Genetics And Ethics In Global Perspective
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Genetics And Ethics In Global Perspective
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Author : Dorothy C. Wertz
language : en
Publisher: Springer Science & Business Media
Release Date : 2012-12-06
Genetics And Ethics In Global Perspective written by Dorothy C. Wertz and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-12-06 with Medical categories.
Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.
Contested Cells Global Perspectives On The Stem Cell Debate
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Author : Benjamin J Capps
language : en
Publisher: World Scientific
Release Date : 2010-08-19
Contested Cells Global Perspectives On The Stem Cell Debate written by Benjamin J Capps and has been published by World Scientific this book supported file pdf, txt, epub, kindle and other format this book has been release on 2010-08-19 with Medical categories.
This book represents the coming together of a number of internationally renowned scholars from science, philosophy, law and social science. Each author presents a distinctive and critical account of the current ethical, social and jurisprudential issues concerning stem cell science: together covering both its research beginnings, and the future translation into the clinical setting. Original to this volume is an emphasis on the inter-state implications of developments in stem cell science from the perspective of a truly global collaboration of leading authors. Academics and policy-makers will find it an invaluable contribution to the socio-political and ethical discourse of stem cell science./a
Clinical Ethics At The Crossroads Of Genetic And Reproductive Technologies
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Author : Sorin Hostiuc
language : en
Publisher: Elsevier
Release Date : 2023-08-17
Clinical Ethics At The Crossroads Of Genetic And Reproductive Technologies written by Sorin Hostiuc and has been published by Elsevier this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-08-17 with Science categories.
The Human Genome Project has triggered a technological revolution that has influenced nearly every field of medicine, including reproductive medicine, obstetrics, gynecology, andrology, prenatal genetic testing, and gene therapy. This second edition of Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies offers a thorough, timely discussion of ethical issues raised by the latest genetic and genomic technologies applied in human reproductive and prenatal medicine, providing practical recommendations, guidelines, and algorithms to support ethical clinical practice. Here, international experts consider the ethics of technologies from preconception carrier screening to genetic engineering, CRISPR gene editing, mitochondrial gene replacement therapy, sex selection, predictive testing, secondary findings, embryo reduction, and the moral status of the embryo, genetic enhancement, and the sharing of genetic data. Throughout the book, contributors adopt a global, holistic perspective on applied challenges and the moral questions around the implementation of genetic reproductive technologies. The book is an ideal resource for practitioners, regulators, lawmakers, clinical researchers, genetic counselors, and graduate and medical students.This fully updated second edition examines new developments in the field, tackling ethical aspects of organoid development, recent advances in pharmacogenomics, direct-to-consumer genetic testing, and genetic engineering.
Moral Issues In Global Perspective Volume 3 Moral Issues Second Edition
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Author : Christine Koggel
language : en
Publisher: Broadview Press
Release Date : 2006-03-23
Moral Issues In Global Perspective Volume 3 Moral Issues Second Edition written by Christine Koggel and has been published by Broadview Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2006-03-23 with Philosophy categories.
Now available in three thematic volumes, the second edition of Moral Issues in Global Perspective is a collection of the newest and best articles on current moral issues by moral and political theorists from around the globe. Each volume seeks to challenge the standard approaches to morality and moral issues shaped by Western liberal theory and to extend the inquiry beyond the context of North America. Covering a broad range of issues and arguments, this collection includes critiques of traditional liberal accounts of rights, justice, and moral values, while raising questions about the treatment of disadvantaged groups within and across societies affected by globalization. Providing new perspectives on issues such as war and terrorism, reproduction, euthanasia, censorship, and the environment, each volume of Moral Issues in Global Perspective incorporates work by race, class, feminist, and disability theorists. In Moral Issues, the third of the three volumes, issues such as euthanasia and health care, reproductive issues, pornography and hate speech, animal rights, and environmental ethics are examined in the context of globalization and of differing social contexts and practices. Sixteen essays are new, one of which was written especially for this volume. Moral Issues in Global Perspective is available in three separate volumes—Moral and Political Theory, Human Diversity and Equality, and Moral Issues.
Global Perspectives On Precision Medicine
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Author : Evangel Sarwar
language : en
Publisher: Springer Nature
Release Date : 2023-04-04
Global Perspectives On Precision Medicine written by Evangel Sarwar and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-04-04 with Science categories.
This book presents the promises of Precision Medicine (PM) and the challenges of its implementation in daily clinical routine, while addressing the anticipated ethical and social implications. It is the first book that critically analyzes the potential and the dilemmas relevant to genomics and precision medicine from healthcare, public health and global perspectives. The nine chapters presented in this book elaborate on pharmacogenomics' crucial role in maximizing the potential benefits and minimizing medication's potential risks in groups of people, especially in cancer treatment and other health conditions. Infectious and non-communicable diseases (NCDs) are also discussed in this book by identifying challenges and ways to overcome them. Essential concepts are addressed, such as health-related benefits and harm to individuals and the broader community, including threats to individual privacy and autonomy, which warrant just distribution of scarce resources. The book also identifies and addresses the lack of competency in the healthcare workforce in the era of PM and discusses the path to laying the ethical foundation for the implementation of PM in healthcare organizations.
