Sickle Cell And The Social Sciences

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Sickle Cell And The Social Sciences

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Author : Simon M. Dyson
language : en
Publisher: Routledge
Release Date : 2019-03-27

Sickle Cell And The Social Sciences written by Simon M. Dyson and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-03-27 with Social Science categories.

Sickle cell disease (SCD) is a severe chronic illness and one of the world’s most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America and Europe. Biomedical treatments for SCD are increasingly available to the world’s affluent populations, while such medical care is available only in attenuated forms in Africa, India and to socio-economically disadvantaged groups in North America and Europe. Often a condition rendered invisible in policy terms because of its problematic association with politically marginalized groups, the social study of sickle cell has been neglected. This illuminating volume explores the challenges and possibilities for developing a social view of sickle cell, and for improving the quality of lives of those living with SCD. Tackling the controversial role of screening and genetics in SCD, the book offers a brief thematic history of approaches to the condition, queries the role of ethnicity and includes a discussion of how the social model of disability can be applied, as well as featuring chapters focusing on athletics, prisons and schools. Bringing together a wide range of original research conducted in the USA, the UK, Ghana and Nigeria, Sickle Cell and the Social Sciences is anchored in the discipline of sociology, but draws upon a diverse range of fields, including public health, anthropology, social policy and disability studies.

Human Genetics For The Social Sciences

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Author : Gregory Carey
language : en
Publisher: SAGE
Release Date : 2003

Human Genetics For The Social Sciences written by Gregory Carey and has been published by SAGE this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003 with Psychology categories.

Introduces psychology and other social science students to the role genetics play in the individual differences in human behaviour.

The Enculturated Gene

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Author : Duana Fullwiley
language : en
Publisher: Princeton University Press
Release Date : 2011-11-27

The Enculturated Gene written by Duana Fullwiley and has been published by Princeton University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-11-27 with History categories.

In the 1980s, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell "mild" in a social setting where public health priorities and economic austerity programs have forced people to improvise informal strategies of care. Duana Fullwiley shows how geneticists, who were fixated on population differences, never investigated the various modalities of self-care that people developed in this context of biomedical scarcity, and how local doctors, confronted with dire cuts in Senegal's health sector, wittingly accepted the genetic prognosis of better-than-expected health outcomes. Unlike most genetic determinisms that highlight the absoluteness of disease, DNA haplotypes for sickle cell in Senegal did the opposite. As Fullwiley demonstrates, they allowed the condition to remain officially invisible, never to materialize as a health priority. At the same time, scientists' attribution of a less severe form of Senegalese sickle cell to isolated DNA sequences closed off other explanations of this population's measured biological success. The Enculturated Gene reveals how the notion of an advantageous form of sickle cell in this part of West Africa has defined--and obscured--the nature of this illness in Senegal today.

Genetics And Global Public Health

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Author : Simon M. Dyson
language : en
Publisher: Routledge
Release Date : 2014-06-11

Genetics And Global Public Health written by Simon M. Dyson and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-06-11 with Medical categories.

Sickle cell and thalassaemia are among the world’s most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly impact on minority ethnic groups in North America, Europe and Australasia. Much research has focused on clinical, laboratory and genetic studies of these conditions. Through a wide-ranging selection of readings based on social scientific research into sickle cell and thalassaemia, this book seeks to redress this imbalance. This is important as, through an examination of the different social, economic and cultural contexts of the lives of people living with sickle cell or thalassaemia, the contributors demonstrate that people are more than the sum of their genes and that their life experiences are rarely derived solely from the clinical severity of their condition but depend on the social context of their lives. Genetics and Global Public Health presents a new concluding chapter which highlights the critical nature of social science research for sickle cell and thalassaemia communities, providing key insights into the social contexts of human behaviour and analysing how societal arrangements could change to assist people living with either condition. It will be of great interest to postgraduate and research students as well as professionals working in the field of public health. This book was originally published as a special issue of the journal Ethnicity and Health.

Addressing Sickle Cell Disease

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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2021-01-22

Addressing Sickle Cell Disease written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-01-22 with Medical categories.

Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups.

Handbook Of Social Sciences And Global Public Health

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Author : Pranee Liamputtong
language : en
Publisher: Springer Nature
Release Date : 2023-09-09

Handbook Of Social Sciences And Global Public Health written by Pranee Liamputtong and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-09-09 with Medical categories.

