Living Life To The Fullest With Ehlers Danlos Syndrome
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Living Life To The Fullest With Ehlers Danlos Syndrome
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Author : Pt Kevin Muldowney
language : en
Publisher:
Release Date : 2015-07-17
Living Life To The Fullest With Ehlers Danlos Syndrome written by Pt Kevin Muldowney and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-07-17 with Ehlers-Danlos syndrome categories.
"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.
The Mystery Of Ehlers Danlos Syndrome
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Author : Minnie H Lewis
language : en
Publisher: Independently Published
Release Date : 2023-10-26
The Mystery Of Ehlers Danlos Syndrome written by Minnie H Lewis and has been published by Independently Published this book supported file pdf, txt, epub, kindle and other format this book has been release on 2023-10-26 with categories.
The Mystery Of Ehlers-Danlos Syndrome: A Comprehensive Guide for Patients, Caregivers, and Healthcare Professionals Ehlers-Danlos syndrome (EDS) is a collection of genetic connective tissue illnesses that predominantly affect your skin, joints, and blood vessel walls. People with EDS may experience a wide range of symptoms, including joint hypermobility, skin fragility, chronic pain, and fatigue. This comprehensive guide provides everything you need to know about EDS, from understanding the causes and diagnosis to managing symptoms and improving quality of life. The book covers: The different types of EDS and their clinical manifestations The latest research on EDS and its treatment Practical strategies for managing EDS on a day-to-day basis The emotional and psychological impact of living with EDS Resources and support networks for patients, families, and healthcare professionals Whether you are newly diagnosed with EDS or looking for ways to better manage your condition, this book is an essential resource. Learn how to navigate the healthcare system, advocate for your needs, and live a fulfilling life with EDS. Who this book is for: This book is intended for people living with hEDS and vEDS, their caregivers, and healthcare professionals. It is written in a clear and concise style, making it accessible to readers of all backgrounds. Benefits of this book: If you are living with EDS, this book will provide you with the knowledge and tools you need to manage your condition effectively. You will learn about the latest research on EDS, as well as practical strategies for coping with symptoms and improving your quality of life. If you are a caregiver of someone with EDS, this book will help you to better understand the condition and how to support your loved one. You will also learn about resources and support networks that are available to help you and your family. If you are a healthcare professional, this book will provide you with a comprehensive overview of EDS, its clinical manifestations, and the latest treatment options. You will also learn about ways to improve the lives of your patients with EDS. Grab your copy today and start living your best life with EDS!
Ehler Danlos Syndrome Guide
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Author : Justin Allen
language : en
Publisher: Independently Published
Release Date : 2024-02
Ehler Danlos Syndrome Guide written by Justin Allen and has been published by Independently Published this book supported file pdf, txt, epub, kindle and other format this book has been release on 2024-02 with Health & Fitness categories.
Ehlers-Danlos Syndrome Guide is your comprehensive companion to navigating life with EDS. This empowering guide provides in-depth insights into understanding the condition, managing physical health, prioritizing mental well-being, and fostering a fulfilling lifestyle. From personalized care plans to building a supportive network and pursuing passion, this book offers practical strategies for individuals, caregivers, and healthcare professionals. Written with compassion and expertise, the guide aims to empower those affected by Ehlers-Danlos Syndrome to thrive and find joy in their unique journey. Discover resilience, embrace knowledge, and live life to the fullest with this essential guide.
A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type
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Author : Isobel Knight
language : en
Publisher: Singing Dragon
Release Date : 2014-12-21
A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and has been published by Singing Dragon this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-12-21 with Health & Fitness categories.
Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type
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Author : Isobel Knight
language : en
Publisher: Singing Dragon
Release Date : 2014-12-21
A Guide To Living With Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and has been published by Singing Dragon this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-12-21 with Health & Fitness categories.
Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Our Stories Of Strength
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Author : Kendra Neilsen Myles
language : en
Publisher:
Release Date : 2015-05
Our Stories Of Strength written by Kendra Neilsen Myles and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2015-05 with categories.
