Public Trust In Medical Research
DOWNLOAD
Download Public Trust In Medical Research PDF/ePub or read online books in Mobi eBooks. Click Download or Read Online button to get Public Trust In Medical Research book now. This website allows unlimited access to, at the time of writing, more than 1.5 million titles, including hundreds of thousands of titles in various foreign languages. If the content not found or just blank you must refresh this page
Public Trust In Medical Research
DOWNLOAD
Author : Philip Cheung
language : en
Publisher: Radcliffe Publishing
Release Date : 2007
Public Trust In Medical Research written by Philip Cheung and has been published by Radcliffe Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2007 with Medical ethics categories.
It has been claimed by fertility experts that embryos can be screened for 6,000 diseases, thereby the risk of x-linked diseases can be minimised by 'cherry-picking' male embryos that do not carry the abnormal gene. If medical scientists continue to strive for cures, genetic aberrance in human could be a phenomenon of the past...This challenging book explores issues of professional integrity and ethics underpinning medical research. It includes real-life case studies where public trust in medical research has been misplaced and encourages medical professionals to adhere to professional codes of conduct and be informed about their decision making process. It is vital reading for undergraduate and postgraduate students of medicine, law, sociology and social policy, philosophy, health related research and ethics. Practising researchers in medicine and the pharmaceutical industry, and their managers will find it invaluable. The text provides motivation for academics and educators with an interest in research and governance. Healthcare policy makers and shapers, patient rights groups, campaigners and the general media will find the information enlightening. "Over the last four decades, medicine has given hope to many people and saved many lives as a result of the ability of the physicians and surgeons to develop new treatments and innovative surgical techniques. While we can celebrate the success of medical science, we should also critically examine some of these developments against principles and in the light of public opinion." - Philip Cheung.
Public Trust In Medical Research
DOWNLOAD
Author : Philip Cheung
language : en
Publisher:
Release Date : 2018
Public Trust In Medical Research written by Philip Cheung and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2018 with Medical ethics categories.
Trust And Confidence At The Interfaces Of The Life Sciences And Society
DOWNLOAD
Author : National Academies of Sciences, Engineering, and Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-09-23
Trust And Confidence At The Interfaces Of The Life Sciences And Society written by National Academies of Sciences, Engineering, and Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-09-23 with Science categories.
Does the public trust science? Scientists? Scientific organizations? What roles do trust and the lack of trust play in public debates about how science can be used to address such societal concerns as childhood vaccination, cancer screening, and a warming planet? What could happen if social trust in science or scientists faded? These types of questions led the Roundtable on Public Interfaces of the Life Sciences of the National Academies of Sciences, Engineering, and Medicine to convene a 2-day workshop on May 5-6, 2015 on public trust in science. This report explores empirical evidence on public opinion and attitudes toward life sciences as they relate to societal issues, whether and how contentious debate about select life science topics mediates trust, and the roles that scientists, business, media, community groups, and other stakeholders play in creating and maintaining public confidence in life sciences. Does the Public Trust Science? Trust and Confidence at the Interfaces of the Life Sciences and Society highlights research on the elements of trust and how to build, mend, or maintain trust; and examine best practices in the context of scientist engagement with lay audiences around social issues.
Conflict Of Interest In Medical Research Education And Practice
DOWNLOAD
Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2009-10-16
Conflict Of Interest In Medical Research Education And Practice written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-10-16 with Medical categories.
Collaborations of physicians and researchers with industry can provide valuable benefits to society, particularly in the translation of basic scientific discoveries to new therapies and products. Recent reports and news stories have, however, documented disturbing examples of relationships and practices that put at risk the integrity of medical research, the objectivity of professional education, the quality of patient care, the soundness of clinical practice guidelines, and the public's trust in medicine. Conflict of Interest in Medical Research, Education, and Practice provides a comprehensive look at conflict of interest in medicine. It offers principles to inform the design of policies to identify, limit, and manage conflicts of interest without damaging constructive collaboration with industry. It calls for both short-term actions and long-term commitments by institutions and individuals, including leaders of academic medical centers, professional societies, patient advocacy groups, government agencies, and drug, device, and pharmaceutical companies. Failure of the medical community to take convincing action on conflicts of interest invites additional legislative or regulatory measures that may be overly broad or unduly burdensome. Conflict of Interest in Medical Research, Education, and Practice makes several recommendations for strengthening conflict of interest policies and curbing relationships that create risks with little benefit. The book will serve as an invaluable resource for individuals and organizations committed to high ethical standards in all realms of medicine.
Preserving Public Trust
DOWNLOAD
Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2001-08-02
Preserving Public Trust written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2001-08-02 with Medical categories.
Amid increasing concern for patient safety and the shutdown of prominent research operations, the need to improve protections for individuals who volunteer to participate in research has become critical. Preserving Public Trust: Accreditation and Human Research Participant Protection Programs considers the possible impact of creating an accreditation system to raise the performance of local protection mechanisms. In the United States, the system for human research participant protections has centered on the Institutional Review Board (IRB); however, this report envisions a broader system with multiple functional elements. In this context, two draft sets of accreditation standards are reviewed (authored by Public Responsibility in Medicine & Research and the National Committee for Quality Assurance) for their specific content in core areas, as well as their objectivity and validity as measurement tools. The recommendations in the report support the concept of accreditation as a quality improvement strategy, suggesting that the model should be initially pursued through pilot testing of the proposed accreditation programs.
