Sharing Research Data
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Sharing Clinical Trial Data
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-04-20
Sharing Clinical Trial Data written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-20 with Medical categories.
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Data Management For Researchers
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Author : Kristin Briney
language : en
Publisher: Pelagic Publishing Ltd
Release Date : 2015-09-01
Data Management For Researchers written by Kristin Briney and has been published by Pelagic Publishing Ltd this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-09-01 with Computers categories.
A comprehensive guide to everything scientists need to know about data management, this book is essential for researchers who need to learn how to organize, document and take care of their own data. Researchers in all disciplines are faced with the challenge of managing the growing amounts of digital data that are the foundation of their research. Kristin Briney offers practical advice and clearly explains policies and principles, in an accessible and in-depth text that will allow researchers to understand and achieve the goal of better research data management. Data Management for Researchers includes sections on: * The data problem – an introduction to the growing importance and challenges of using digital data in research. Covers both the inherent problems with managing digital information, as well as how the research landscape is changing to give more value to research datasets and code. * The data lifecycle – a framework for data’s place within the research process and how data’s role is changing. Greater emphasis on data sharing and data reuse will not only change the way we conduct research but also how we manage research data. * Planning for data management – covers the many aspects of data management and how to put them together in a data management plan. This section also includes sample data management plans. * Documenting your data – an often overlooked part of the data management process, but one that is critical to good management; data without documentation are frequently unusable. * Organizing your data – explains how to keep your data in order using organizational systems and file naming conventions. This section also covers using a database to organize and analyze content. * Improving data analysis – covers managing information through the analysis process. This section starts by comparing the management of raw and analyzed data and then describes ways to make analysis easier, such as spreadsheet best practices. It also examines practices for research code, including version control systems. * Managing secure and private data – many researchers are dealing with data that require extra security. This section outlines what data falls into this category and some of the policies that apply, before addressing the best practices for keeping data secure. * Short-term storage – deals with the practical matters of storage and backup and covers the many options available. This section also goes through the best practices to insure that data are not lost. * Preserving and archiving your data – digital data can have a long life if properly cared for. This section covers managing data in the long term including choosing good file formats and media, as well as determining who will manage the data after the end of the project. * Sharing/publishing your data – addresses how to make data sharing across research groups easier, as well as how and why to publicly share data. This section covers intellectual property and licenses for datasets, before ending with the altmetrics that measure the impact of publicly shared data. * Reusing data – as more data are shared, it becomes possible to use outside data in your research. This chapter discusses strategies for finding datasets and lays out how to cite data once you have found it. This book is designed for active scientific researchers but it is useful for anyone who wants to get more from their data: academics, educators, professionals or anyone who teaches data management, sharing and preservation. "An excellent practical treatise on the art and practice of data management, this book is essential to any researcher, regardless of subject or discipline." —Robert Buntrock, Chemical Information Bulletin
Research Data Management
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Author : Joyce M. Ray
language : en
Publisher: Purdue University Press
Release Date : 2014
Research Data Management written by Joyce M. Ray and has been published by Purdue University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Business & Economics categories.
It has become increasingly accepted that important digital data must be retained and shared in order to preserve and promote knowledge, advance research in and across all disciplines of scholarly endeavor, and maximize the return on investment of public funds. To meet this challenge, colleges and universities are adding data services to existing infrastructures by drawing on the expertise of information professionals who are already involved in the acquisition, management and preservation of data in their daily jobs. Data services include planning and implementing good data management practices, thereby increasing researchers' ability to compete for grant funding and ensuring that data collections with continuing value are preserved for reuse. This volume provides a framework to guide information professionals in academic libraries, presses, and data centers through the process of managing research data from the planning stages through the life of a grant project and beyond. It illustrates principles of good practice with use-case examples and illuminates promising data service models through case studies of innovative, successful projects and collaborations.
Dictionary Of Global Bioethics
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Author : Henk ten Have
language : en
Publisher: Springer Nature
Release Date : 2021-05-26
Dictionary Of Global Bioethics written by Henk ten Have and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-05-26 with Philosophy categories.
This Dictionary presents a broad range of topics relevant in present-day global bioethics. With more than 500 entries, this dictionary covers organizations working in the field of global bioethics, international documents concerning bioethics, personalities that have played a role in the development of global bioethics, as well as specific topics in the field.The book is not only useful for students and professionals in global health activities, but can also serve as a basic tool that explains relevant ethical notions and terms. The dictionary furthers the ideals of cosmopolitanism: solidarity, equality, respect for difference and concern with what human beings- and specifically patients - have in common, regardless of their backgrounds, hometowns, religions, gender, etc. Global problems such as pandemic diseases, disasters, lack of care and medication, homelessness and displacement call for global responses.This book demonstrates that a moral vision of global health is necessary and it helps to quickly understand the basic ideas of global bioethics.
