Guide To The De Identification Of Personal Health Information

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Guide To The De Identification Of Personal Health Information
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Author : Khaled El Emam
language : en
Publisher: CRC Press
Release Date : 2013-05-06
Guide To The De Identification Of Personal Health Information written by Khaled El Emam and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-05-06 with Business & Economics categories.
Offering compelling practical and legal reasons why de-identification should be one of the main approaches to protecting patients' privacy, the Guide to the De-Identification of Personal Health Information outlines a proven, risk-based methodology for the de-identification of sensitive health information. It situates and contextualizes this risk-ba
Sharing Clinical Trial Data
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Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-04-20
Sharing Clinical Trial Data written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-20 with Medical categories.
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Registries For Evaluating Patient Outcomes
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Author : Richard E. Gliklich
language : en
Publisher:
Release Date : 2014
Registries For Evaluating Patient Outcomes written by Richard E. Gliklich and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Diseases categories.
Oecd Health Policy Studies Health Data Governance Privacy Monitoring And Research
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Author : OECD
language : en
Publisher: OECD Publishing
Release Date : 2015-10-05
Oecd Health Policy Studies Health Data Governance Privacy Monitoring And Research written by OECD and has been published by OECD Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-10-05 with categories.
This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.
Government 3 0 Next Generation Government Technology Infrastructure And Services
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Author : Adegboyega Ojo
language : en
Publisher: Springer
Release Date : 2017-10-26
Government 3 0 Next Generation Government Technology Infrastructure And Services written by Adegboyega Ojo and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-10-26 with Law categories.
Historically, technological change has had significant effect on the locus of administrative activity, cost of carrying out administrative tasks, the skill sets needed by officials to effectively function, rules and regulations, and the types of interactions citizens have with their public authorities. Next generation Public Sector Innovation will be “Government 3.0” powered by innovations related to Open and big data, administrative and business process management, Internet-of-Things and blockchains for public sector innovation to drive improvements in service delivery, decision and policy making and resource management. This book provides fresh insights into this transformation while also examining possible negative side effects of the increasing ope nness of governments through the adoption of these new innovations. The goal is for technology policy makers to engage with the visions of Government 3.0 . Researchers should be able to critically examine some of the innovations described in the book as the basis for developing research agendas related to challenges associated with the adoption and use of some of the associated technologies. The book serves as a rich source of materials from leading experts in the field that enables Public administration practitioners to better understand how these new technologies impact traditional public administration paradigms. The book is suitable for graduate courses in Public Sector Innovation, Innovation in Public Administration, E-Government and Information Systems. Public sector technology policy makers, e-government, information systems and public administration researchers and practitioners should all benefit from reading this book.
Population Health Informatics
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Author : Joshi
language : en
Publisher: Jones & Bartlett Learning
Release Date : 2017-09-26
Population Health Informatics written by Joshi and has been published by Jones & Bartlett Learning this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-09-26 with Business & Economics categories.
Population Health Informatics addresses the growing opportunity to utilize technology to put into practice evidence-based solutions to improve population health outcomes across diverse settings. The book focuses on how to operationalize population informatics solutions to address important public health challenges impacting individuals, families, communities, and the environment in which they live. The book uniquely uses a practical, step-by-step approach to implement evidence-based, data- driven population informatics solutions.
Anonymizing Health Data
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Author : Khaled El Emam
language : en
Publisher: "O'Reilly Media, Inc."
Release Date : 2013-12-11
Anonymizing Health Data written by Khaled El Emam and has been published by "O'Reilly Media, Inc." this book supported file pdf, txt, epub, kindle and other format this book has been release on 2013-12-11 with Computers categories.
Updated as of August 2014, this practical book will demonstrate proven methods for anonymizing health data to help your organization share meaningful datasets, without exposing patient identity. Leading experts Khaled El Emam and Luk Arbuckle walk you through a risk-based methodology, using case studies from their efforts to de-identify hundreds of datasets. Clinical data is valuable for research and other types of analytics, but making it anonymous without compromising data quality is tricky. This book demonstrates techniques for handling different data types, based on the authors’ experiences with a maternal-child registry, inpatient discharge abstracts, health insurance claims, electronic medical record databases, and the World Trade Center disaster registry, among others. Understand different methods for working with cross-sectional and longitudinal datasets Assess the risk of adversaries who attempt to re-identify patients in anonymized datasets Reduce the size and complexity of massive datasets without losing key information or jeopardizing privacy Use methods to anonymize unstructured free-form text data Minimize the risks inherent in geospatial data, without omitting critical location-based health information Look at ways to anonymize coding information in health data Learn the challenge of anonymously linking related datasets
Building An Anonymization Pipeline
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Author : Luk Arbuckle
language : en
Publisher: "O'Reilly Media, Inc."
Release Date : 2020-04-13
Building An Anonymization Pipeline written by Luk Arbuckle and has been published by "O'Reilly Media, Inc." this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-04-13 with Computers categories.
How can you use data in a way that protects individual privacy but still provides useful and meaningful analytics? With this practical book, data architects and engineers will learn how to establish and integrate secure, repeatable anonymization processes into their data flows and analytics in a sustainable manner. Luk Arbuckle and Khaled El Emam from Privacy Analytics explore end-to-end solutions for anonymizing device and IoT data, based on collection models and use cases that address real business needs. These examples come from some of the most demanding data environments, such as healthcare, using approaches that have withstood the test of time. Create anonymization solutions diverse enough to cover a spectrum of use cases Match your solutions to the data you use, the people you share it with, and your analysis goals Build anonymization pipelines around various data collection models to cover different business needs Generate an anonymized version of original data or use an analytics platform to generate anonymized outputs Examine the ethical issues around the use of anonymized data
Data Protection And Privacy Volume 13
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Author : Dara Hallinan
language : en
Publisher: Bloomsbury Publishing
Release Date : 2021-01-28
Data Protection And Privacy Volume 13 written by Dara Hallinan and has been published by Bloomsbury Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-01-28 with Law categories.
This book brings together papers that offer conceptual analyses, highlight issues, propose solutions, and discuss practices regarding privacy, data protection and Artificial Intelligence. It is one of the results of the thirteenth annual International Conference on Computers, Privacy and Data Protection (CPDP) held in Brussels in January 2020. The development and deployment of Artificial Intelligence promises significant break-throughs in how humans use data and information to understand and interact with the world. The technology, however, also raises significant concerns. In particular, concerns are raised as to how Artificial Intelligence will impact fundamental rights. This interdisciplinary book has been written at a time when the scale and impact of data processing on society – on individuals as well as on social systems – is becoming ever starker. It discusses open issues as well as daring and prospective approaches and is an insightful resource for readers with an interest in computers, privacy and data protection.
The State Of Open Data
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Author : Davies, Tim
language : en
Publisher: African Minds
Release Date : 2019-05-22
The State Of Open Data written by Davies, Tim and has been published by African Minds this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-05-22 with Social Science categories.
It’s been ten years since open data first broke onto the global stage. Over the past decade, thousands of programmes and projects around the world have worked to open data and use it to address a myriad of social and economic challenges. Meanwhile, issues related to data rights and privacy have moved to the centre of public and political discourse. As the open data movement enters a new phase in its evolution, shifting to target real-world problems and embed open data thinking into other existing or emerging communities of practice, big questions still remain. How will open data initiatives respond to new concerns about privacy, inclusion, and artificial intelligence? And what can we learn from the last decade in order to deliver impact where it is most needed? The State of Open Data brings together over 60 authors from around the world to address these questions and to take stock of the real progress made to date across sectors and around the world, uncovering the issues that will shape the future of open data in the years to come.