Public Trust In Medical Researchers And Intentions To Participate In Medical Studies
DOWNLOAD
Author : Ian F. Wall
language : en
Publisher:
Release Date : 2017
Public Trust In Medical Researchers And Intentions To Participate In Medical Studies written by Ian F. Wall and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with categories.
Medical advancements are the collective achievement of medical researchers and human subject volunteers. However, participation in medical research is often imbalanced along the dimensions of race/ethnicity, education, income, age, gender, geographic placement, and more, limiting the generalizability of results. In this dissertation, I explore intentions to participate in three types of medical research studies of varying levels of invasiveness and the role of trust in medical researchers (TIMR). The first empirical chapter uses an experimental design and cognitive interviewing among a quota sample of black, Latino, American Indian, and white participants (16 each) to assess response tendencies from an agree-disagree (AD) or construct-specific (CS) version of an 11-item scale measuring TIMR. Outcomes include response latencies, behavioral indicators of response difficulties, and indicators for reliability and concurrent validity. Answers to questions and probes were also analyzed qualitatively. The AD scale outperforms the CS scale counter to expectations. The second empirical chapter uses the theory of planned behavior (TPB) to predict intentions to participate in research among a convenience sample of 106 black, 100 Latino, 102 American Indian, and 102 white respondents. Structural equation models suggest that the TPB explains high proportions of variation in expressed likelihood of participation (LoP), TIMR can be a useful extension of the TPB, and the extended TPB explains much of the racial/ethnic differences in LoP related to a blood donation study. The third empirical chapter provides "doubly robust" estimates of the causal effect of TIMR on LoP. If one were to begin with low TIMR (below the sample median), substantially increasing their TIMR (placing them above the sample median) is estimated to increase respondents' probability of reporting that they are likely to participate by 13.8% (95% CI: 6.2% - 21.5%) in a study involving questions, 10.1% (95% CI: 0.3% - 19.9%) for a blood donation study, and no significant effect (95% CI: -9.9% - 9.5%) for a clinical trial. Results stratified by race/ethnicity reveal more complex relationships. Improving public TIMR in the magnitude needed to reduce participation disparities will likely require the long-term investment and attention of research institutions at the community level
Beyond The Hipaa Privacy Rule
DOWNLOAD
Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2009-03-24
Beyond The Hipaa Privacy Rule written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009-03-24 with Computers categories.
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Sharing Clinical Trial Data
DOWNLOAD
Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-04-20
Sharing Clinical Trial Data written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-20 with Medical categories.
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Discussion Framework For Clinical Trial Data Sharing
DOWNLOAD
Author : Committee on Strategies for Responsible Sharing of Clinical Trial Data
language : en
Publisher:
Release Date : 2014
Discussion Framework For Clinical Trial Data Sharing written by Committee on Strategies for Responsible Sharing of Clinical Trial Data and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Clinical trials categories.
Sharing data generated through the conduct of clinical trials offers the promise of placing evidence about the safety and efficacy of therapies and clinical interventions on a firmer basis and enhancing the benefits of clinical trials. Ultimately, such data sharing - if carried out appropriately - could lead to improved clinical care and greater public trust in clinical research and health care. Discussion Framework for Clinical Trial Data Sharing: Guiding Principles, Elements, and Activities is part of a study of how data from clinical trials might best be shared. This document is designed as a framework for discussion and public comment. This framework is being released to stimulate reactions and comments from stakeholders and the public. The framework summarizes the committee's initial thoughts on guiding principles that underpin responsible sharing of clinical trial data, defines key elements of clinical trial data and data sharing, and describes a selected set of clinical trial data sharing activities.
The Price We Pay
DOWNLOAD
Author : Marty Makary
language : en
Publisher: Bloomsbury Publishing USA
Release Date : 2019-09-10
The Price We Pay written by Marty Makary and has been published by Bloomsbury Publishing USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-09-10 with Health & Fitness categories.
New York Times bestseller Business Book of the Year--Association of Business Journalists From the New York Times bestselling author comes an eye-opening, urgent look at America's broken health care system--and the people who are saving it--now with a new Afterword by the author. "A must-read for every American." --Steve Forbes, editor-in-chief, FORBES One in five Americans now has medical debt in collections and rising health care costs today threaten every small business in America. Dr. Makary, one of the nation's leading health care experts, travels across America and details why health care has become a bubble. Drawing from on-the-ground stories, his research, and his own experience, The Price We Pay paints a vivid picture of the business of medicine and its elusive money games in need of a serious shake-up. Dr. Makary shows how so much of health care spending goes to things that have nothing to do with health and what you can do about it. Dr. Makary challenges the medical establishment to remember medicine's noble heritage of caring for people when they are vulnerable. The Price We Pay offers a road map for everyday Americans and business leaders to get a better deal on their health care, and profiles the disruptors who are innovating medical care. The movement to restore medicine to its mission, Makary argues, is alive and well--a mission that can rebuild the public trust and save our country from the crushing cost of health care.