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The Social Ecology Of New Technologies And Haemophilia In New Zealand


The Social Ecology Of New Technologies And Haemophilia In New Zealand
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The Social Ecology Of New Technologies And Haemophilia In New Zealand


The Social Ecology Of New Technologies And Haemophilia In New Zealand
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Author : Julie Park
language : en
Publisher:
Release Date : 2008-01-01

The Social Ecology Of New Technologies And Haemophilia In New Zealand written by Julie Park and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008-01-01 with Hemophilia categories.


This research builds on previous studies conducted by the "Living with haemophilia" researchers over the past decade in New Zealand. The current study investigates the implications of new treatments, new technologies, and changes in health care for people and families with haemophilia and those who care for them, in the context of everyday living with haemophilia. The research design used semi-structured face-to-face interviews and/ or telephone interviews with 37 people, and participant observation at a range of haemophilia gatherings. We asked people to share with us their perceptions and/ or experience of prenatal genetic diagnosis, preimplantation genetic diagnosis, gene therapy, and new treatments for hepatitis C, as well as their everyday experiences with haemophilia. The study design and the reasons we undertook it are described in the introduction. The first substantive section highlights the everyday issues of living with haemophilia as a bleeding disorder. The second discusses the organisational ecology of haemophilia. The third traverses issues concerning haemophilia as a genetic disorder, passed down the generations, and the final section explores the presence of hepatitis C in the haemophilia community. In the conclusions we note that there are still some difficulties around the timely diagnosis of haemophilia. However, treatment for many people has changed from on-demand to prophylaxis and from the provision of blood products to recombinant products. These technologies have had significant effects on perceptions of the seriousness of haemophilia, on the safety of products, on daily living, and on relationships with the treatment sources: from products made from donations, to those manufactured by multinational pharmaceutical companies. There was a high level of awareness of the costs of treatment, compared to the earlier studies. The formation of a National Haemophilia Management Group, which was a result of years of work between the Haemophilia Foundation of New Zealand (HFNZ), medical experts, and Ministry of Health officials, was a very welcome development in 2006. The HFNZ continues play an important part in many people's lives. Despite a continuing emphasis on women as carriers, there is a greater realisation that men, too, pass on haemophilia, and that women can suffer from bleeding problems. Parents were exercised by the timing of when to tell their daughters about their carrier status, but carrier testing very seldom incurs the long delays of earlier years. Issues around carrying haemophilia on and reproductive choice are handled with great care in this community. A wide range of views were encountered, tempered by respect for the positions of others. Discussion of gene therapy was a little passé in this community, as it had been on an ever-moving horizon for many years, and because new alternative treatments were seemingly offering considerable benefits. However, gene therapy was not dismissed as a future possibility. Hepatitis C has had important effects on this community and on the individuals within it: effectively there is a hep C generation and a post-hep C generation. It was heartening that those undergoing the most recent form of treatment appeared to be experiencing better outcomes, although the treatment itself was gruelling. At the end of this research period, a Government announcement of acknowledgement, compensation and treatment was made, fulfilling a decade and a half of struggle for recognition of harm.



Haemophilia In Aotearoa New Zealand


Haemophilia In Aotearoa New Zealand
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Author : Julie Park
language : en
Publisher: Routledge
Release Date : 2019-01-24

Haemophilia In Aotearoa New Zealand written by Julie Park and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-01-24 with Social Science categories.


Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.



A Companion To Medical Anthropology


A Companion To Medical Anthropology
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Author : Merrill Singer
language : en
Publisher: John Wiley & Sons
Release Date : 2015-04-20

A Companion To Medical Anthropology written by Merrill Singer and has been published by John Wiley & Sons this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-20 with Social Science categories.


A Companion to Medical Anthropology examines the current issues, controversies, and state of the field in medical anthropology today. Provides an expert view of the major topics and themes to concern the discipline since its founding in the 1960s Written by leading international scholars in medical anthropology Covers environmental health, global health, biotechnology, syndemics, nutrition, substance abuse, infectious disease, and sexuality and reproductive health, and other topics



The New Zealand Official Year Book


The New Zealand Official Year Book
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Author :
language : en
Publisher:
Release Date : 1898

The New Zealand Official Year Book written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1898 with New Zealand categories.




A Polymath Anthropologist


A Polymath Anthropologist
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Author : Ann Chowning
language : en
Publisher: Department of Anthropology University of Auckland
Release Date : 2005

A Polymath Anthropologist written by Ann Chowning and has been published by Department of Anthropology University of Auckland this book supported file pdf, txt, epub, kindle and other format this book has been release on 2005 with Biography & Autobiography categories.


