind-set and believing that a good future lay ahead. In the third category “The companions”, the participants described self-management in everyday life as a task they performed together. Management of PD was considered the shared responsibility of the person affected and the care partner, but was also influenced by others such as family members and close friends. The Swedish National Parkinson School provided knowledge as a form of common ground for the person affected and the care partner. During the Swedish National Parkinson School, the social interaction involved in exchanging experiences and feeling support from others in the same situation was considered helpful and was much appreciated. Conclusions: Management of PD in everyday life involves both the person affected and the care partner. After the initial emotional reactions, alongside feelings of lost identity and an altered life, persons started to look to the future and were ready to find ways of handling the changed conditions of their everyday lives. Persons with PD and their care partners were now willing to learn more about PD and to find tools and strategies to help them manage its impact on their everyday lives. During this phase, they appreciated the support of the Swedish National Parkinson School intervention. In the intervention, they would meet others in the same situation to find support and exchange experiences. They also turn to healthcare for support in the process of self-management in everyday life. Nurses working specifically to support PwPD and their CP will need to tailor support taking into account the disease trajectory as well as the psychological processes involved in accepting and adjusting to PD to best fit the unique needs and wishes of every person with PD and their care partner.
Patient Education For People With Parkinson S Disease And Their Carers
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Author : Marcia Smith Pasqualini
language : en
Publisher: John Wiley & Sons
Release Date : 2006-10-02
Patient Education For People With Parkinson S Disease And Their Carers written by Marcia Smith Pasqualini and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-10-02 with Psychology categories.
This manual provides the information and materials needed to conduct an eight-session patient education programme for people with Parkinson’s disease and their carers, complementing medical treatment. This programme was developed within an interdisciplinary European consortium, comprising research and clinical centres in Germany, Spain, Finland, Italy, The Netherlands, Estonia and the United Kingdom. In addition to dealing with the motor symptoms of Parkinson’s disease, many people also struggle with the psychological and social effects. In fact, people at every stage of the disease can be faced with problems such as depression, anxiety, stressful social interactions, and difficulties communicating, all of which can disrupt their lives. This programme draws upon basic psychological principles and presents specific strategies that people can use to manage these difficulties. The ultimate goal of the programme is to empower people with Parkinson’s disease and their carers to improve their own quality of life. Although the programme is standardised, flexibility is built into the programme to facilitate its use in different cultures, and with different types of patient and carer groups. Patient Education for People with Parkinson’s Disease and Their Carers: A Manaual is essential reading for all health care professionals and trained volunteers working with people with Parkinson’s disease and their carers.
Occupational Therapy For People With Parkinson S Disease
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Author : Ana Aragon
language : en
Publisher:
Release Date : 2010
Occupational Therapy For People With Parkinson S Disease written by Ana Aragon and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010 with Occupational therapy categories.
These practice guidelines draw upon the widest relevant knowledge and evidence available to describe and inform contemporary best practice occupational therapy for people with Parkinson's disease. They include practical examples of interventions to allow occupational therapists to apply new treatments to their practice.
Ending Parkinson S Disease
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Author : Ray Dorsey
language : en
Publisher: Public Affairs
Release Date : 2021-03-16
Ending Parkinson S Disease written by Ray Dorsey and has been published by Public Affairs this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-03-16 with categories.
In this "must-read" guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.
Nvivo 12 Essentials
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Author : Bengt Edhlund
language : en
Publisher: Lulu.com
Release Date : 2019-04-11
Nvivo 12 Essentials written by Bengt Edhlund and has been published by Lulu.com this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-04-11 with Computers categories.
"Bengt Edhlund and Allan McDougall have worked with researchers tasked with analyzing hundreds of interview and focus groups, or thousands of short-answer questionnaires. This book provides a balanced, unbiased explanation of what NVivo 12 can and cannot do. The book also provides dozens of tips and tricks for optimizing NVivo's functionality using alongside a range of other software tools, such as Evernote, OneNote, YouTube, and EndNote."--Cover description
Parkinson S Disease
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Author : Shelley Peterman Schwarz
language : en
Publisher: Demos Medical Publishing
Release Date : 2006-06-06
Parkinson S Disease written by Shelley Peterman Schwarz and has been published by Demos Medical Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-06-06 with Health & Fitness categories.
