The Law And Ethics Of Data Sharing In Health Sciences
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The Law And Ethics Of Data Sharing In Health Sciences
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Author : Marcelo Corrales Compagnucci
language : en
Publisher: Springer Nature
Release Date : 2024-01-02
The Law And Ethics Of Data Sharing In Health Sciences written by Marcelo Corrales Compagnucci and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-01-02 with Law categories.
Data sharing – broadly defined as the exchange of health-related data among multiple controllers and processors – has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of “open data” and “open innovation.” The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today. Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
Research Handbook On Health Ai And The Law
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Author : Barry Solaiman
language : en
Publisher: Edward Elgar Publishing
Release Date : 2024-07-05
Research Handbook On Health Ai And The Law written by Barry Solaiman and has been published by Edward Elgar Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-07-05 with Law categories.
This is an open access title available under the terms of a CC BY-NC-ND 4.0 License. It is free to read, download and share on Elgaronline, thanks to generous funding support from Hamad Bin Khalifa University (HBKU). The Research Handbook on Health, AI and the Law explores the use of AI in healthcare, identifying the important laws and ethical issues that arise from its use. Adopting an international approach, it analyses the varying responses of multiple jurisdictions to the use of AI and examines the influence of major religious and secular ethical traditions.
International Transfers Of Health Data
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Author : Marcelo Corrales Compagnucci
language : en
Publisher: Springer Nature
Release Date : 2025-02-03
International Transfers Of Health Data written by Marcelo Corrales Compagnucci and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-02-03 with Law categories.
In an age of digital globalization, navigating the complex landscape of international health data transfers presents significant challenges. This anthology delves into the intricate matrix of regulations, policies, and technologies that govern the transnational flow of health data and provides a comprehensive analysis of the legal frameworks across multiple jurisdictions. This volume sheds light on a range of topics, spanning the multifaceted data transfer mechanisms anchored in the General Data Protection Regulation to the landmark Schrems II court decision that resulted in the invalidation of the Privacy Shield, giving rise to the new Standard Contractual Clauses and the EU-US Data Privacy Framework. These seminal events triggered reforms not just in Europe and the US but have had far-reaching effects on global policy frameworks. In light of these developments, the book explores the contemporary regulatory shift spanning countries from the Global North and Global South. This comprehensive exploration encompasses a diverse array of nations, from the European Union, United Kingdom, United States, Japan, South Korea and Taiwan, to China, Australia, Nigeria, Colombia and India. With insights from leading experts and enriched by global case studies, this collection offers a holistic view of the evolving dynamics in international health data transfers. The book provides an indispensable resource for policymakers, legal scholars, healthcare professionals, and technology enthusiasts traversing the intersection of law, ethics, and global health data in the 21st century.
The European Health Data Space
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Author : Santa Slokenberga
language : en
Publisher: Taylor & Francis
Release Date : 2025-03-06
The European Health Data Space written by Santa Slokenberga and has been published by Taylor & Francis this book supported file pdf, txt, epub, kindle and other format this book has been release on 2025-03-06 with Law categories.
This timely volume provides a comprehensive examination of how the proposed new European Health Data Space (EHDS) legislation will impact upon health and genetic data, individual privacy and providers of health services. With the current legal framework recognised as insufficient in protecting data-related rights, the book spotlights the opportunities and challenges posed by the EHDS in balancing the interests of individuals with policymakers and researchers. It considers the impact on individual EU member states while highlighting issues such as changes to patients’ rights, wearable technology, developments in e-health and the secondary use of medical data. Critically, it also examines how the EHDS will operate within existing legal frameworks, including the General Data Protection Regulation, the Data Governance Act and the Data Act. Including contributions from some of the leading scholars in this area, this groundbreaking book will be key reading for students and researchers across law and public health. Chapters 2, 10 and 11 have been made available under a Creative Commons Attribution-NonCommercial-NoDerivatives (CC-BY-NC-ND) 4.0 license. Chapter 5 has been made available under a Creative Commons Attribution (CC-BY) 4.0 license.
Security Privacy And Trust In Wbans And E Healthcare
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Author : Anuj Kumar Singh
language : en
Publisher: CRC Press
Release Date : 2024-11-29
Security Privacy And Trust In Wbans And E Healthcare written by Anuj Kumar Singh and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-11-29 with Computers categories.