Managing And Sharing Research Data
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Author : Louise Corti
language : en
Publisher: SAGE
Release Date : 2019-10-07
Managing And Sharing Research Data written by Louise Corti and has been published by SAGE this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-10-07 with Business & Economics categories.
Written by experts at the UK Data Archive, with over thirty years of experience in working with and teaching people to work with data, this book is the globally-reaching guide for any postgraduate student or researcher looking to build their data management skills. Focused on both primary and secondary data and packed with checklists and templates, it contains everything readers need to know for managing all types data before, during, and after the research process. Building on foundational data management techniques, it offers practical advice and insight into the unique skills needed to work with newer forms of data, like social media and big data. It also demonstrates how to: - Identify quality data that is credible, ethically-sound, and available for use - Choose and collect data suitable for particular research questions and project scopes - Work with personal, communal, administrative, and other sensitive and public data - Make the most of metadata - Visualise and share data using innovative platforms like blogs, infographics, and podcasts.
Managing Research Data
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Author : Graham Pryor
language : en
Publisher: Facet Publishing
Release Date : 2012-01-20
Managing Research Data written by Graham Pryor and has been published by Facet Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-01-20 with Language Arts & Disciplines categories.
This title defines what is required to achieve a culture of effective data management offering advice on the skills required, legal and contractual obligations, strategies and management plans and the data management infrastructure of specialists and services. Data management has become an essential requirement for information professionals over the last decade, particularly for those supporting the higher education research community, as more and more digital information is created and stored. As budgets shrink and funders of research demand evidence of value for money and demonstrable benefits for society, there is increasing pressure to provide plans for the sustainable management of data. Ensuring that important data remains discoverable, accessible and intelligible and is shared as part of a larger web of knowledge will mean that research has a life beyond its initial purpose and can offer real utility to the wider community. This edited collection, bringing together leading figures in the field from the UK and around the world, provides an introduction to all the key data issues facing the HE and information management communities. Each chapter covers a critical element of data management: • Why manage research data? • The lifecycle of data management • Research data policies: principles, requirements and trends • Sustainable research data • Data management plans and planning • Roles and responsibilities – libraries, librarians and data • Research data management: opportunities and challenges for HEIs • The national data centres • Contrasting national research data strategies: Australia and the USA • Emerging infrastructure and services for research data management and curation in the UK and Europe Readership: This is essential reading for librarians and information professionals working in the higher education sector, the research community, policy makers and university managers. It will also be a useful introduction for students taking courses in information management, archivists and national library services.
Data Sharing And Secondary Use Of Scientific Data
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Author : Ann S. Zimmerman
language : en
Publisher:
Release Date : 2003
Data Sharing And Secondary Use Of Scientific Data written by Ann S. Zimmerman and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003 with Ecology categories.
Open Access Implications For Sustainable Social Political And Economic Development
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Author : Jain, Priti
language : en
Publisher: IGI Global
Release Date : 2020-09-18
Open Access Implications For Sustainable Social Political And Economic Development written by Jain, Priti and has been published by IGI Global this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-09-18 with Reference categories.
Open access publishing can be used as a strategic tool to avail access to information and achieve universal literacy. Open access has gained importance over the past 15 years by making knowledge available to all, without any barrier of affordability or restrictions on using this knowledge to inform and develop. Open access contributes to scientific research excellence, disseminates research results to a wider community, and promotes multi-disciplinary and collaborative research. Issues of sustainable development and open access are major concerns in librarianship and information management, particularly as the international library and information management community is focusing on how to contribute to the Sustainable Development Goals. Open Access Implications for Sustainable Social, Political, and Economic Development is a pivotal reference source that provides an understanding of the concept of open access within the context of social, political, and economic development and deliberates the critical issues and challenges that face the implementation of open access and its impact on the global economy and sustainable development. While highlighting a broad range of topics including digital scholarship, open data, and ethics, this book is ideally designed for librarians, information science professionals, government officials, policymakers, academicians, researchers, and students.
Children As Research Subjects Science Ethics And Law
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Author : Program in Medical Ethics Michael A. Grodin Director
language : en
Publisher: Oxford University Press, USA
Release Date : 1994-02-08
Children As Research Subjects Science Ethics And Law written by Program in Medical Ethics Michael A. Grodin Director and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 1994-02-08 with Medical categories.
Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.
Research Data Management A European Perspective
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Author : Filip Kruse
language : en
Publisher: Walter de Gruyter GmbH & Co KG
Release Date : 2017-12-04
Research Data Management A European Perspective written by Filip Kruse and has been published by Walter de Gruyter GmbH & Co KG this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-12-04 with Language Arts & Disciplines categories.
Based on case studies this book offers an insight in various European activities and practices in data management and their interaction with policies and programs. The latter form the background for the following case studies, provide the conceptual framework, at the same time giving an exhaustive understanding of the specific subjects. The case studies share common themes and give a concrete insight into vital issues such as web archiving, digitization of analog archives, researchers’ motivations for sharing data, and how libraries, archives and researchers can collaborate in creating research tools and services.