An indispensable resource for patients, families, and caregivers Filled with creative tips and techniques, this updated second edition of Parkinson's Disease: 300 Tips for Making Life Easier contains a wealth of ideas and shortcuts for working, organizing, simplifying, and conserving time and energy while living with Parkinson's disease. It includes: Ways to make your home safe and accessible, your mealtimes more pleasurable, and your communications easier Unique product suggestions that make daily living tasks less stressful Extensive resources to help you easily locate items and services
Life In The Balance
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Author : Thomas B. Graboys
language : en
Publisher: Union Square Press
Release Date : 2008
Life In The Balance written by Thomas B. Graboys and has been published by Union Square Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008 with Biography & Autobiography categories.
Chronicles the author's descent from a top cardiologist to a patient slowly succumbing to Parkinson's disease and dementia, including how he struggles with the feelings he experiences daily and the impact of the diseases in his life.
Community Care In Hong Kong
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Author : Kar-wai TONG
language : en
Publisher: City University of HK Press
Release Date : 2014-10-16
Community Care In Hong Kong written by Kar-wai TONG and has been published by City University of HK Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-10-16 with Social Science categories.
Different global healthcare challenges bring threats to the healthcare system. Like other developed countries, Hong Kong is also focusing on how to manage the ageing population, how to meet the rising public expectations, and how to finance the ever increasing medical costs. Strengthening community care services may provide a way out for settling these concerns. Written by a team of renowned scholars and leading practitioners, this book aims at evaluating how different parties can assist in building up local community capacity to achieve sustainable health and wellness. The book is divided into three sections. The first section discusses the different roles and practices of specialised community care that contribute to the relative success of the healthcare system in Hong Kong. The second section makes use of various research practices to extrapolate future healthcare needs and practices in Hong Kong. And the last one addresses the values of health care which underlie the healthcare culture, structure and practice in Hong Kong over time. Apart from pointing out the limitation of the current system, this book will also discusses the future directions of the healthcare system in order to cope with the challenges in a changing society. Published by City University of Hong Kong Press 香港城市大學出版社出版
Assistive Technologies For Assessment And Recovery Of Neurological Impairments
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Author : Stasolla, Fabrizio
language : en
Publisher: IGI Global
Release Date : 2021-10-22
Assistive Technologies For Assessment And Recovery Of Neurological Impairments written by Stasolla, Fabrizio and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-10-22 with Medical categories.
People with neurological disorders may experience significant problems, isolation, detachment, and passivity while dealing with environmental requests. They constantly rely on caregivers and family assistance, which can create negative outcomes on their quality of life. An emerging way to overcome these issues is assistive technology-based interventions (AT). AT-based programs are designed to fill the gap between human/individual capacities or skills and environmental requests. These technologies can also bring about independence and self-determination and provide people with neurological disorders an active role, positive participation, and an enhanced status in being able to achieve functional daily activities by reducing the roles of their families and caregivers. The positive impacts of this technology are an important area of research, and its usage for neurological disorders is critical for the assessment and recovery of patients. Assistive Technologies for Assessment and Recovery of Neurological Impairments explores the use of AT-based programs for promoting independence and self-determination of individuals with neurological disorders. The chapters discuss AT-based interventions in detail with the specific technologies that are being used, the positive effects on patients, and evidence-based practices. This book also focuses on specific technologies such as virtual reality (VR) setups and augmented reality (AR) as valid ecological environments for patients that ensure methodological control and behavioral tracking for both assessment and rehabilitation purposes. This book is essential for occupational therapists, speech therapists, physiotherapists, neurologists, caregivers, psychologists, practitioners, medical professionals, medical technologists, IT consultants, academicians, and students interested in assistive technology interventions for people with neurological impairments.
The 1st Annual Crossing The Quality Chasm Summit
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2004-09-13
The 1st Annual Crossing The Quality Chasm Summit written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2004-09-13 with Medical categories.
In January 2004, the Institute of Medicine (IOM) hosted the 1st Annual Crossing the Quality Chasm Summit, convening a group of national and community health care leaders to pool their knowledge and resources with regard to strategies for improving patient care for five common chronic illnesses. This summit was a direct outgrowth and continuation of the recommendations put forth in the 2001 IOM report Crossing the Quality Chasm: A New Health System for the 21st Century. The summit's purpose was to offer specific guidance at both the community and national levels for overcoming the challenges to the provision of high-quality care articulated in the Quality Chasm report and for moving closer to achievement of the patient-centerd health care system envisioned therein.