101 Tips For A Good Life With Mcardle Disease
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101 Tips For A Good Life With Mcardle Disease
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Author : Andrew Wakelin
language : en
Publisher: AGSD-UK
Release Date : 2015
101 Tips For A Good Life With Mcardle Disease written by Andrew Wakelin and has been published by AGSD-UK this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015 with Glycogen storage disease categories.
A great introduction to living with this genetic muscle condition. Important concepts simply explained, including "Second Wind", the "Six Second Rule" and the "ATP reservoir". Practical tips that people with this condition have found helpful. The aim is to avoid pain and muscle cramps, reduce or eliminate hospital visits and get more out of life. Foreword by Dr Ros Quinlivan.
Mcardle Disease Reference For Gps
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Author : Andrew Wakelin
language : en
Publisher: AGSD-UK
Release Date : 2015-02-03
Mcardle Disease Reference For Gps written by Andrew Wakelin and has been published by AGSD-UK this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-02-03 with Medical categories.
This booklet provides referenced information to assist General Practitioners. McArdle Disease (Glycogen Storage Disease V) is an ultra rare metabolic disorder of the muscles. It should be managed in a specialist centre, but this booklet can help with issues arising in the primary care setting.
One Step At A Time
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Author : Stacey L. Reason
language : en
Publisher: AGSD-UK
Release Date : 2013-11-28
One Step At A Time written by Stacey L. Reason and has been published by AGSD-UK this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-11-28 with categories.
The account of the author's coming to terms with her diagnosis of a rare muscle disorder. She faces the challenges of a 210 mile long trek across the mountains of Wales. Includes a section on the development of walking courses for people with McArdle Disease and one of guidance for people with the condition who want to follow in her footsteps.
The Mcardle Disease Handbook
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Author : Kathryn Elizabeth Birch, Ph.D.
language : en
Publisher: AGSD-UK
Release Date : 2011-07-01
The Mcardle Disease Handbook written by Kathryn Elizabeth Birch, Ph.D. and has been published by AGSD-UK this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011-07-01 with Medical categories.
This handbook explains, in layman's terms, the cause, method of inheritance, history and current and future treatments of McArdle Disease (also known as Glycogen Storage Disease Type V). The handbook puts into plain English the published information relating to the scientific and medical research into McArdle Disease.
Sleep Disorders And Sleep Deprivation
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2006-10-13
Sleep Disorders And Sleep Deprivation written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-10-13 with Medical categories.
Clinical practice related to sleep problems and sleep disorders has been expanding rapidly in the last few years, but scientific research is not keeping pace. Sleep apnea, insomnia, and restless legs syndrome are three examples of very common disorders for which we have little biological information. This new book cuts across a variety of medical disciplines such as neurology, pulmonology, pediatrics, internal medicine, psychiatry, psychology, otolaryngology, and nursing, as well as other medical practices with an interest in the management of sleep pathology. This area of research is not limited to very young and old patientsâ€"sleep disorders reach across all ages and ethnicities. Sleep Disorders and Sleep Deprivation presents a structured analysis that explores the following: Improving awareness among the general public and health care professionals. Increasing investment in interdisciplinary somnology and sleep medicine research training and mentoring activities. Validating and developing new and existing technologies for diagnosis and treatment. This book will be of interest to those looking to learn more about the enormous public health burden of sleep disorders and sleep deprivation and the strikingly limited capacity of the health care enterprise to identify and treat the majority of individuals suffering from sleep problems.
Quality Of Life Assessment Key Issues In The 1990s
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Author : S.R. Walker
language : en
Publisher: Springer Science & Business Media
Release Date : 2012-12-06
Quality Of Life Assessment Key Issues In The 1990s written by S.R. Walker and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-12-06 with Medical categories.
It was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters.
The Role Of Nutrition In Maintaining Health In The Nation S Elderly
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2000-06-09
The Role Of Nutrition In Maintaining Health In The Nation S Elderly written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000-06-09 with Medical categories.
Malnutrition and obesity are both common among Americans over age 65. There are also a host of other medical conditions from which older people and other Medicare beneficiaries suffer that could be improved with appropriate nutritional intervention. Despite that, access to a nutrition professional is very limited. Do nutrition services benefit older people in terms of morbidity, mortality, or quality of life? Which health professionals are best qualified to provide such services? What would be the cost to Medicare of such services? Would the cost be offset by reduced illness in this population? This book addresses these questions, provides recommendations for nutrition services for the elderly, and considers how the coverage policy should be approached and practiced. The book discusses the role of nutrition therapy in the management of a number of diseases. It also examines what the elderly receive in the way of nutrition services along the continuum of care settings and addresses the areas of expertise needed by health professionals to provide appropriate nutrition services and therapy.
Hearing Health Care For Adults
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2016-10-06
Hearing Health Care For Adults written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-10-06 with Medical categories.
The loss of hearing - be it gradual or acute, mild or severe, present since birth or acquired in older age - can have significant effects on one's communication abilities, quality of life, social participation, and health. Despite this, many people with hearing loss do not seek or receive hearing health care. The reasons are numerous, complex, and often interconnected. For some, hearing health care is not affordable. For others, the appropriate services are difficult to access, or individuals do not know how or where to access them. Others may not want to deal with the stigma that they and society may associate with needing hearing health care and obtaining that care. Still others do not recognize they need hearing health care, as hearing loss is an invisible health condition that often worsens gradually over time. In the United States, an estimated 30 million individuals (12.7 percent of Americans ages 12 years or older) have hearing loss. Globally, hearing loss has been identified as the fifth leading cause of years lived with disability. Successful hearing health care enables individuals with hearing loss to have the freedom to communicate in their environments in ways that are culturally appropriate and that preserve their dignity and function. Hearing Health Care for Adults focuses on improving the accessibility and affordability of hearing health care for adults of all ages. This study examines the hearing health care system, with a focus on non-surgical technologies and services, and offers recommendations for improving access to, the affordability of, and the quality of hearing health care for adults of all ages.
Disorders Of Voluntary Muscle
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Author : George Karpati
language : en
Publisher: Cambridge University Press
Release Date : 2001-07-12
Disorders Of Voluntary Muscle written by George Karpati and has been published by Cambridge University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-07-12 with Medical categories.
Rewritten and redesigned, this remains the one essential text on the diseases of skeletal muscle.
Vibrant And Healthy Kids
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Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2019-12-27
Vibrant And Healthy Kids written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-12-27 with Medical categories.
Children are the foundation of the United States, and supporting them is a key component of building a successful future. However, millions of children face health inequities that compromise their development, well-being, and long-term outcomes, despite substantial scientific evidence about how those adversities contribute to poor health. Advancements in neurobiological and socio-behavioral science show that critical biological systems develop in the prenatal through early childhood periods, and neurobiological development is extremely responsive to environmental influences during these stages. Consequently, social, economic, cultural, and environmental factors significantly affect a child's health ecosystem and ability to thrive throughout adulthood. Vibrant and Healthy Kids: Aligning Science, Practice, and Policy to Advance Health Equity builds upon and updates research from Communities in Action: Pathways to Health Equity (2017) and From Neurons to Neighborhoods: The Science of Early Childhood Development (2000). This report provides a brief overview of stressors that affect childhood development and health, a framework for applying current brain and development science to the real world, a roadmap for implementing tailored interventions, and recommendations about improving systems to better align with our understanding of the significant impact of health equity.