Palliative Care In Amyotrophic Lateral Sclerosis Motor Neurone Disease
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Palliative Care In Amyotrophic Lateral Sclerosis Motor Neurone Disease
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Author : David Oliver
language : en
Publisher:
Release Date : 2000
Palliative Care In Amyotrophic Lateral Sclerosis Motor Neurone Disease written by David Oliver and has been published by this book supported file pdf, txt, epub, kindle and other format this book has been release on 2000 with Medical categories.
Although new treatments for amyotrophic lateral sclerosis/motor neurone disease are being developed, these at present offer only the potential to slow the disease process. Therefore a palliative care approach to the care of the patient and their family is at the center of good clinical practice in ALS/MND. This book aims to provide and evidence based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families and care in bereavement. The palliative care approach to the care of ALS/MND is outlined and the role of the multidisciplinary team emphasized. The international authorship are from many different disciplines and are all closely involved in the care of ALS patients; giving a depth of practical knowledge and experience and allowing a comparison of the differences across cultures, social circumstances, health care systmes and nations. All contributors are clinicians involved in the care of people with ALS/MND and they are able to provide clear guidelines of the care throughout the disease process, from telling of the diagnosis to death. The experience of patients and families are considered and case studies are provided to show the practical applications of the theoretical knowledge. An evidence based approach, grounded in day to day care of patients, is used. Different models of care are explored and the interaction of palliative care with other treatment regimes is addressed, as the experience from the treatment of cancer has shown that there may easily be areas of conflict and confusion if there is a lack of clarity in the care provided for patients. The book aims to provide a reference for all involved in the care of patients with ALS/MND, including neurologists, general physicians, rehabilitationists, paramedical staff, general/family practitioners and specialist palliative care teams. The care of a patient with ALS/MND, and their family, is often a challenge, but one all should take up so that patients can live life as fully as possible.
Palliative Care In Amyotrophic Lateral Sclerosis
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Author : David Oliver
language : en
Publisher: Oxford University Press, USA
Release Date : 2014
Palliative Care In Amyotrophic Lateral Sclerosis written by David Oliver and has been published by Oxford University Press, USA this book supported file pdf, txt, epub, kindle and other format this book has been release on 2014 with Medical categories.
This volume provides an evidence-based guide to the care of people with ALS/MND, including the control of symptoms, the psychosocial care of patients and their families, and care in bereavement.
Public Policy In Als Mnd Care
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Author : Robert H. Blank
language : en
Publisher: Springer Nature
Release Date : 2020
Public Policy In Als Mnd Care written by Robert H. Blank and has been published by Springer Nature this book supported file pdf, txt, epub, kindle and other format this book has been release on 2020 with Amyotrophic lateral sclerosis categories.
Anyone interested in ALS/MND-physician, patient, or healthcare policy director -should read this book and learn from it. -Walter G. Bradley D.M., F.R.C.P., Professor and Chairman Emeritus, Miller School of Medicine, University of Miami, USA "This book illustrates the inequities in the accessibility of quality neurological care existing globally and which forms a major target for redress by the World Federation of Neurology and the World Health Organisation." -William M Carroll AM, MBBS, MD, FRACP, FRCP(E), President, World Federation of Neurology This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions. Robert H. Blank, PhD, (University of Maryland) is an adjunct Professor of Political Science at the University of Canterbury in Christchurch, New Zealand. He has been a frequent guest professor at Aarhus University in Denmark and at National Taiwan University in Taipei, Taiwan, and a Research Scholar at New College Florida. Jerome E. Kurent received his MD from the University of Cincinnati College of Medicine and completed residencies in Neurology and Internal Medicine at the Johns Hopkins Hospital. He completed fellowships in neuromuscular diseases and electromyography at the National Institutes of Health, followed by a Geriatrics Medicine fellowship at Harvard where he also received his MPH. Dr. Kurent joined the Medical University of South Carolina faculty in 1984, and is Professor of Neurology, Medicine and Psychiatry and Behavioral Sciences. David Oliver, MD., recently retired as Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent where he developed an integrated service over 32 years. He is an Honorary Professor at the Tizard Centre at the University of Kent, where he supervises students and is involved in research
Palliative Care In Neurological Disease
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Author : Judi Byrne
language : en
Publisher: Radcliffe Publishing
Release Date : 2009
Palliative Care In Neurological Disease written by Judi Byrne and has been published by Radcliffe Publishing this book supported file pdf, txt, epub, kindle and other format this book has been release on 2009 with Medical categories.