This handbook highlights the relevance of the social sciences in global public health and their significantly crucial role in the explanation of health and illness in different population groups, the improvement of health, and the prevention of illnesses around the world. Knowledge generated via social science theories and research methodologies allows healthcare providers, policy-makers, and politicians to understand and appreciate the lived experience of their people, and to provide sensitive health and social care to them at a time of most need. Social sciences, such as medical sociology, medical anthropology, social psychology, and public health are the disciplines that examine the sociocultural causes and consequences of health and illness. It is evident that biomedicine cannot be the only answer to improving the health of people. What makes social sciences important in global public health is the critical role social, cultural, economic, and political factors play in determining or influencing the health of individuals, communities, and the larger society and nation. This handbook is comprehensive in its nature and contents, which range from a more disciplinary-based approach and theoretical and methodological frameworks to different aspects of global public health. It covers: Discussions of the social science disciplines and their essence, concepts, and theories relating to global public health Theoretical frameworks in social sciences that can be used to explain health and illness in populations Methodological inquiries that social science researchers can use to examine global public health issues and understand social issues relating to health in different population groups and regions Examples of social science research in global public health areas and concerns as well as population groups The Handbook of Social Sciences and Global Public Health is a useful reference for students, researchers, lecturers, practitioners, and policymakers in global health, public health, and social science disciplines; and libraries in universities and health and social care institutions. It offers readers a good understanding of the issues that can impact the health and well-being of people in society, which may lead to culturally sensitive health and social care for people that ultimately will lead to a more equitable society worldwide.

Uncertain Suffering

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Author : Carolyn Rouse
language : en
Publisher: Univ of California Press
Release Date : 2009-08-03

Uncertain Suffering written by Carolyn Rouse and has been published by Univ of California Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-08-03 with History categories.

“Within the pages of Uncertain Suffering it becomes all too clear that race, class, and age converge to define a powerful triple blow that guarantees both subtle and outrageously obvious health disparities. Rouse moves gracefully from the subjective pain of adolescent patients in crisis, to the compassionate yet distanced professionalism of health care specialists, to the level of national policy, revealing a clinical world fraught with contradictions over how best to treat black, and, all too often, underclass children in pain. Uncertain Suffering will make a big splash within anthropology.”—Lesley Sharp, Barnard College “Uncertain Suffering will have a unique place in medical anthropology, public health scholarship, and the social sciences of health. It involves a layered and deeply philosophical approach to the limits of the role/ responsibility of modern American medicine to address the suffering of African American patients.”—Rayna Rapp, New York University

The Bobbs Merrill Reprint Series In The Social Sciences

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Author :
language : en
Publisher: Ardent Media
Release Date :

The Bobbs Merrill Reprint Series In The Social Sciences written by and has been published by Ardent Media this book supported file pdf, txt, epub, kindle and other format this book has been release on with Political science categories.

Social Sciences

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Author :
language : en
Publisher: Ardent Media
Release Date :

Social Sciences written by and has been published by Ardent Media this book supported file pdf, txt, epub, kindle and other format this book has been release on with categories.

Elements Of Statistics For The Life And Social Sciences

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Author : Braxton M. Alfred
language : en
Publisher: Springer Science & Business Media
Release Date : 2012-12-06

Elements Of Statistics For The Life And Social Sciences written by Braxton M. Alfred and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-12-06 with Mathematics categories.

This book was written to myself at about the time I began graduate studies in anthropology-the sort of thing a Samuel Beckett character might do. It is about the conduct of research. In a very real sense the purpose is partially to compensate for the inadequacies of my professors. Perhaps this is what education is about. The effort has not been an unqualified success, but it has been extremely gratifying. I was trained in anthropology. After completing the Ph. D. I went to Stanford on a post-doctoral fellowship. At the time, this was a novelty and the depart ment was not prepared for such a thing. To stay occupied I began attending lectures, seminars, and discussion groups in mathematics and statistics. This was about the luckiest choice I ever made. The excitement was easily as intense as that which I experienced upon encountering anthropology. On one oc casion I innocently and independently proved a theorem that had first been done 2000 years earlier. It is currently used as an exercise in high school mathematics so it is neither difficult nor arcane. Learning all this did not tarnish my sense of discovery. (On reflection I am puzzled by my failure to have seen all this "beauty" when I was exposed to it as an undergraduate. The unparalleled excellence of the Stanford program was undoubtedly responsible for my belated conversion.