Human Population Genetic Research In Developing Countries
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Human Population Genetic Research In Developing Countries
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Author : Yue Wang
language : en
Publisher: Routledge
Release Date : 2013-11-12
Human Population Genetic Research In Developing Countries written by Yue Wang and has been published by Routledge this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-11-12 with Law categories.
Human population genetic research (HPGR) seeks to identify the diversity and variation of the human genome and how human group and individual genetic diversity has developed. This book asks whether developing countries are well prepared for the ethical and legal conduct of human population genetic research, with specific regard to vulnerable target group protection. The book highlights particular issues raised by genetic research on populations as a whole, such as the potential harm specific groups may suffer in genetic research, and the capacity for current frameworks of Western developed countries to provide adequate protections for these target populations. Using The People’s Republic of China as a key example, Yue Wang argues that since the target groups of HPGR are almost always from isolated and rural areas of developing countries, the ethical and legal frameworks for human subject protection need to be reconsidered in order to eliminate, or at least reduce, the vulnerability of those groups. While most discussion in this field focuses on the impact of genetic research on individuals, this book breaks new ground in exploring how the interests of target groups are also seriously implicated in genetic work. In evaluating current regulations concerning prevention of harm to vulnerable groups, the book also puts forward an alternative model for group protection in the context of human population genetic research in developing countries. The book will be of great interest to students and academics of medical law, ethics, and the implications of genetic research.
Equitable Access To Human Biological Resources In Developing Countries
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Author : Roger Scarlin Chennells
language : en
Publisher: Springer
Release Date : 2015-07-17
Equitable Access To Human Biological Resources In Developing Countries written by Roger Scarlin Chennells and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-07-17 with Medical categories.
The main question explored by the book is: How can cross-border access to human genetic resources, such as blood or DNA samples, be governed in such a way as to achieve equity for vulnerable populations in developing countries? The book situates the field of genomic and genetic research within global health and research frameworks, describing the concerns that have been raised about the potential unfairness in exchanges during recent decades. Access to and sharing in the benefits of human biological resources are aspects not regulated by any international legal framework such as the Convention on Biological Diversity, which applies only to the exchange of plants, animals and microorganisms, as well as to associated traditional knowledge. Examples of genetic research perceived as exploitative are provided in order to illustrate the legal vacuum concerning the global governance of human genetic resources. The main conclusions drawn from the legal and ethical analysis are: • Benefit sharing is crucial in order to avoid the exploitation of developing countries in human genetic research. • With functioning research ethics committees, undue inducement is less of a concern in genetic research than in other areas of medical research (e.g. clinical trials). • Concerns remain over research involving indigenous populations; accordingly, recommendations are provided. In drawing these conclusions, the book addresses in detail a highly pressing topic in global bioethics and international law. In this regard, it combines bioethical arguments with jurisprudence, in particular with reference to the law of equity and the legal concepts of duress (coercion), unconscionable dealing, and undue inducement.
Population Genomics In The Developing World
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Author : Marlo Möller
language : en
Publisher: Elsevier
Release Date : 2024-08-01
Population Genomics In The Developing World written by Marlo Möller and has been published by Elsevier this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-08-01 with Science categories.
Population Genomics in the Developing World: Concepts, Applications, and Challenges, a new volume in the Translational and Applied Genomics series, provides a comprehensive, up-to-date summary of the field of population genomics in developing countries. The book equips students, researchers, and clinicians with the practical skills and approaches necessary to face the unique challenges and opportunities of practicing population genomics in developing countries. Following a brief foundational overview, more than a dozen authors working in developing nations share applied case studies from the field, including rationale, methods, analysis, and outcomes to reinforce understanding. Key themes across the country specific chapters include efficient genetic data generation and effective computational and statistical tools to analyze population-level data. The book then discusses clinical interpretation of this data, from direct-to-consumer ancestry testing to translational and applied precision medicine. A final chapter considers ethical aspects of conducting genomic research in developing countries. Addresses the unique opportunities to positively impact global health by practicing population genomics in developing countries Features applied case studies from genomic research in various developing nations, with clear instruction in research rationale, methods, tools, materials used, analysis, and outcomes Features international chapter authors and population genomics experts practicing in South Africa, Gabon, India, South America, Central America, and Honduras, among other locations
Populations And Genetics
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Author : Bartha Maria Knoppers
language : en
Publisher: BRILL
Release Date : 2003-12-01
Populations And Genetics written by Bartha Maria Knoppers and has been published by BRILL this book supported file pdf, txt, epub, kindle and other format this book has been release on 2003-12-01 with Law categories.
Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.
Genomics And World Health
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Author : Organisation mondiale de la santé
language : en
Publisher: World Health Organization
Release Date : 2002
Genomics And World Health written by Organisation mondiale de la santé and has been published by World Health Organization this book supported file pdf, txt, epub, kindle and other format this book has been release on 2002 with Electronic books categories.
Human Genome Research
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Author :
language : en
Publisher: Allied Publishers
Release Date : 1999
Human Genome Research written by and has been published by Allied Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 1999 with Medical categories.
Contributed articles presented at an "International Symposium on Human Genome Studies: Emerging Ethical and Socio-Economical Issues" during May 22-25, 1998 in Goa.
Evaluating Human Genetic Diversity
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Author : National Research Council
language : en
Publisher: National Academies Press
Release Date : 1998-01-19
Evaluating Human Genetic Diversity written by National Research Council and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 1998-01-19 with Science categories.
This book assesses the scientific value and merit of research on human genetic differencesâ€"including a collection of DNA samples that represents the whole of human genetic diversityâ€"and the ethical, organizational, and policy issues surrounding such research. Evaluating Human Genetic Diversity discusses the potential uses of such collection, such as providing insight into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.
Genomics And Health In The Developing World
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Author : Dhavendra Kumar
language : en
Publisher: Oxford University Press
Release Date : 2012-05-11
Genomics And Health In The Developing World written by Dhavendra Kumar and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-05-11 with Medical categories.
Genomics and Health in the Developing World provides detailed and comprehensive coverage of population structures, human genomics, and genome variation--with particular emphasis on medical and health issues--in the emerging economies and countries of the developing world. With sections dedicated to fundamtals of genetics and genomics, epidemiology of human disease, biomarkers, comparative genomics, developments in translational genomic medicine, current and future health strategies related to genetic disease, and pertinent legislative and social factors, this volume highlights the importance of utilizing genetics/genomics knowledge to promote and achieve optimal health in the developing world. Grouped by geographic region, the chapters in this volume address: - Inherited disorders in the developing world, including a thorough look at genetic disorders in minority groups of every continent - The progress of diagnostic laboratory genetic testing, prenatal screening, and genetic counseling worldwide - Rising ethical and legal concerns of medical genetics in the developing world - Social, cultural, and religious issues related to genetic diseases across continents Both timely and vastly informative, this book is a unique and comprehensive resource for genetists, clinicians, and public health professionals interested in the social, ethical, economic, and legal matters associated with medical genetics in the developing world.
Research On Human Population Genetics
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Author : World Health Organization. Scientific Group on Research on Human Population Genetics
language : en
Publisher:
Release Date : 1968
Research On Human Population Genetics written by World Health Organization. Scientific Group on Research on Human Population Genetics and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 1968 with Human population genetics categories.
Benefit Sharing
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Author : Doris Schroeder
language : en
Publisher: Springer Science & Business Media
Release Date : 2013-05-31
Benefit Sharing written by Doris Schroeder and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-05-31 with Law categories.
Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.