This volume honours Ann Chownings contributions to anthropology as a whole and to the anthropology of Melanesia in particular. It reflects the scope of her interests by bringing together a wide range of scholars and topics. A biographical narrative (by Judith Huntsman) of her life to date traces her career and there is a comprehensive bibliography of her works (Kathryn Creely). The essays deal primarily with issues in Oceania, except for two addressing one of her favourite pasttimes detective fiction, as a source of innovative word formation (Laurie Bauer) and its parallels to ethnography (Claudia Gross). Three archaeology essays discuss stone artefacts in Papua New Guinea (Pamela Swadling, Jim Specht, Susan Buhner), and one essay surveys dental morphology in Oceania (Daris R. Swindler). Essays in linguistics range from surveys of Oceanic plant names (Malcolm Ross), Proto Micronesian (Ward II. Goodcnough) and Proto Oceanic (Andrew Pawley) to detailed analyses of the languages of Tokelau (Robin Hooper) and Aneityum (John Lynch). The largest section consists of essays in socio-cultural anthropology, combining themes that have been the focus of Ann Chowning's work: marriage and social organisation, gender and sexuality, social and economic change, leadership, religion, myth and human-animal relations. These essays include a survey of anthropology in Oceania (Harriet D. and Andrew P. Lyons) and cover Polynesia (Phyllis Herda, Judith Huntsman, Penelope Schoeffel), New Zealand (Joan Metge, Julie Park), the Solomon Islands (Christine Dureau) and Papua New Guinea (John Barker, Mark Busse, Michael Monsell-Davis, Mark Mosko, Maev O'Collins, Marilyn Strathern). There are also essays recollecting Ann Chowning as a teacher, colleague and friend (Jane C. Goodale, Virginia Greene, Harriet D. Lyons, Luisa Margolies, James Urry, Michael W. Young).



Genetic Engineering In New Zealand


Genetic Engineering In New Zealand
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Author : Darryl Raymund Johnson Macer
language : en
Publisher:
Release Date : 1991

Genetic Engineering In New Zealand written by Darryl Raymund Johnson Macer and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1991 with Genetic engineering categories.




Haemophilia


Haemophilia
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Author :
language : en
Publisher:
Release Date : 2002

Haemophilia written by and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2002 with categories.




The Fourth Industrial Revolution


The Fourth Industrial Revolution
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Author : Klaus Schwab
language : en
Publisher: Penguin UK
Release Date : 2017-01-03

The Fourth Industrial Revolution written by Klaus Schwab and has been published by Penguin UK this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-01-03 with Business & Economics categories.


The founder and executive chairman of the World Economic Forum on how the impending technological revolution will change our lives We are on the brink of the Fourth Industrial Revolution. And this one will be unlike any other in human history. Characterized by new technologies fusing the physical, digital and biological worlds, the Fourth Industrial Revolution will impact all disciplines, economies and industries - and it will do so at an unprecedented rate. World Economic Forum data predicts that by 2025 we will see: commercial use of nanomaterials 200 times stronger than steel and a million times thinner than human hair; the first transplant of a 3D-printed liver; 10% of all cars on US roads being driverless; and much more besides. In The Fourth Industrial Revolution, Schwab outlines the key technologies driving this revolution, discusses the major impacts on governments, businesses, civil society and individuals, and offers bold ideas for what can be done to shape a better future for all.



Acute Pain Management


Acute Pain Management
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Author : Pamela E. Macintyre
language : en
Publisher:
Release Date : 2010-01-01

Acute Pain Management written by Pamela E. Macintyre and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010-01-01 with Analgesia categories.




Converging Technologies For Improving Human Performance


Converging Technologies For Improving Human Performance
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Author : Mihail C. Roco
language : en
Publisher: Springer Science & Business Media
Release Date : 2013-04-17

Converging Technologies For Improving Human Performance written by Mihail C. Roco and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-04-17 with Technology & Engineering categories.


M. C. Roco and W.S. Bainbridge In the early decades of the 21st century, concentrated efforts can unify science based on the unity of nature, thereby advancing the combination of nanotechnology, biotechnology, information technology, and new technologies based in cognitive science. With proper attention to ethical issues and societal needs, converging in human abilities, societal technologies could achieve a tremendous improvement outcomes, the nation's productivity, and the quality of life. This is a broad, cross cutting, emerging and timely opportunity of interest to individuals, society and humanity in the long term. The phrase "convergent technologies" refers to the synergistic combination of four major "NBIC" (nano-bio-info-cogno) provinces of science and technology, each of which is currently progressing at a rapid rate: (a) nanoscience and nanotechnology; (b) biotechnology and biomedicine, including genetic engineering; (c) information technology, including advanced computing and communications; (d) cognitive science, including cognitive neuroscience. Timely and Broad Opportunity. Convergence of diverse technologies is based on material unity at the nanoscale and on technology integration from that scale.