The particular needs of people with progressive long-term neurological conditions - including Parkinson's Disease, Motor Neurone Disease (MND), Multiple Sclerosis (MS) and Huntington's disease - may make care delivery and planning the last stages of life ethically, practically and clinically challenging. However, only in recent years has serious attention been paid to palliative care approaches for people affected by conditions other than cancer. This unique and comprehensive book builds bridges between palliative and neurological care expertise, recognising that such people may require intensive input from rehabilitation and therapy teams at the same time as complex symptom management and supportive non clinical care. Its comprehensive guidance on managing these complex conditions aims to enable those living with them to enjoy the best quality of life for as long as possible.
Palliative Care In Neurological Disease
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Author : Judi Byrne
language : en
Publisher: CRC Press
Release Date : 2021-12-17
Palliative Care In Neurological Disease written by Judi Byrne and has been published by CRC Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2021-12-17 with Health & Fitness categories.
The particular needs of people with progressive long-term neurological conditions - including Parkinson's Disease, Motor Neurone Disease (MND), Multiple Sclerosis (MS) and Huntington's disease - may make care delivery and planning the last stages of life ethically, practically and clinically challenging.
Navigating Life With Amyotrophic Lateral Sclerosis
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Author : Mark B. Bromberg
language : en
Publisher: Oxford University Press
Release Date : 2017-04-03
Navigating Life With Amyotrophic Lateral Sclerosis written by Mark B. Bromberg and has been published by Oxford University Press this book supported file pdf, txt, epub, kindle and other format this book has been release on 2017-04-03 with Medical categories.
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with 30 years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Motor Neurone Disease
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Author : David Oliver
language : en
Publisher: SPCK
Release Date : 2012-03-30
Motor Neurone Disease written by David Oliver and has been published by SPCK this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-03-30 with Medical categories.
Motor neurone disease (MND) is a progressive condition that damages the nervous system, leaving muscles wasted and weak, and causing loss of mobility, and difficulties with speech, swallowing and breathing. MND tends to affect people over 40 and is most common between the ages of 50 and 70. There are about 5,000 people with MND at any one time in the UK. The cause remains a mystery and there is no cure. The third edition of this book, which sells primarily via the Motor Neurone Disease Association, gives a full update of treatments and resources available to help those diagnosed live life to the full. Topics include what the disease is, what the doctors will do, and how to cope with the difficulties. This new edition also examines the latest on benefits, and up to date thinking on drug trials. Dr David Oliver, a leading expert on MND, shows how to treat not just the physical effects but also the emotional ones for the whole family. Dr Oliver also explains the vital role of the Motor Neurone Disease Association.
Long Term Neurological Conditions
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Author :
language : en
Publisher: Royal College of Physicians
Release Date : 2008
Long Term Neurological Conditions written by and has been published by Royal College of Physicians this book supported file pdf, txt, epub, kindle and other format this book has been release on 2008 with Nervous system categories.
These guidelines are intended to inform doctos and healthcare professionals involved in the long-term support, rehabilitation and palliative care of people in the later stages of long-term neurological conditions.
End Of Life Care In Neurological Disease
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Author : David Oliver
language : en
Publisher: Springer Science & Business Media
Release Date : 2012-11-27
End Of Life Care In Neurological Disease written by David Oliver and has been published by Springer Science & Business Media this book supported file pdf, txt, epub, kindle and other format this book has been release on 2012-11-27 with Medical categories.
As end of life care is extended to more and more people it is increasingly important that people with progressive neurological disease are recognised as having particular issues as their disease progresses. This group of people with advancing motor neurone disease, multiple sclerosis, Parkinson’s disease, multiple systems atrophy, progressive supranuclear palsy, Huntington’s disease and other progressive neurological disease face increasing problems – with physical symptoms and psychosocial and spiritual issues for both themselves and their families and carers. This book encourages health and social care professionals to become closely involved in the care of these people and their families, so that advance care plans can be started and quality of life maintained. This book addresses the principles and practice of developing end of life care strategies for neurological disease, written with a clinical, multidisciplinary focus and illustrated with detailed case studies.
Motor Neurone Disease
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Author : Sue Beresford
language : en
Publisher: Nelson Thornes
Release Date : 1995
Motor Neurone Disease written by Sue Beresford and has been published by Nelson Thornes this book supported file pdf, txt, epub, kindle and other format this book has been release on 1995 with Medical categories.
This book provides a theoretical framework based on humanism, philosophy and the principles of palliative care, from which to address assessment and treatment planning throughout the progression of the disease from time of diagnosis, during terminal care and bereavement.