Responsible Genomic Data Sharing
DOWNLOAD
Download Responsible Genomic Data Sharing PDF/ePub or read online books in Mobi eBooks. Click Download or Read Online button to get Responsible Genomic Data Sharing book now. This website allows unlimited access to, at the time of writing, more than 1.5 million titles, including hundreds of thousands of titles in various foreign languages. If the content not found or just blank you must refresh this page
Responsible Genomic Data Sharing
DOWNLOAD
Author : Xiaoqian Jiang
language : en
Publisher: Academic Press
Release Date : 2020-03-14
Responsible Genomic Data Sharing written by Xiaoqian Jiang and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-03-14 with Science categories.
Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia. - Addresses privacy preserving technologies and how they can be applied to enable responsible genomic data sharing - Employs illustrative case studies and analyzes emerging genomic data sharing efforts, common challenges and lessons learned - Features chapter contributions from international experts in responsible approaches to genomic data sharing
Responsible Genomic Data Sharing
DOWNLOAD
Author : Xiaoqian Jiang
language : en
Publisher: Academic Press
Release Date : 2020-03-17
Responsible Genomic Data Sharing written by Xiaoqian Jiang and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020-03-17 with Science categories.
Responsible Genomic Data Sharing: Challenges and Approaches brings together international experts in genomics research, bioinformatics and digital security who analyze common challenges in genomic data sharing, privacy preserving technologies, and best practices for large-scale genomic data sharing. Practical case studies, including the Global Alliance for Genomics and Health, the Beacon Network, and the Matchmaker Exchange, are discussed in-depth, illuminating pathways forward for new genomic data sharing efforts across research and clinical practice, industry and academia.
Genomic Data Sharing
DOWNLOAD
Author : Jennifer B. Mccormick
language : en
Publisher: Academic Press
Release Date : 2022-11-29
Genomic Data Sharing written by Jennifer B. Mccormick and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-11-29 with Medical categories.
Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing. - Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing - Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others - Features chapter contributions from international leaders in genomic data sharing
Sharing Clinical Trial Data
DOWNLOAD
Author : Institute of Medicine
language : en
Publisher: National Academies Press
Release Date : 2015-04-20
Sharing Clinical Trial Data written by Institute of Medicine and has been published by National Academies Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-04-20 with Medical categories.
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
The Law And Ethics Of Data Sharing In Health Sciences
DOWNLOAD
Author : Marcelo Corrales Compagnucci
language : en
Publisher: Springer Nature
Release Date : 2024-01-02
The Law And Ethics Of Data Sharing In Health Sciences written by Marcelo Corrales Compagnucci and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-01-02 with Law categories.
Data sharing – broadly defined as the exchange of health-related data among multiple controllers and processors – has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of “open data” and “open innovation.” The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today. Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
United Lab Wins
DOWNLOAD
Author : Aiden Feynman
language : en
Publisher: Publifye AS
Release Date : 2025-02-15
United Lab Wins written by Aiden Feynman and has been published by Publifye AS this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-02-15 with Science categories.
United Lab Wins explores the transformative impact of laboratory partnerships on modern scientific research, revealing how collaborative research accelerates scientific discovery. The book challenges the traditional image of the lone scientist, emphasizing how team-based science leverages shared resources and expertise to tackle complex problems. It presents a framework for evaluating partnership effectiveness, considering communication, resource allocation, and conflict resolution. The book examines the historical shift toward collaborative efforts, influenced by funding policies and advancements in collaborative platforms. It explores how these partnerships democratize scientific discovery, incorporating previously excluded smaller teams. United Lab Wins provides insights into optimizing scientific output and the importance of data sharing, while also addressing challenges such as intellectual property within collaborative projects. This book adopts an academic yet accessible approach, using real-world examples and drawing from published studies to support its arguments. Beginning with the fundamental concepts of laboratory partnerships, the book progresses through sections examining resource optimization, accelerated discovery, and the broadening of collaboration. This approach makes the book a valuable guide for scientists, research administrators, and policymakers interested in fostering a more collaborative scientific culture.
Neuroethics
DOWNLOAD
Author : Judy Illes
language : en
Publisher: Oxford University Press
Release Date : 2017
Neuroethics written by Judy Illes and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017 with Law categories.
Over the last decade, there have been unparalleled advances in our understanding of brain sciences. In this volume on neuroethics, a distinguished group of contributors from a range of disciplines discuss the ethical implications of this newfound knowledge and set out the many necessary considerations for the future.
Introduction To Molecular Genomics
DOWNLOAD
Author : Maryam Javed
language : en
Publisher: Bentham Science Publishers
Release Date : 2021-11-02
Introduction To Molecular Genomics written by Maryam Javed and has been published by Bentham Science Publishers this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-11-02 with Science categories.
Introduction to Molecular Genomics introduces the college student to the fundamental concepts of molecular biology and genomics. The text puts an emphasis on important topics in the subject that contribute to the learner’s understanding. These topics include molecular genomics, biodiversity and molecular phenomenon behind evolution of species, modern molecular methods for enhanced genomics research, DNA modifications at the molecular level for transgenic animal species, the role of cell environment on the gene expression, to name a few. The book has been designed to suit the requirements of educational courses in molecular biology, genomics and biochemistry. Key features - Covers basic concepts on key topics in molecular biology and genomics - Simple easy-to-read layout - Includes references for further reading - Includes a section on ethical aspects of scientific research Introduction to Molecular Genomics is a simple primer for students in applied or advanced life science courses at undergraduate levels
The Routledge Companion To The Future Of Management Research
DOWNLOAD
Author : David Crowther
language : en
Publisher: Taylor & Francis
Release Date : 2023-09-14
The Routledge Companion To The Future Of Management Research written by David Crowther and has been published by Taylor & Francis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-09-14 with Business & Economics categories.
The management of organisations continues to evolve as new priorities emerge and new approaches are developed. Thus, it is clear that research into business and management will also continue to evolve. This will be in terms of both what is researched and in terms of the techniques and methods used to conduct research. Such development will continue into the future and this book highlights evolving areas. It also suggests new topics which are emerging and new techniques to conduct such research – topics and techniques that will be of benefit to researchers. The unique focus on the future of research methods in management, the emergence of topics in contemporary management and sustainability research and practices, such as sustainability and circular economy, will set this volume apart. With coverage of new and emerging subjects in management studies such as sustainability, zero carbon, green market, and circular economy, and the international collaboration with contributors from all around the globe, this major interdisciplinary reference volume will be of interest and great value to researchers, academics, and advanced students in the fields of business and management research and appropriate methodologies.
Promoting The Human In Law Policy And Medicine
DOWNLOAD
Author :
language : en
Publisher: BRILL
Release Date : 2024-11-11
Promoting The Human In Law Policy And Medicine written by and has been published by BRILL this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-11-11 with Law categories.
Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized “humanity” in her academic work and in policymaking. As such, she forged a strong intellectual legacy, notably through her work on the human right to science, genomic and health-related data sharing, genome editing, human reproductive technologies, stem cell research, the rights of children, and population health. This collection of essays honours her extraordinary academic contributions to law, policy, and medicine.