Wireless Body Area Networks (WBANs) are vulnerable to cyberattacks and security breaches that could unlock the door for cybercriminals to penetrate hospital networks. This book covers the fundamental concepts of security and privacy in WBANs including security requirements, issues, and challenges. Security, Privacy, and Trust in WBANs and E-Healthcare highlights the taxonomy of threats and attacks in WBANs and Internet of Medical Things (IoMT) and presents all technical aspects related to the security and privacy of WBANs. In addition to outlining viable solutions that take into account constrained resources at WBAN end-devices, hybrid network architecture, application characteristics, and communication protocols, the book covers the core concepts of WBAN security, privacy, and trust. It describes both theoretical and practical aspects for those working in security in the WBAN and IoMT, emphasizing the most significant potential WBAN security issues and challenges. The book also covers intrusion detection and security risk assessments in WBANs as well as lightweight security solutions for WBANs, blockchain-based solutions for WBANs, and authentication and access control in WBANs through various applications and case studies. This book is highly relevant to the graduate/postgraduate students, academicians, security system designers, security analysts, computer scientists, engineers, researchers, digital forensic experts, and other personnel working in information security, IoMT, and WBAN.
Ethical Considerations For Digital Public Health
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Author : Denise Veelo
language : en
Publisher: Frontiers Media SA
Release Date : 2024-10-09
Ethical Considerations For Digital Public Health written by Denise Veelo and has been published by Frontiers Media SA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-10-09 with Medical categories.
Public health guidelines and policies relating to digital public health are essential to ensuring the protection of the population. With this protection, there needs to be a consideration for the ethical challenges in public health. There is an obligation of care that comes with accessing health services, as well as a need for understanding the role of Artificial Intelligence and Machine Learning. As health challenges become more complex, there is a growing need to identify and address questions on existing public health policies, codes of conduct, and guidelines relating to the provision of medical care across the globe, in order to strengthen our understanding of the ethics of public health practices.
Genomic Data Sharing
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Author : Jennifer B. Mccormick
language : en
Publisher: Academic Press
Release Date : 2022-11-29
Genomic Data Sharing written by Jennifer B. Mccormick and has been published by Academic Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-11-29 with Medical categories.
Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing. - Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing - Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others - Features chapter contributions from international leaders in genomic data sharing
Promoting The Human In Law Policy And Medicine
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Author :
language : en
Publisher: BRILL
Release Date : 2024-11-11
Promoting The Human In Law Policy And Medicine written by and has been published by BRILL this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-11-11 with Law categories.
Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized “humanity” in her academic work and in policymaking. As such, she forged a strong intellectual legacy, notably through her work on the human right to science, genomic and health-related data sharing, genome editing, human reproductive technologies, stem cell research, the rights of children, and population health. This collection of essays honours her extraordinary academic contributions to law, policy, and medicine.
Health Sciences Librarianship
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Author : M. Sandra Wood
language : en
Publisher: Bloomsbury Publishing PLC
Release Date : 2014-05-09
Health Sciences Librarianship written by M. Sandra Wood and has been published by Bloomsbury Publishing PLC this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-05-09 with Language Arts & Disciplines categories.
This comprehensive textbook of health sciences librarianship provides the library student and new librarian with the background and skills necessary to handle day-to-day activities and provide quality services in a health sciences library or a more general library serving students and practitioners in the health professions. The book has 16 chapters, each authored by an experienced medical librarian and is organized logically into 4 sections: The Profession, Collection Services, User Services, and Administrative Services. Each chapter contains photographs, figures, tables, and charts illustrating the essential concepts introduced. Overseen by a 3-member editorial board of leading professors in medical librarianship programs, this authoritative text provides students, beginning, and experienced librarians with a comprehensive overview of state-of-the-art medical librarianship.
Data Science For Healthcare
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Author : Sergio Consoli
language : en
Publisher: Springer
Release Date : 2019-02-23
Data Science For Healthcare written by Sergio Consoli and has been published by Springer this book supported file pdf, txt, epub, kindle and other format this book has been release on 2019-02-23 with Computers categories.
This book seeks to promote the exploitation of data science in healthcare systems. The focus is on advancing the automated analytical methods used to extract new knowledge from data for healthcare applications. To do so, the book draws on several interrelated disciplines, including machine learning, big data analytics, statistics, pattern recognition, computer vision, and Semantic Web technologies, and focuses on their direct application to healthcare. Building on three tutorial-like chapters on data science in healthcare, the following eleven chapters highlight success stories on the application of data science in healthcare, where data science and artificial intelligence technologies have proven to be very promising. This book is primarily intended for data scientists involved in the healthcare or medical sector. By reading this book, they will gain essential insights into the modern data science technologies needed to advance innovation for both healthcare businesses and patients. A basic grasp of data science is recommended in order to fully benefit from this book.