Genetic Privacy An Evaluation Of The Ethical And Legal Landscape
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Author : Terry Sheung-hung Kaan
language : en
Publisher: World Scientific
Release Date : 2013-07-04
Genetic Privacy An Evaluation Of The Ethical And Legal Landscape written by Terry Sheung-hung Kaan and has been published by World Scientific this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-07-04 with Medical categories.
Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concepts such as notions of what constitute the personal, the context of privacy, the significance and impact of the relational interests of others who may share the same genetic inheritance, and mechanisms for the protection of privacy (as well as of their limitations), among others. More specifically, the discussions in this volume encourages us to think broadly about privacy, as encompassing values that are entailed in the sociality of context and of relations, and also as freedom from illegitimate and excessive surveillance. A long-standing question that continues to challenge us is whether genetic information should be regarded as exceptional, as it is often perceived. A conclusion that could be derived from this volume is that while genetic information may be significant, it is not exceptionally so. The work presented in this volume underlines the continuing and growing relevance of notions of privacy to genomic science, and the need to take ownership of a genetic privacy for the future through broad, rigorous and open discussion.Contributors: Alastair V Campbell, Benjamin Capps, Jacqueline JL Chin, Oi Lian Kon, Kenji Matsui, Thomas H Murray, Nazirudin Mohd Nasir, Dianne Nicol, Anh Tuan Nuyen, Onora O'Neill, Margaret Otlowski, Yvette van der Eijk, Chunshui Wang, Ross S White.
The Moral Social And Commercial Imperatives Of Genetic Testing And Screening
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Author : Michela Betta
language : en
Publisher: Springer Science & Business Media
Release Date : 2007-06-24
The Moral Social And Commercial Imperatives Of Genetic Testing And Screening written by Michela Betta and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007-06-24 with Medical categories.
In the past people were classified as being healthy or sick. With genetic testing and screening, adults might be healthy, predisposed to an illness, probably at risk, at risk, or carriers of certain risks. Genetic testing and screening hits another dramatic note when cells and embryos are tested and subsequently altered to hit targets of perfection. This insightful book combines theory and social practice, drawing on a range of disciplines and presenting contrasting viewpoints.
The Status Of The Family In Law And Bioethics
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Author : Roy Gilbar
language : en
Publisher: Routledge
Release Date : 2017-11-28
The Status Of The Family In Law And Bioethics written by Roy Gilbar and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-11-28 with Law categories.
Where do a doctor's responsibilities lie in communicating diagnostic and predictive genetic information to a patient's family members? On the one hand, a patient may wish to retain confidentiality while the relatives seek information; on the other, a patient may wish to share the information while the relatives would rather not know. This volume investigates the doctor's professional legal and ethical obligations in the context of these two familial tensions. The examination is conducted within the liberal-communitarian debate, whereby the two philosophies hold different perceptions of the individual and the relationship he or she has with others. Within this theoretical framework, the book examines the approach taken by English medical law and ethics to the communication of genetic information to family members. Legally, the focus is on tort law and the law of confidentiality. Ethically, it concentrates on the approach taken by the bioethical literature, and more specifically by codes of ethics and professional guidelines.
Changing Moral Focus Of Newborn Screening
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Author : Edmund D. Pellegrino
language : en
Publisher: DIANE Publishing
Release Date : 2011
Changing Moral Focus Of Newborn Screening written by Edmund D. Pellegrino and has been published by DIANE Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2011 with Health & Fitness categories.
This is a print on demand edition of a hard to find publication. Nearly 4 million newborns undergo genetic screening (GS) every year in the U.S. Until recently such GS was limited to diseases that were well understood and for which effective treatments were available. Now, however, most mandatory GS programs also test for diseases that are not well understood and for which there is no available treatment. This white paper describes how the change in policy to include GS for untreatable as well as treatable diseases came about. It provides basic info. about the techniques of GS, and the practical and ethical choices parents must face. The Council believes that the potential benefits of mandatory, population-wide newborn GS for diseases for which there is no current treatment are outweighed by the potential harms.
Human Population Genetic Research In Developing Countries
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Author : Yue Wang
language : en
Publisher: Routledge
Release Date : 2013-11-12
Human Population Genetic Research In Developing Countries written by Yue Wang and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-11-12 with Law categories.
Human population genetic research (HPGR) seeks to identify the diversity and variation of the human genome and how human group and individual genetic diversity has developed. This book asks whether developing countries are well prepared for the ethical and legal conduct of human population genetic research, with specific regard to vulnerable target group protection. The book highlights particular issues raised by genetic research on populations as a whole, such as the potential harm specific groups may suffer in genetic research, and the capacity for current frameworks of Western developed countries to provide adequate protections for these target populations. Using The People’s Republic of China as a key example, Yue Wang argues that since the target groups of HPGR are almost always from isolated and rural areas of developing countries, the ethical and legal frameworks for human subject protection need to be reconsidered in order to eliminate, or at least reduce, the vulnerability of those groups. While most discussion in this field focuses on the impact of genetic research on individuals, this book breaks new ground in exploring how the interests of target groups are also seriously implicated in genetic work. In evaluating current regulations concerning prevention of harm to vulnerable groups, the book also puts forward an alternative model for group protection in the context of human population genetic research in developing countries. The book will be of great interest to students and academics of medical law, ethics, and the implications of genetic research.