An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos Syndromes. "These are stories of hope and resilience, of strength under adversity, of self-reliance and new-found sources of support. They offer one core message to all who suffer from the diverse and difficult manifestations of EDS: You are not alone." - Dr. Clair Francomano, MD "Ehlers-Danlos Syndrome is another form of the human body. Just as there are tall people, short people, dark skin colored people, and light skin colored people, each with their own set of medical issues - similarly there are hypermobile people and not so hypermobile people who have different medical issues. Our understanding of EDS has improved, but we still have a lot of work to do. While the medical world works on understanding Ehlers-Danlos Syndrome, people with EDS have provided us with stories of courage and ingenuity. These stories give others and doctors the strength to find solutions." - PRADEEP CHOPRA, MD "As a physical therapist who works with many patients suffering from EDS, I've seen firsthand how isolating and frustrating EDS can be. Along with a more knowledgeable medical field, what these patients need most is an understanding that they are not alone and to be given hope. 'Our Stories of Strength' provides both community and hope and will be just as effective as any medication or exercise." - CHRISTOPHER GNIP, PT, DPT EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles and Mysti Reutlinger founded Our SOS Media, LLC with core values of giving back to non-profit organizations, creating jobs for people living with invisible and chronic illnesses, and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Our SOS Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are stronger together."
Our Stories Of Strength
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Author : Kendra Neilsen Myles
language : en
Publisher:
Release Date : 2016-10-20
Our Stories Of Strength written by Kendra Neilsen Myles and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2016-10-20 with Connective tissues categories.
This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."
Living Healthy With Ehlers Danlos Syndrome
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Author : Dr Richard Taylor
language : en
Publisher: Independently Published
Release Date : 2022-10-28
Living Healthy With Ehlers Danlos Syndrome written by Dr Richard Taylor and has been published by Independently Published this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-10-28 with categories.
LIVING HEALTHY WITH EHLERS DANLOS SYNDROME Encompasses everything including acknowledging clinical signs and acquiring early assessment to living with the circumstance on a regular schedule, this complete guide to living with and managing Ehlers-Danlos Syndrome has been reviewed and updated comprehensively in this widely available manuscript. Dr Richard and some of his colleagues, who have been diagnosing patients with this disorder, looks at how it affects individuals and discusses types, causes, management, treatment, physical and psychological elements, and how it broadly impacts our ways of life. This publication is a necessity for everybody who suffers, or individuals wanting to know more about the condition, Ehlers-Danlos Syndrome, and is willing to self educate himself/ herself about everything required to have a full life with this difficult illness. It will also be of interest to their family and friends, and professionals dealing with the type EDS.
Holding It All Together When You Re Hypermobile
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Author : Christie Cox
language : en
Publisher: Journey2joy LLC
Release Date : 2022-07-28
Holding It All Together When You Re Hypermobile written by Christie Cox and has been published by Journey2joy LLC this book supported file pdf, txt, epub, kindle and other format this book has been release on 2022-07-28 with categories.
How to Deal - and Heal - for those with Rare Chronic Illness like EDS Tired of being told there's no name or treatment for your illness? That it's all in your head or that your pain can't be real because you're too young/old/pretty/bright/healthy/normal to have a chronic disorder? What if instead there was someone who knew what you were going through and could teach you strategies for coping with rare chronic illness? This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS) - from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone. In Holding It All Together When You're Hypermobile, Christie Cox explores not only the physical effects of hEDS but its emotional impact as well. As a fellow patient and medical rarity, known to doctors as zebras, she's experienced her body's betrayal and suffered through the myriad complications stemming from this disease. But she's also found a way out from the depths of this life-altering disorder with wisdom you can turn into hope. As a self-advocacy guide, she offers practical, no-nonsense advice about living with chronic illness and the concrete steps you can take to achieve a new normal. In her book, you'll discover... A healing prescription for the miracle of the modern mindset A look at the latest scientific research on the edge of answers Q&A interviews with expert doctors and advocacy groups Guidance for how to help loved ones better understand hEDS Christie's own inspiring story of how she came to live her best life Lessons, questions and quotes to inspire your search for answers Holding It All Together When You're Hypermobile gives you the tools and resources you need to get back to living the life you want. Reading it will not only boost your confidence but empower you to change your life for the better. To learn more about Christie's book, visit www.holdingitalltogether.com If you want to learn more about Christie's advocacy work, visit www.journey2joyous.com
Zebras Of Hope
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Author : Ellen Kelleher
language : en
Publisher: CreateSpace
Release Date : 2014-05-04
Zebras Of Hope written by Ellen Kelleher and has been published by CreateSpace this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014-05-04 with categories.
This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS.